A Bendy Perspective on #Hypermobility and Injury - an old blog about how I view my frequent injuries. Reading it last night helped me, so I thought I'd share it again in case anyone else finds it useful too. #HMSAware https://t.co/cTBi3NZ4nd

It's #HMSAware week with @HMSAcharity. I wish I'd known from the start that joint supports can help for risky activities/injury recovery, but overuse can weaken muscles. It's a balancing act - not an either/or scenario. See https://t.co/S5Mlosu1DP for our #hypermobility products

It's #HMSAware week! hEDS and HSD (previously JHS/BJHS) are the most common HMSs. Both can have a huge impact on daily life. Finding the right way to get/ stay strong is vital for both - so visit @HMSAcharity for tips on getting #HMSActive! (Cards from https://t.co/xl8SzoNMUD )

#RareDiseaseDay Add them up and rare diseases are everywhere. Here's one of our rarest, but even our most typical member will recognise some of her everyday frustrations. We all win when we connect the dots and collaborate. #HMSAware https://t.co/YGPBuYikaS

This week of #HMSAware, we raise awareness of the broader 'umbrella' of hypermobility syndromes. Some HDCTs are rare, but symptomatic hypermobility is not! There may be no cure, but there is almost always something that can be done to help....

Tonight's Professional Masterclass sees @JBOccyTherapy (Independent Occupational Therapist) focus on helping clients build a self-management toolkit and cover key pacing and fatigue management strategies, and look at therapeutic relationships and patient narratives #HMSAware

Symptoms of #hypermobility are extremely variable. Fatigue, concentration levels, or even hormone levels can be the difference between either completing a task safely or the attempt causing injury or dislocation. #EDS #EDSAwareness #HMSAware Book from https://t.co/S5Mlosu1DP

Hypermobility doesn't always mean 'party tricks'. It can be part of complex conditions causing pain, fatigue, dislocations, digestive issues, heart issues and more. #HSD is one of those conditions - and it is very common. #HMSAware Card from: https://t.co/vpxYix8m2D

With several pain types present in each of us, no-one's pain looks exactly like another's. Sharing tips does provide a tool box full of things to try when you're struggling, though. What are the best pain tips you've been given over the years, and by whom? #HMSAware

In 2019, our fourth #HMSAware campaign was centered on the tricky issue of staying #HMSActive with hypermobility. We're frequently asked about exercises for full-on flop/flare mode, so our Exercise & Rehab adviser Catherine put the following video series. https://t.co/u76sGTDVKG

As #HMSAware week draws to a close, we have rounded up the week with this article. #TeamHMSA may be slow to respond for a few days as the awareness week is so busy, we need a rest and recoup. Thank you for understanding and helping raise awareness! https://t.co/UafL8uhohz

At https://t.co/nEEuGSbEGe we spend the week of #RareDiseaseDay raising awareness of symptomatic hypermobility. The spider tool captures how each person is impacted by the systemic effects (rare or not), and MSK is just the tip of the iceberg. #HMSAware https:…

T-5mins till Kim introduces Jeannie Di Bon kicking-off our Professionals Masterclass series. Who's your least obvious health care provider? GP, PT, and so on are the usual Pros involved in supporting people to self-manage... Who's crucial to your care, but less obvious? #HMSAware

Splints and braces are often vilified - they lead to muscle loss. This is a valid concern. But used well they can minimise injury and enable strengthening. #hypermobility #JHS #EDS #HSD #hEDS #EDSAwarenessMonth #HMSAware Leaflet from https://t.co/PX1Xt8lNbV

Second leg of the hypermobility spider, is Pain. This is not (as you might think) our most frequent complaint. Fatigue comes top. They make a bad team, so it's vital to tackle both. Pacing is key to untangling them. Tips on how to begin here https://t.co/adjuKx0D6q #HMSAware

Many people associate #Marfan syndrome with heart issues, but for some people living with it, the joint related issues can have a bigger impact on daily life and yet be overlooked by medical professionals. Are you #HMSAware? #GP #Rheumatology Card from https://t.co/wRPXmDq15Y

#HMSAware ❣️🌟🌈

Don't forget, our exercise and rehab advisor Catherine recorded some fab videos for us for last years #HMSAware. These are very relevant now as they are things you can do at home! There's a great range of exercises from laying down to standing https://t.co/m2duebwunO #lockdown

A great start to this years #HMSAware, with our HMSA Professionals masterclass yesterday evening. Tonight's presentation is from Jeannie Di Bon - a movement therapist specialising in HMS. You can catch up with yesterday & join us for the rest here https://t.co/J2OBmbSP7t

#HolterTape Day. It’s been a while... Suggestions (needn’t all be sensible) of activities to perform while all hooked up welcome! #Cardiology #Tachycardia #HMSAware