The former talk show host Wendy Williams was diagnosed with FTD last year, her care team announced in a Feb. 22 statement. “In 2023, after undergoing a battery of medical tests, Wendy was officially diagnosed with primary progressive aphasia and frontotemporal dementia (FTD),”

Planning summer travel with someone living with FTD? ☀️✈️. Care partners from AFTD’s community shared real-life tips, from using Sunflower Lanyards to packing daily essentials. 💼. 📲 Tap through this post for practical advice. For more caregiver tips, please email

Whether you’re living with FTD or supporting someone who is, your voice matters. Join AFTD’s free webinar on July 31 at 3 p.m. ET to learn how to prepare for meetings with lawmakers, share your FTD journey with confidence, and make a real impact. 🔗 Sign up today:

RT @EndFTDregistry: Why does longitudinal data matter in #FTDresearch?. Tracking changes over time helps researchers understand how the dis….

"It is important to recognize that even among individuals with the same FTD diagnosis, the progression and symptom mix can vary greatly.". In this clip from the FTD 101 session at AFTD's 2025 Education Conference, Esther Kane, AFTD's Support & Education Director, explains how FTD

FTD doesn’t just change lives. It upends careers, relationships, and families. That’s why awareness matters so much. Last year, Food for Thought hosts raised over $230,000 to support AFTD’s mission. This fall, you can help us go even further. Whether you bake, host, or

We are less than a month out from Driving Hope Colorado! ⛳ . Join us on the links, as a sponsor, or just for dinner and a spectacular view at the Colorado National Golf Club on August 10:

AFTD Advocates are leading the way to raise awareness ahead of World FTD Awareness Week 2025 (September 21–28), and we’re excited to share our progress so far. 🏛️ Resolutions passed in: New York, Delaware, Louisiana, Montana, Tennessee, Oklahoma, Virginia, and Illinois.📜

AFTD held its first-ever Genetic FTD Symposium to address the growing need for answers, guidance, and connection among families affected by inherited forms of FTD. From understanding genetic risk to clinical trial updates and powerful stories of advocacy, this event marked an

“You get so paranoid. Any kind of disordered thinking or forgetting things, you think, oh, this is it.”. In a recent episode of WUNC’s Embodied podcast, brothers Ansel and Cosmo open up about living with the MAPT gene mutation that causes FTD, the same disease that affects their

AFTD offers trusted, practical booklets to help individuals and families better understand FTD and navigate its challenges. From receiving a diagnosis to coping with grief or understanding genetics, these resources are here for you. 📚 Access them all at:

Did you know #FTD and #ALS can occur together? A study finds that FTD-ALS might be more common than previous research suggests. ➡️ Click here to learn more:

RT @EndFTDregistry: Wondering what happens after you join the FTD Disorders Registry?. You get instant access to research opportunities + r….

AFTD’s Monthly Drop-In group offers a virtual space for people diagnosed with FTD to connect, share, or simply be present with others who understand. 💬 Topics are based on participant feedback and have included:.• Executive Function & FTD.• Relationship Changes After

Cuts to vital programs are threatening the support that people with FTD and their families rely on. Now is the time to speak up. Join AFTD’s upcoming advocacy webinar on July 31 at 3 p.m. ET to learn how to share your story with legislators and take action in your community. 🔗

A Chinese study identifies predictors of psychological well-being and self-rated health in care partners of people with #FTD and other forms of #dementia. 👉 Click here to learn more:

This Message of Hope is a gentle reminder that caring for yourself is not only important, it’s essential. Whether you're supporting someone with FTD or navigating your own journey, your well-being matters. ❤️ Take a moment today to rest, reflect, or do something just for you.

Living with FTD brings daily challenges for both persons diagnosed and their care partners. AFTD’s Comstock Grants offer meaningful support, helping families access tools and services that can improve quality of life and make self-care possible. ❤️ Learn more about how Comstock

As families gather for July 4th, AFTD holds space for those facing the challenges of FTD. Today and every day, we remain committed to progress, hope, and a future free of this disease. 🇺🇸 Planning travel or staying close to home? Find tips to help make the holiday more

RT @kp2722: ⁦@AFTDHope⁩

Every Food for Thought event starts with a story. For Olivia Costello, it was inspired by her aunt Colleen’s years as a host and their family’s love of her uncle, Ed “Big Time” Costello. “Supporting this organization is how we carry the legacy of my uncle forward and help