Molly
@mollyfentonx
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7,173
Following
570
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267
Statuses
5,267
21 y/o Welsh girl. Speaker, brain tumour advocate, finding my way through illness in my 20s. Founder @loveyourperiod1 ❤️
Wales, United Kingdom
Joined November 2015
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Pinned Tweet
I’m speaking
@EveryWomanFest_
😭
Set up by the wonderful
@jules_cornish
to empower, educate & support women/girls about our bodies.🫶🏼
Read below to see what I’m doing.✨
Saturday June 15
Insole Court Cardiff
Will I see you there?❤️
More info & Tickets:
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@summerahrens
I’m so glad someone said this been thinking it for weeks. Girl dinner is literally “let’s just all complete” again. It started with the best intentions but only 10% of the videos I’ve seen are actually good. Another toxic competition about who can eat the least and put it online
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Waiting for results.
Life’s a circle of scans, wait for results, tests, results.
I was a normal happy 20 y/o. I’ve tried to continue but it’s not sustainable.
Checking my privelege. Knowing I’m lucky. But allowing myself to curl in this corner and cry as I wait, just for now.
1K
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7K
Tomorrow I turn 22.
21 was an awesome year but I’m sad that one of the best years of my life was consumed by my illness.
But I'm so grateful to be here. More than words can describe.
Here’s me on my 19th birthday. Everyone thought it was my last. But we’re still here. 💪🏼
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Going to be logging off in the lead up to Tuesday. My brain is clouded with fear & the best thing I can do is stay in my happy little naive bubble & keep occupied. The results of Tuesday’s scans will change my life either way, but let’s hope it’s the + side. 🤞🏼
Love to all.❤️
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I’ll never forget the day Tilly was crying because my doctors told her I had 12 months left.
I’m oddly grateful for that day. Because it was only then we started enjoying every second together.
That was 2021. I know she’s the biggest reason why I’m alive today.
#SistersDay
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2023 has been more than interesting.
I lost 99% of my world. Started to rebuild it. Learnt what it meant to have to grow up & make big choices. Survived some unsurvivable moments & lost my identity.
This brain tumour will not control my 2024.
I'm not ready to be defeated yet.
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My siblings are in relationships and were getting elaborate presents and gift baskets for Christmas. I didn't think anything of it but my dad yesterday bought me coffee and then took me for a day out so I didn't feel like I'd missed out🥹
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5 year brain tumour anniversary!
5 years ago today - at 16 years old - I was told I had a “ticking time bomb” in my head.
From then I saw no point in living.
5 years on and I've never been more grateful for life.
🍉cake for the tumour diet xxx
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We’re good!
Nothing dangerous & I’ll have more tests this week.
So for now, we try to relax. I’ll have an appointment with a specialist within the week.
That’s all I’m willing to share online right now.
Like my improved hat?
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Put our tree up & I felt quite emotional. 90% positive, grateful to live another Christmas.
10% heartbroken at how fast time goes & scared for the future.
Lost my last Christmas to illness & thought I wouldn't be alive to see this one. Making the most of this gift.❤️
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2020 life was perfect.
2021 was supposed to be my ‘final’ NY celebration.
2022 I was so sick I don't remember.
2023 I'm with my family, Taylor Swift playing, dosed up on pain meds (lol) & grateful. Borderline emotional that I'm here.
I'm the luckiest girl alive.
#HAPPYNEWYEAR
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A year ago i was the happiest I’ve ever been. Eating enough fruit to explode. Enjoying the sun. All symptoms I had were gone which is why I thought I was fine.
I have a goal, and hope. I’ll never be who I was again, but the new version of me after all this will be the best one.
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Just wanted to show everyone my new dress🫶🏼
My dad got it for me.
No reason or even ability to wear it now. But there's hope that maybe soon I can start feeling less like a walking brain tumour and more like Molly✨
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2 years ago today…
I was marathon training.
How times change. Can't wait to be back to it. This time raising money for brain tumours.
It's going to take a lot but I will never take my health for granted again. This brain tumour will no longer rule my life. I'm in charge now.
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2 years ago, Tilly slept on my bedroom floor checking I was breathing, staying off school as she became my full time carer.
