Mari Carmen Portillo
@mcportillov
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Professor of Long Term Conditions @UoSouthampton. Proud to be a nurse. #multiple long therm conditions #Parkinson #multisector. All views of my own
Inglaterra, Reino Unido
Joined March 2013
“We are very clear that research inclusion is essential—not political. If your research isn’t representative, it’s not going to improve outcomes across our population… This isn’t just moral; it’s scientific and economic.” - Our CEO @LucyChappell2 on the importance of inclusion
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So pleased to share and link our applied research @arc_wessex in the @LongUos group with @macmillancancer and support people living with #cancer and #LTC
Exciting work happening @macmillancancer on how people with cancer and long term conditions can be supported and I am part of the team. We had a fab #MacMeets all staff online session with fab guest speaker @mcportillov and person with lived experience to bring it to life.
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A new report has outlined an urgent need to address the declining number of clinical researchers in the UK. Professors @LucyChappell2 and @WaljitD alongside other key partners contributed to the report and a set of key recommendations to tackle the issue at a national level.
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#integratedcare for people living with neurological conditions is out! A collaboration with @mcportillov
@DrDoritKunkel and C Kipps @arc_wessex @unisouthampton @UHSFTresearch @LongUos
https://t.co/JizQBpu4wK
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Amen
Imposter feelings are normal. Most people doubt themselves sometime. Chart from: https://t.co/4LvqW6sfCJ
#PhDchat #ECRchat #phDforum #impostersyndrome
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Co-Action. Our first face2face meeting planning how to develop a personalised and inclusive intervention to support people with #mltc & #carers and improve wellbeing. @arc_wessex @NIHRresearch @LongUos @UniofOxford @UniversityManch @PlymUni #ppi @HIOW_ICS @unisouthampton
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Need for a person centred leadership to nurture individual talents! #transformationalleadership #support #succesion
The language we use as leaders shapes workplace culture. It plays a critical role in psychological safety. Our words (& the way we communicate) can encourage the experimentation & risk-taking we want our teams to demonstrate for innovation & improvement. It can also stifle
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I am running an online group to discuss the preliminary results from the Integrate-HD project. What does good care look like in Huntington's? Are you living with #huntingtonsdisease in England? Can you join 24th OR 25th October from 1-4pm? Join us online for a lively chat!
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La importancia del acompañamiento al final de la vida by @falcaide
Cuando alguien está a punto de fallecer: «Siéntate a su lado, tómale la mano y dile gracias»... 🙏
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International Parkinson’s day, looking for better living with #Parkinson and supporting people to access more resources and support in the community. #carer @ParkinsonsEU @ParkinsonsEN @ParkinsonsUK #optimpark @LongUos
En el Día Mundial del Parkinson, recordamos la importancia de contar con recursos comunitarios, que es el ámbito en el que las personas con enfermedad de Parkinson y sus familiares gestionan su cuidado. #OPTIMPARK, @MNavarta @mcportillov @palmar_ana
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A research call well worth considering nursing colleagues👇
Exciting new @NIHRresearch HTA commissioned call for research to evaluate the clinical and cost-effectiveness of nurse-led interventions. Fantastic to see NIHR support for this and really looking to see what fantastic ideas get funded https://t.co/OwFs8Vlkg1
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Personalised Care is everybody's business! Come and learn more about how you can make a greater impact by personalising your care! Book your space now! 🐝🗣️📋 https://t.co/ayZV9WHzeu
#PersonalisedCare #WASP2024 #CPD
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Achieving impact from doctoral research!!! #huntingtonsdisease #phdlife #researchimpact @arc_wessex @LongUos @HSciences @unisouthampton
Well and that was me with a lovely #PPI contributor LIVE on @BBCShropshire talking about #huntingtonsdisease If you missed it https://t.co/EtV0kQ7utD 👂from min11:32 We hope it helps raise #huntingtonsawareness but also that families affected in @ShropCouncil don't feel alone💜💙
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Time to introduce you to another member of Team WASP 🐝 Mari Carmen (@mcportillov) is a Prof of Long-term Conditions @unisouthampton, & Theme Lead for LTCs @arc_wessex. MC supports WASP with research activities, & ensures we are tied into other, relevant work locally.
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You know when you have wonderful news you have all been desperate to tell people? Well... https://t.co/rf1uTfUeUQ
@AlisonProf @DrKindaIbrahim @CathyJBowen @Dr2NisreenAlwan @mjboniface @ora_dall @workforcesoton @JackieLearning @mcportillov @HIWessex @PennyMordaunt
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Person‐centred integrated care for people living with Parkinson's, Huntington's and Multiple Sclerosis: A systematic review - Bartolomeu Pires - 2024 - Health Expectations - Wiley Online Library https://t.co/VfjJmfFwKn
@BartolomeuPires
onlinelibrary.wiley.com
Introduction People living with long-term neurological conditions (LTNCs) have complex needs that demand intensive care coordination between sectors. This review aimed to establish if integrated...
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Committed people from different disciplines and sectors developing better and more integrated and personalised care for people with #longtermconditions and #families
Beautiful day @unisouthampton @HSciences to celebrate all our achievements this year and start planning 2024. Wishing everyone a Merry Christmas and a wonderful break. Come back recharged for more fun, thinking, impact, and all things #research #LTC #comorbidities @mcportillov
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I may need to lie-down for a week, but my November deadlines list is ✅✅✅✅✅! Lots to be (re)done, but #phdlife need to be about celebrating milestones, instead of waiting for positive outcomes! Only took me 4 years to realise that 😅 thank you all who support my research 🙏
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En la foto, Laura Rubio presenta la evaluación de una intervención comunitaria para mejorar el proceso de convivencia con el Parkinson. @MNavarta @palmar_ana @mcportillov
📰 "Valladolid se convierte en capital mundial de los cuidados y la investigación en salud con el reto de incorporar la ciencia a la clínica", vía @larazon_es 👇👇 https://t.co/jbdQNhe9gc
#inves23 #xciics
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