Mat Edick
@mjedick
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Director, Center for Strategic Health Partnerships, MPHI & Midwest Genetics Network. Parent of a child w/ Down Syndrome. All tweets are my own opinion.
Michigan
Joined October 2015
Can we move away from the phrase “dumb it down” - why not call this translation. Patients, clinicians, researchers, etc all speak different languages - I don’t need a dumb version, just a version spoken in my language. #PCORI2018
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Such an easy way to spread holiday cheer to children & families facing complex care and rare conditions over the holidays. If you are able, check out the adorable wishlists below and help make the holidays a little more joyful for these families! Please retweet to your networks!
Winter is HERE and today is #WishListWednesday! With the holidays approaching, Gillette welcomes donations from either of our wishlists found at Target or on Amazon. Thank you in advance for your generosity! 1. Amazon: https://t.co/10OxRk4djE 2. Target: https://t.co/KdAb5fvxOI
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NCC is excited to celebrate Genetic Counselor Awareness Day! We want to thank all the genetic counselors who assist in our efforts to increase the utilization of genetic services for underserved populations. #GCChat #IAmAGeneticCounselor
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#GeneChat, look what will eventually be coming down the line!
As the public health system looks to expand newborn screening using genome sequencing, the needs of all newborns and families remain at the center of deliberations. Read our blog. https://t.co/yha1UbHJLY
#ICoNS22
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The CDC Genomics and Precision Health Weekly Update spotlights our November 14 webinar on family health history in medically underserved populations, a new blog post on preeclampsia and genomics, CDC information on hemophilia, and more https://t.co/y2bUFvvgov
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🔥final #PCORI2022 panel. Particularly appreciated @sinsipuede's right-on comments on addressing racist systems, centering community voice, & rejection of resilience- 'resilience doesn't protect from structural racism'.
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Who are the stakeholders that know and understand how to collect cost of health care utilization data…and how does a research team attract them to collaborate? Listening to experts from @RTI_Intl, @NPAF_tweets, @PAHumanServices, and @pcori at #PCORI2022
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As #PCORI2022 is winding down, I am left wondering if @PCORI’s methodology standards are sufficiently broad to handle the increasing complexity of addressing root causes of health inequities in #PCOR. What about evidences bases for CER? Thoughts??? #CSHPAtWork
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Maybe this is obvious,but it’s also profound. Speaker after speaker at #PCORI2022 is highlighting the importance of trust and relationships to improve health outcomes. Funders take note - this takes a long time with many intangible deliverables & we need room for this in budgets.
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Incredibly powerful storytelling from Ashley Valentine @SickCells. Appreciate her sharing her family's experience as well as the historical context & legacy of racism on #SickleCellDisease patients & families. #PCORI2022
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Individuals with #RareDisease face crushing economic burden. For individuals with #SickleCellDisease, the burden is multiplied by systematic racial inequities faced by black and brown people. #PCORI2022. Listening to Ashley Valentine @SickCells at #PCORI2022.
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APHL celebrates 2022 Newborn Screening Award winners -- congrats to all recipients! All recipients and their awards are listed here: https://t.co/eFdQL3bljH
#APHLNBS
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#pcori2022 Advice to health researchers seeking to engage underserved communities: Building trust is the step one in building relationships between community and researchers. Trust is built when researchers show deference to community voices.
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@mjedick @CSHPatWork @PCORI @Region4Genetics @MPHIhealth @Hassanah2017 @Poorcountryboy2 @HighDesertGems @mike_mitt ARCC & partners developed an Anti-Racist Reflective Practice Tool for Community-Academic Researchers & Partnerships: https://t.co/VcM5xLqeRD It would be great to see if there are any opportunities for collaboration on this related work... #PCORI2022
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#PCORI2022 talking about the transition from community-engaged to community-partnered to community-LED research prioritization and how this will impact our systems of power. It's such an exciting time to be a research trainee!
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Join health experts from @UIHealth and @MAHECwnc as they discuss challenges and successful strategies for the expansion and diversification of the maternal healthcare workforce to address the #maternalhealth crisis. https://t.co/6R7nmXPzKv
#PCORI2022
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“Our lives have not been changed by what you have learned from us” This is why @CSHPatWork engages stakeholders in all aspects of our work from conception through sunset. Those most affected by our work have power to lead and influence it. Listening to @JenBrownARCC #PCORI2022
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Excited to hear from @JenBrownARCC, @MelvinRT23, and Jennifer Lee speaking about #HealthEquity and how PCORI funded work can address root causes of health inequity - #PrimaryPrevention
Exactly what does it mean to “do” health equity work? I would argue that in the US almost all work you do could be contributing to advancing health equity. But advance only happen by intentional action. There is no room for passive health equity work. #PCORI2022
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Exactly what does it mean to “do” health equity work? I would argue that in the US almost all work you do could be contributing to advancing health equity. But advance only happen by intentional action. There is no room for passive health equity work. #PCORI2022
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