There’s is no one I’d rather share these moments with. We understand them deeper than many do. Any & every achievement is hers too.❤️
#Womenspire
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Scans are next Tuesday. Today I’ve had enough anxiety to burn the calories of running a marathon. Ending in a meltdown to my parents unable to stand crying so hard. Mega cringe & unheard of. Daisy & I are outside getting fresh air. Making a list of how to keep busy until results.
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54 hrs awake & I can’t hold back tears.
My hand locked last night (happens often). All up my arm is in agony.
Will call drs.
I’m sorry I don’t want this page to be negative. No matter how optimistic I am, this is going to happen sometimes.
Today can still be a good day.❤️
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Nicola, Mark, Gracie & Laura - thank you. From us all.
I’ll be back here soon to
#BeMoreLaura
❤️
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I ignore DMs but I had horrible ones about yesterdays post. I felt awful reading them.
SO I'm reposting it🩷
No one talks about how unrecognisable you become in your own body inside and out after illness. It's a big deal to have my photo taken now.
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Pain levels are 🔝this week.
I've crawled from my desk to my bed. Feels like the pain is in my bones and not my muscles?
As you can probably tell I spent the morning trying not to burst into tears during meetings.
I just can't function through it. I don't know how to.
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I began running in 2020.
2021 I was ready for my first half marathon.
Then I was too ill to walk.
2022 I was determined to run for Laura Nuttall/brain tumours.
Today was the Cardiff Half 2023 & I’m the same as 2022.
2024 I’m determined.
Middle fingers up to my tumour.
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Overwhelming news today in the brain tumour circle from a few corners. We know the realities but sometimes it hits harder and it’s easy to feel helpless and scared.
I’m sending you all a big hug. I’m going to make some tea, have a good cry then try get some needed sleep.
❤️
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#InternationalDayofPersonsWithDisability
Everything is 15x harder for me now. I may not look like it, but I struggle to do day to day tasks. So be kind & don’t judge.
Because if one more person makes a comment about me sitting in the disabled seats on a train I’ll cry.
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Tomorrow will be 5 years since I was told I had my brain tumour…
Quite the milestone.
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Tonight’s my village Xmas lights & I didn't end up going as I had no one to go with.
I don't mind, just a reminder that I lost so many people that were huge parts of my life.I know I'll find new ones but it's hard to ignore sat here alone.
We move! Bigger priorities right now.
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New Years Day 2021.
Back when life was normal, happy, healthy, perfect even. Never would've known things were going to take a turn so rapidly. Could be any one of us. And I'm one of the lucky ones.
Enjoy the moment now; the next is undetermined.
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I just spoke on BBC News about the removal of the period pants tax!
After a full day of being very unwell and holding ice in my hand to stop myself being sick on the nation’s televisions. You're welcome.
Start the year as you mean to go on.
@LoveYourPeriod1
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Boxing Day cry because this isn't how things were supposed to be.
Sometimes I feel I have to be a proper adult but I still feel 16 like the day I got sick.
I was hoping to avoid this feeling. But the festivities will be amazing and I know I'm really lucky to be here and alive.❤️
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I'm so grateful for my gorgeous little sister. I'm sorry the last few years haven't been great, but you never failed to make the hospital trips enjoyable.
This brain tumour could never defeat the Fenton sisters.
Happy birthday Tilly❤️
I love you so much. Thank you for being you.
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I AM A YOUNG AMBASSADOR FOR
@BrainTumourOrg
😭🥹🤩❤️
Honoured to be the first ever Welsh young ambassador, already taking brain tumours into the Senedd and promoting in the women’s health space.
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My dad wasn’t happy me being by myself today so I’m running errands with him.
LOOK AT THIS TREE. I’ve found my dream house this morning.
I’ve been sat staring at it for ages but pain meds have kicked in now so I feel more human.
I really hope I feel Christmassy soon❤️
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Migraine day 60 something now and this is the worst day I've had since the beginning. It's taken me ages just to pick up my phone today.
However my hair is washed and I'm documenting proof because I still have that.
Smiles all round please all those happy hormones x
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Sorry for silence. I’ve been very ill. I’ll explain soon.
It’s
#PartyDressDay
for
@goodgrieftrust
.
Tilly & I dancing around in prom dresses for fun, filling the limited days we thought we had together. Very few are as lucky as us. Life is such a gift.
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Given the occasion…you get my moon face.
Outstanding volunteer in youth work for my work at
@LoveYourPeriod1
and for girls rights in the health space.
