Today we celebrate our fundraisers of 2025, you have all been brilliant sharing photos and details of your fundraising. So much fun was had. We thank you all for raising vital funds to help us change the lives of those with NF2 through our research. #endNF2 #NF2awareness #NF2SWN

#endNF2 #NF2awareness #NF2SWN #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2

This is a picture of all the nerves in your body, quite spooky? Imagine a disorder where tumours could grow on any of those nerves in the picture Thats NF2! - just let that sink in for a minute #rardiseaseday #endNF2 #NF2awareness #neurofibromatosistype2 #NF2SWN #NF2support #nf2

Another infographic to start the knowledge this week. Thats NF2, all those tumour types #endNF2 #NF2awareness #neurofibromatosistype2 #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #NF2SWN

The #NF2 #Schwannomatosis SOA meeting is officially over, but it has been an incredible experience and I’m very grateful to have been able to connect with these amazing researchers! Very exciting times for the #NF2SWN world!

Its Friday Facts again. Each friday we will be issuing facts about NF2..... want to join in then send us your fact! #endNF2 #NF2awareness #neurofibromatosistype2 #NF2SWN #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2charity #nf2cure #nf2treatment #nf2gene

Welcome to Sign Language Awareness week #SLW2024 with a message from Charity CEO, Clare Goddard. We'll be sharing posts from other organisations this week & we're hoping to get a fingerspelling video to you! #SignLanguageWeek #BSL #endNF2 #NF2awareness #NF2SWN #NF2support #nf2

Make sure you dont miss all the posts in February as we bring back our campaign "How does NF2 Affect me" and facts about rare diseases! #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2charity #nf2cure #NF2SWN

Midweek knowledge!! Did you know you schwannoma can grow on any one of these nerves, We usually talk about the vestibular nerve but they can grow on any nerve and cause proiblems, #endNF2 #NF2awareness #neurofibromatosistype2 #NF2SWN #NF2support #nf2 #nf2family #nf2warrior

Meet the individuals living with NF2. A rare disorder affecting around 1 in 35000 people across the world. Today we meet Hannah, her NF2 journey started aged 14. Hannah has suffered severe, life changing side effects from Avastin infusions. #endNF2 #NF2awareness #NF2SWN

Today we see the return of our Friday Facts series. Each friday we will be issuing facts about NF2..... want to join in then send us your fact! #endNF2 #NF2awareness #neurofibromatosistype2 #NF2SWN #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #nf2charity #nf2cure

Continuing our midweek knowledge today, All about eye issues and we are at serious risk of developing several issues. Do have a read Photo credit NF2 Information & Services #endNF2 #NF2awareness #neurofibromatosistype2 #NF2support #nf2 #nf2family #nf2warrior #LetstalkNF2 #NF2SWN

Today we celebrate all our volunteers & supporters and thank them for everything they do or have done this year. We are a very small charity and none of us get paid but we fight NF2 with a passion with the aim of a better future for all of us. #endNF2 #NF2awareness #NF2SWN #NF2

Every single person that talks about NF2 helps to raise awareness. Your story not only raises awareness but helps others on their journey too. RAISE YOUR VOICE, TELL YOUR STORY & RAISE AWARENESS #endNF2 #NF2awareness #neurofibromatosistype2 #NF2SWN #NF2support #nf2 #nf2family

AVAILABLE TO OXFORD NF2 PATIENTS ONLY NF2 related Schwannomatosis support & Information Day run by the Oxford NF2 Clinic. Location: Leonardo Hotel Oxford Date: 10th may 2025 10am to 4pm Come and visit our stand, hear all about our research. #NF2 #ENDNF2 #NF2SWN #nf2awareness

Want do we do with your donations? EVERY penny we receive goes towards NF2 research. We are a non-profit patient led charity, entirely volunteers, who are patients, family, friends, or carers. Everyone has lived experience of NF2 No staff costs/premises costs #endNF2 #NF2 #NF2SWN

NF2 week Over the next few days, Nerve Tumours UK will celebrate the #NF2Community. Guest blogger Joanne Ward will feature, along with relevant information & stories to encourage people to be #NF2Aware. #NF2 #NF2SWN #NFAwareness #NFSupport #NFWarrior

We are starting midweek knowledge, we will share a posts about NF2 and, how it can affect us. There were so many possible mutations, so much variability with NF2. Thats why @NF2BioSolutions are exploring many different therapies! #endNF2 #NF2awareness #NF2SWN

Midweek knowledge! Learn about fertility issues caused by treatments for NF2-SWN. We have a 50% chance of passing NF2 on (can be less if you are mosaic). Seek advise from professionals and your clinic Photo credit @NF2_IS #endNF2 #NF2awareness #NF2 #NF2SWN

What an amazing experience! I was proud to present our work on the #vestibularschwannoma #tumourmicroenvironment funded by @nf2biosolution1 at the #NF2stateoftheart conference in Los Angeles. Me and @AdamPJones98 even snapped a pic at the Hollywood sign afterwards! #NF2 #NF2SWN