Muscular Dystrophy Association
@MDAorg
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MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
Nationwide
Joined June 2009
🚨 Registration is now OPEN for the 2026 #MDAconference – March 8-11, 2026, in Orlando, FL! Join the global leaders in neuromuscular research, care & advocacy. 🧬 Submit your abstract.🎟️ Early bird ends Dec 31.🔗 Register:
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Congratulations @MikeBushKSDK for 40 years @KSDKnews! We can’t wait to celebrate with you and MDA families in #StLouis on August 31 for the Show of Strength to benefit MDA families! You are a national treasure for all of us! 💙💛.
It's a special day for 5 On Your Side's Mike Bush. Today, he celebrates his 40th year here at KSDK! Mike has made it his passion to highlight people making a difference in our community and he's been the champion for the local MDA Telethon for nearly 40 years.
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RT @IAFFPresident: From 25+ FDA-approved therapies to expert care for 70,000+ people each year, IAFF members are creating real change with….
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Students with neuromuscular diseases deserve schools that support their needs. [TAG] @MDA_Advocacy works to strengthen IEPs, improve access & fight for inclusive policies. ➡️ Learn more: . #MDAadvocacy #DisabilityRights #EducationPolicy
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We’ll cover: . ➡️ What’s in the final bill . ➡️ What it means for Medicaid . ➡️ What comes next for our community. Register:
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We are proud of what MDA advocates have accomplished over the past six months. We know many in our community are feeling anxious or uncertain about what comes next. Join us July 15 @ 7PM ET for a special MDA Advocacy Institute: Medicaid and the Path Forward.
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Families affected by #Duchenne #MuscularDystrophy (DMD) may be eligible for @REGENXBIO’s Phase 3 trial of RGX-202, an investigational gene therapy delivering a functional dystrophin gene. Read the full study alert: . #GeneTherapy #ClinicalTrials #MDA75
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RT @MDA_Advocacy: Today, the U.S. Senate passed a bill making devastating cuts to Medicaid & other health programs that the #neuromuscular….
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🚨 NEW: MDA + @CureFA_org are co-funding a $300K research grant to study cardiac fibrosis in Friedreich’s ataxia (FA), a key cause of heart failure in FA. This study could lead to life-changing therapies. 🔗 . #FriedreichsAtaxia #CardiacResearch
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RT @MDA_Advocacy: Today, @MDAorg & 41 #NMD orgs. sent a letter to U.S. Senate leadership rejecting cuts to #Medicaid & affordable health in….
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If you have questions or need support, please consult with your physician and contact the MDA Resource Center at 1-833-ASK-MDA1(1-833-275-6321) .or ResourceCenter@mdausa.org. #Duchenne #MuscularDystrophy #GeneTherapy.
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We’re saddened by the tragic loss in the Duchenne community shared in Sarepta’s Elevidys update. MDA supports the pause in use for non-ambulatory patients as safety is reviewed. Our hearts are with the family.
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RT @REGENXBIO: Today we announced new positive interim functional data from our Phase I/II AFFINITY DUCHENNE trial of RGX-202. Learn more:….
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