Thank you to everyone who supports me everyday.❤️
#YouthWorkAwards23
Brain tumours suck - but I'm still winning.
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To end
#MigraineAwarenessWeek
I battled for years to be taken seriously. Being forced to believe I was hysterical & delusional. My pain was my own fault. That messed with me more than I’ll ever admit.
A new level of paralysing pain all over my body.
Migraine people I see you.
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Just realised that in 7 weeks time I'll be 22.
I'm alive to see 22.
What-🥲
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So this just happened…
Thank you so much
@chwaraeteg
. And my gorgeous
@LoveYourPeriod1
team.
Thrilled I went and didn’t let anything hold me back. Met some incredible Welsh women.
And I met the icon that is
@AndreaByrneTV
so night made❤️
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I’ve not slept in 41 hrs thinking about everything, esp upcoming big appointments. Even hearing people speak now is annoying & overwhelming.
I'm going to sit in silence & hope I fall asleep. Even my facial muscles are struggling.
Things will work out! They always do.
Night.❤️
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Brain tumour core walking around the capital city with a head patch.
It’s very Molly.
My hands are so swollen today they make my face swelling not hurt. Silver lining.
Dress shopping part 2. Let’s go.
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The
@BBCNews
call migraines a ‘minor’ illness.
I’ve had a week long migraine (as shown). Most days I couldn’t lift my head. As I wait on NHS lists, I cannot work & left education as they get rapidly worse at 21 years old.
I stand with
@DehennaDavison
this
#MigraineAwarenessWeek
.
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Did something stupid a few nights back.
I deleted most of my tweets.
Had a moment of needing to be private.
Will be sharing a little less detail but I'm sure I'll grow back into it.
It's hard to show any vulnerability.
Brain tumour’s fault. I'll blame him.
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Couldn’t sleep at all last night as all of a sudden my mouth was filled with sores and blisters. I didn't notice until I tried to sleep. Pain meds didn't touch it. Can barely move my mouth today.
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The most amazing night at
@NoahKahan
.
I managed to stay the whole night. Thanks to Dad and the amazing staff at
@UtilitaArenaCDF
.
I once never thought I'd be able to get to a concert again. And here we are.
Molly Vs. brain tumour.
I'm still winning.
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Haven't cried about my scan in 2 days??? Proud of me.
I saw a quote - face it ‘til you make it. Not fake, face. My day will still happen whether I stay in bed or go help myself.
Screaming crying phase is done now we are just sitting with it. Maybe. Watch it go back haha.
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Just feeling so weak, like my body is slowly breaking, but I refuse to complain so I’ve got nothing to say. Gotten up and done what needed but then just go back to bed and stare at the wall.
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This time last year illness meant I could barely string a sentence together.
Last night I stood up and spoke to a crowd in a public space for work.
One step forward.❤️
@LoveYourPeriod1
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I had a full day working today.
Phoned my mum on the way home quite emotional because I was so exhausted. And frustrated that I couldn’t do simple work.
I get home and mum had made my special oat cookies and my dad had a cup of tea ready for me.
I don’t deserve my parents 🥹😭
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You know the birthday cry?
That but 5x harder last night. 5 years with a brain tumour is big. Every emotion & thought.
I guess I'm just really scared.
Because this will never, ever be over.
And it all can change in a second.
But I'm so lucky. I'll process this & live my life.
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Needed some space.
My appointment was cancelled. The NHS is struggling I know. I feel guilty for being angry.
I locked myself in the dark bathroom trying to not be angry or upset.
This was my peace of mind for Xmas after last optic nerve photos showed swelling. I needed this.
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It’s
#YoungCarersActionDay
. My sister (left) cares for me full time. She’s 16. She doesn’t get paid, and she could choose not to, but everyday she shows up for me. I hate that I have to rely on her. But she deserves everyone to know how amazing she is.
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Tomorrow is the whole family Xmas! Since brain tumour it’s awks as that's how I'm seen - the sick one. I’m the only cousin not bringing a partner (out of 8 - I’ll be hanging with Jenny🦧). Everyone’s grown up & I'm still acting like a child.
Nervous is an understatement.
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I had a glimpse back to ‘normal life’ the past 2 weeks (minus the throwing up in Paddington station toilets ignore that) & I'm so grateful to feel like an actual human person again I could cry writing this.
We’re slowly, steadily getting Molly back.
Sorry brain tumour. Not today.
