Explore tweets tagged as #limbgirdle
Prospective Natural History Study in 24 Adult Patients With LGMDR12 Over 2 Years of Follow-up: Quantitative MRI and Clinical Outcome Measures https://t.co/42ie5v5Ot2
#LimbGirdle #NeuroTwitter
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Listen to Nicholas E. Johnson, MD, MSci, give a brief talk in honor of limb-girdle muscular dystrophy awareness day. #LGMDawareness #LgmdDay2022 #limbgirdle #musculardystrophy
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‘I have limbgirdle muscular dystrophy, but I made the decision to kick butt in my career regardless. I still find joy in my every day life through creating and connecting with others through my art!’ Here is Kannchy modeling the Izzy Wheels she designed herself 🙏✨
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Listen to Nicholas E. Johnson, MD, MSci, give a brief talk on limb-girdle muscular dystrophy and the future of clinical trials in this field of research. #LGMDawareness #LgmdDay2022 #limbgirdle #musculardystrophy
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Engaging talk from Dr Isabelle Richard from @GenethonFr who is speaking to our #LGMD group this morning about gene therapy. Great to see a huge turnout to hear about positive new developments in research. #LimbGirdle #GeneTherapy #mrccnmd18
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Thank you, @Sarepta Therapeutics! 💚 #InternationalLGMDConference #Speak #TheSpeakFoundation #LGMD #LimbGirdle #LimbGirdleMuscularDystrophy #Sarepta #SareptaTherapeutics
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For Her Empire Podcast Episode 4: Living With Muscular Dystrophy with Keisha Greaves. Keisha answers the question "If muscular dystrophy is genetic, does that mean people with MD (Muscular Dystrophy) could pass it to there child, or is there a way to "manage" it?" #LimbGirdle
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Bonus key point from the "The #LimbGirdle Muscular Dystrophies" article by Dr. Matthew P. Wicklund. The full article is available to subscribers at https://t.co/Crtc1FN55T.
#MuscularDystrophy #neuromuscular #neurology
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Today we’re wearing lime green and joining the global #limbgirdle community in raising awareness of this rare neuromuscular disease. #LgmdDay2022 #LGMD #TogetherWeAreStronger
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Limb-Girdle Muscular Dystrophies are a heterogeneous group of disorders leading to progressive muscle wastage & weakness, predominantly characterized by limb-girdle weakness. It is caused by mutations in 32 genes causing LGMD. #LimbGirdle #MuscularDystrophy #PreciseDiagnosis
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Katherine discusses how she meets the emotional challenges of life with #limbgirdle #musculardystrophy. Read her story: https://t.co/IAKgkQIFx6
#LGMDAwareness #LGMD2D
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Last year, the FDA cleared a drug application for Asklepios BioPharmaceutical’s LION-101, an investigational gene therapy for the treatment of Limb-Girdle Muscular Dystrophy Type 2I/R9. #LgmdDay2022 #limbgirdle #musculardystrophy Read more here: https://t.co/xhanKDTSR5
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Another fantastic @parentprojectmd annual conference is in the books! We value meeting with the patient community and neuromuscular experts who share the same passion for advancing research for people with #duchenne, #becker and #limbgirdle #musculardystrophies.
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Today we presented results from our ongoing study of SRP-9003, our investigational #genetherapy for the treatment of #limbgirdle #musculardystrophy Type 2E, at @MDAorg’s Clinical Conference. Learn more: https://t.co/sf6TPRgvNN
#MDA2021 #NeuroTwitter #Neurology
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Dr. LONGO now talks about #nutritional facts in #LimbGirdle #MuscularDystrophy. #Neuromuscular Days 2018 in #Venice Lido. #NMDays18 @scamillove
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#RareDisease Meet the Member Special! Please meet Dr Davy Vanhoutte @davy_vanhoutte @CincyChildrens! A #cardiovascular expert in Dr Jeff Molkentin’s lab, he studies #thrombospondins in dystrophic diseases like #MuscularDystrophy @MDAorg, #Duchenne @CureDuchenne, and #LimbGirdle
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