The former talk show host Wendy Williams was diagnosed with FTD last year, her care team announced in a Feb. 22 statement. “In 2023, after undergoing a battery of medical tests, Wendy was officially diagnosed with primary progressive aphasia and frontotemporal dementia (FTD),”

Behind every person diagnosed with FTD is a care partner navigating an emotional and often isolating journey. Join AFTD’s Healthcare Professional Webinar on Nov. 18 at 12 p.m. ET, featuring Stephanie Muskat, MSW, RSW, to learn how individual therapy can offer meaningful support

After losing her dad to bvFTD and ALS, Liz Matthews found purpose in connection and now leads AFTD’s National Young Adult Support Group to help others do the same. ❤️ “I actually met other people who were my age and have been through the same situation… it completely changed

Caring for someone living with FTD can bring moments of connection and moments of exhaustion. It’s okay to ask for help. This week’s Help & Hope highlights resources, respite options, and support networks designed to help care partners and caregivers find balance. Learn more:

Carrie’s words embody one of the key priorities in AFTD’s 2025–2028 Strategic Plan: advancing awareness and advocacy to build a more understanding and supportive world for those impacted by FTD. Through the voices of advocates like Carrie, we can drive meaningful change: one

Great time at the Soho Sessions supporting @AFTDHope with the best musicians! @LarryCampbell_ @jayveerecords @IvanNeville + Joey Spampinato

Great to support The Association for Frontotemporal Degeneration in honor of Bruce Willis Emma Heming Willis Soho-Sessions

Thank you, Warren, for your support and for helping to raise awareness of FTD. ❤️ #EndFTD #FTDcommunity

Thank you, Keith, for your support and for helping to raise awareness of FTD. ❤️

Dawn Kirby’s daughter, Kara, was diagnosed with FTD at age 29. In a recent podcast, she shared her experience as a mother fighting for her daughter, her evolution as an FTD advocate, and her work with AFTD, and the importance of community support, perspective, and education.

Join AFTD’s next Healthcare Professional Webinar on Tuesday, Nov. 18 at 12 p.m. ET to learn how individual therapy can help care partners navigate the unique emotional challenges of FTD caregiving. Led by Stephanie Muskat, MSW, RSW, founder of Compassion in Caregiving, this

🧬 @AFTDHope now recommends #genetictesting + #geneticcounseling for everyone diagnosed with #FTD — a major step toward earlier diagnosis, family awareness & access to research. 🔗 https://t.co/wNDmkptMAZ Free genetic testing info: https://t.co/LXMvQRkdDv

🧠 FTD is a progressive disease. Over time, symptoms of frontotemporal degeneration (FTD) become more pronounced, affecting behavior, language, movement, and daily life. While every journey is unique, one thing remains constant: families facing FTD deserve understanding,

New FTD studies are now recruiting. See this season’s Fall Research Roundup to learn how you can help move FTD science forward: https://t.co/QOt5GmPpmo #endFTD #Research #NumbersHavePower

Helen-Ann Comstock’s courage and determination in caring for her husband, Craig, led her to start AFTD 23 years ago, creating vital support for caregivers and families facing FTD. Helen-Ann passed away in July. ❤️ Honor her legacy today with a gift of $23. You will help expand

Caregiving is a journey of countless brave steps, and every single one matters. ❤️ If you ever need support, information, or simply someone who understands, AFTD’s HelpLine is here to help. 📩 info@theaftd.org 📞 1-866-507-7222 #NationalFamilyCaregiversMonth

This November, AFTD recognizes the strength and resilience of everyone caring for a loved one with FTD. ❤️ We're kicking off National Family Caregivers Month by sharing 'Life After an FTD Diagnosis: What You Need to Know' — our updated booklet to help families navigate the

AFTD now supports the recommendation that all people diagnosed with FTD be offered genetic counseling and testing, aligning with guidance from the National Society of Genetic Counselors (NSGC) FTD/ALS Working Group. This evolution brings the FTD community closer to a future

Are you a clinician or researcher attending GSA in Boston? Stop by booth 201 to find out how AFTD and the FTD Disorders Registry LLC can help support your work. Come see our poster #7185 on FTD diagnosis and impact, Nov. 13, 1:45-3pm, and don't miss the Adapting Interventions

After her FTD diagnosis, AFTD Persons with FTD Advisory Council co-chair Deb Jobe discovered an unexpected gift: art. What began with an adult coloring book grew into vivid, intricate pieces that fill her home with color. Her story illustrates how creativity can emerge even amid

Results from Alector Therapeutics’ Phase 3 trial for Latozinemab (AL001), designed for people with FTD caused by GRN variants, have raised important questions for many in our community. Join AFTD’s Dr. Penny Dacks, Dr. Carmela Tartaglia, and members of the FTD community on