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Today’s meltdown (literally) was because I couldn’t get the paracetamol tablet out of the packet. My hands were so weak and my head hurt so much. Like my brain was expanding and ready to break my skull.
Sat on the kitchen floor and cried until dad got home and did it for me.
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I've decided my word for 2024 is change.
It’s the final year of this sh*t.
Having to go back to bed, House bound when sick & my skin now constantly bleeding is constant reminder that I'm “sick”.
Theres more I can do. No more being annoyed, time to proactively make life better.
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I stood up and said how uncomfortable I felt.
But last night we learnt that to make change you have to get comfortable with the uncomfortable.
Thank you to everyone who voted for me.
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In true brain tumour fashion, I'm entering 2024 with a green detox immunity tea.
2024 you were DETERMINED not to meet me but here I am. 🥂
#HappyNewYear
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Started this page 31.03.23, so it’s 1 year since I said I’d start living life after hiding away.
My best lesson:
You’re allowed to be angry, but you cannot let that anger diminish your quality of life.
My brain tumour will no longer rule my days. Soon. We’re working on it.
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Needed an outfit for a big event in March but given the sales thought it was a good idea to get now. My brother and I went to John Lewis and we found one straight away WITH NO TEARS.
Then grabbed iced lattes afterwards.
Very happy.
I can't wait to feel beautiful again.
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@leena129_linda
I have decreased white blood cells and like to take precautions for myself and those around me in hospital settings whilst I’m o active recovery, especially after having members of my family die in the covid lockdowns.
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If there's one thing I can do right, it's hot chocolate. We only have on Christmas Eve when we watch the Polar Express. My job to make for the whole family. Managed to make by myself with ease this year.❤️
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Tilly missed out on education looking after me. She was the only person I trusted to help me in the shower, lift me off the toilet and sort what I couldn’t.
Politicians are hopping on the ‘trend’ today saying they ‘support’ carers…
Act like it then.
#carersrightsday2023
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Today is
#wearachristmashatday
for
@braintumourrsch
!
16,000 people were diagnosed with a brain tumour in 2023.
Only 1900 (12%) will see 2028.
No one deserves to be told there's nothing that can be done.
We've worn our hats and donated. Will you do the same?
For a cure.
❤️
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Still can't believe this happened. I could cry. Half because I have a brain tumour and it feels more real now, and half because this community is the best ever and we've managed to do something to help. Thank you everyone🩷💛😭🧠
#LightUpTheUK
@braintumourrsch
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For those we've lost, for those going through, for those who will embark on this journey tomorrow and the days/weeks/months/years after.
A really crap club to be in.
But we're in it.
We won't stop shouting.
#BrainTumourAwarenessMonth
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18
256
Didn't sleep again last night but had a quick nap 7:30am-9am.
I've got limited use of my right arm still but had a good few hours and my dad took me and Jenny to do some art.
Friday is big appointment day so keeping busy so I don't think about it too much.
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3 years ago today
I was so weak my life revolved around my incontinence. I was embarrassed & ignored it.
This day I went to do filming for our St Davids Award win with a nappy on & that was it for the whole month.
We’ve really got to talk about this stuff more. That’s my aim.
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Hey.❤️
3 emergency issues in 3 weeks. Typical Molly. All fine, but feeling weak & fragile in every sense. I’ve still taken photos of what I’ve done to share what I’ve been up to but life was too full to even think about updating.
Thank you for DMs - I’ll try get through them.
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My first easter egg in 6 years.
A 2 year period in that I didn't eat chocolate at all.
Life is too short, have the easter chocolate today. Next Easter isn’t promised x
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Meetings all day with 15-minute gaps and every one of those gaps will be spent in bed.
I'm in so much pain with no reason, and I can't pinpoint the issue. I've been trying to not take pain killers but have now just so I can talk in these meetings as that's getting too much.
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How lucky are we to have an extra day of the year?
We GET to have it.
So many would’ve wanted to see another leap year. For so many this will be their last.
I’m super grateful to survive this one. The last was supposed to be my last. But here I am❤️
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This time last year was the final day of this massive secret of this brain tumour. I didn't leave the house, wasn't sleeping, eating, didn't talk to anyone but my immediate family.
31st March 2023 I shared my story online, now we have 7000 people and we are making noise🩷
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245
Went to Winter Wonderland with my best friend who I met in the school behaviour unit when I first got sick, and my dad came to watch me.
