@CSHPatWork @GeorgesBenjami7 @PublicHealth @mjedick @Region4Genetics Yes yes yes #PublicHealth represented at #pcori2021

@CSHPatWork is developing a workshop with @PCORI funding for researches to practice building trusting relationships with communities that historically don’t trust research and medical enterprises. Without relationships there is no trust. Listening to KBibbinsDomingo at #PCORI2022

Excited for the kickoff of #pcori2021. I’ll be tweeting the next few days from my center @CSHPatWork. Please follow me there to keep on on the highlights from your his year’s meeting.

From MPHI center @CSHPatWork @Region4Genetics: Meet Dr. Jessica Scott Schwoerer, a member of the Midwest Genetics Network Advisory Board. As a part of #MGN, she's contributed to projects and improved access to care for her own patients. We're happy to have you on board, Jess!

I’m excited to represent @CSHPatWork today at the @PCORI #RareDisease Advisory Panel meeting. It’s an honor to serve as chair of this panel that provides feedback to PCORI about research that meets the needs of the rare disease community. #CSHPAtWork

Rare diseases aren’t rare when you realize how many are affected. Our work with RaRE will explore shared challenges in rare diseases to help improve outcomes. #CSHPatWork

Looking forward to sharing progress on @CSHPatWork @CDCgov funded PACE-D2A project at #MIACE2022. We are building critical infrastructure for ACE prevention in MI

As #PCORI2022 is winding down, I am left wondering if @PCORI’s methodology standards are sufficiently broad to handle the increasing complexity of addressing root causes of health inequities in #PCOR. What about evidences bases for CER? Thoughts??? #CSHPAtWork

From @CSHPatWork: Genetic counseling can give you information on how genetic conditions might affect you or your family. It can also be helpful in pregnancy planning, during pregnancy, when caring for children, and for managing your own health. Learn more: https://t.co/jizawHw0ML

How can we help unify the goals a family and their providers have for their loved one with a rare disorder? What patient-centered outcomes are important to all?#CSHPatWork

@DoctorWisdomMD asked at #MIACE2022 - have you engaged with @ymca yet affect change in communities. @CSHPatWork hasn’t, but thanks to this enlightening panel discussion we will be seeking that partnership!

“Our lives have not been changed by what you have learned from us” This is why @CSHPatWork engages stakeholders in all aspects of our work from conception through sunset. Those most affected by our work have power to lead and influence it. Listening to @JenBrownARCC #PCORI2022

MPHI's Center for Strategic Health Partnerships (@CSHPatWork) is hosting a Facebook Live on Monday, April 11, from 10:30-11:00 AM ET. Join in for an important dialogue focused on the role of #PublicHealth in breast cancer impact, awareness, and prevention. https://t.co/foIitrfiGm

From MPHI @CSHPatWork @Region4Genetics: The #MGN team is excited to share our Improving Care for Children with Developmental Disabilities and Dysmorphic Features Completion Report. View the report: https://t.co/PPxY7KifgT.

MPHI's @CSHPatWork through its @HRSAgov-funded Midwest Genetics Network project is working to understand the needs of Amish and Mennonite communities in terms of accessing and utilizing genetics services. Click here to read more: https://t.co/uzdtD2z955

Did you miss MPHI’s Center for Strategic Health Partnerships (@CSHPatwork) Mathew J. Edick, PhD speaking with @WILXTV about the $2.4 million his team was awarded for preventing Adverse Childhood Experiences (ACEs). Follow the link for the replay: https://t.co/K26PurRcYd

Participating in a 2 day event to discuss RaRE Disease in order to improve research! #CSHPatWork

@Region4Genetics A6. A definitive answer will not be found in this #RaRETweetChat! Stakeholders should be asked if, when, and what they want to engage in. And they should be asked everytime – yes or no today does not mean yes or no tomorrow. #CSHPatWork #RaRETweetChat

@JenBrownARCC @EvidenceMatters @mjedick @CSHPatWork @Region4Genetics @MiACEInitiative @PCORI @PublicNarrative Developing public narrative is very important to the advancement of effective communication and the dissemination of science results. Thank you ! @pcori #PCORI2022

@Region4Genetics A7. Payers are villainized, but for engagement this is a mistake. Who knows better the level of evidence required for a payer to cover a treatment than payers? With this perspective, outcome measures critical to payers can be built in from the start. #CSHPatWork #RaRETweetChat