Loved the rides holding hands and screaming. Was nice to forget about everything - and have fun that I lost in my teen years in the hospital.
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@shitscaredmum
Please know that as much as this page is Laura’s journey, we all route for you too Nicola. I know it doesn’t change anything but almost 45000 people here because they love you all. In my daily prayers, always❤️
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Happy
#BeMoreLaura
Day❤️
So much love
@shitscaredmum
@GracieNuttall41
@MarkNuttall12
- thank you for all you do for my family and so many others across the world.
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I'm doing something cool and unexpected today!
Announcement soon.
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234
The time has come.
I'm not one for buying new clothes. But as my body changes so much now and where I actually can't wear pyjamas I have no choice.
3 events in the next month.
1 outfit needed.
Already hyper sensitive and crying at everything.
Let's do this.
Wish me luck.
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6
233
My worst migraine attack yet today. Couldn’t open my eyes & started having paralysing muscle spasms. Soon I was unable to move. For 4 hours I was stuck. Was 5pm when I was conscious enough to see the time. Had to stay in my mums bed.
Feel unwell but can function now. Was scary.
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The latest migraine relief.
My dad’s been giving me neck massages every night (he needs a medal) and now when my face is literally held up i feel much better.
We’re on migraine day 17. Maybe more I underestimated just in case.
My head is so heavy. Shouldn’t complain.
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My teeth are still crumbling and it’s no big deal I can get them fixed and I’m less concerned about the money but more the fact that I’m 21 and these are my only teeth for as long as I live. It’s so disheartening as I’ve tried so hard to care for them as best as possible.
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7
223
My skin is in so much pain I might peel it all off. I am reacting to E V E R Y T H I N G I need to seriously get a grip. So sensitive.
Jenny wanted to say hi.
Big day for brain tumours today. Well done to all in London dropping off the
@braintumourrsch
petition xxx
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9
219
An accident last night meant my foot is purple, black & unusable.
After an hour I’m going to throw up so I have a cold shower.
I get out & fall SMACK MY HEAD on the sink.
Sat awake because I felt more sick & saw stars.
I survived another day.
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Off to meet
@BrainTumourOrg
for some important discussions to improve patient care and outcomes in Wales!🏴❤️
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I'm not ready for normality to resume. Staying in delulu land a little longer. If I’m gonna be sick I’m doing it with Christmas magic.
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Little cringe but on Thursday I was photographed, interviewed, up on a huge screen - I felt ok.
Girl you did some cool stuff despite being so unwell & feeling soooo crap & insecure about how you’d changed. You're alive and you made it to the ceremony.
What a power move Mol.
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Showing off the brownies I made❤️
Struggling to stay awake so it's kept me going. Busy few days and the pain has hit. But it's been more than worth it.
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No shame in saying I've been sobbing for the last 30 minutes reading all your
#ShineALight
posts.
There's no time left. We HAVE to come together and back the change for better outcomes.
I devote as long as I'm lucky enough to live with this brain tumour to changing it all. ❤️
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11
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May be because I feel I've actually achieved something by getting Cardiff lit up, but I can't stop smiling.
I’m privileged to be alive seeing this. I hope the friends who didn't make it can see we are shouting so loud.
#braintumourssuck
#LightUpTheUK
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Daisy is fairly used to me needing help unwrapping Christmas presents the last few years. This year being able to myself she wasn't having any of it. She opened the ones I let her then carefully dropped the gift on my lap. How incredible it that?
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8
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Long week. Long few weeks. Absolutely exhausted. Pre sick Molly would be running the London Marathon today, but that'll have the wait for a few years I think! But that's okay.
Best of luck to everyone running!
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I’m a finalist for the Cura-H Awards in the Excellence in Social Media Health Advocacy Award category. 🥹🥹
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ALMOST 50,000! Please sign/share.
Asking the Gov to give more £ to brain tumour research as there’s very little rn.
And Wales needs to do more.
@Eluned_Morgan
Please take a second. You WILL save lives.
From one very scared girl x
@braintumourrsch
💛
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Decided to keep the hanger on my hat for convenience. Mother rolled her eyes as I walk downstairs ready for bed with my hat on.
Feel lucky haven’t taken a photo of my face since April 2022 as that’s when I started swelling. So I’m hiding as it’s awful but I wanted to show my hat.
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