hypermobility.org
@HMSACharity
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Supporting people with connective tissue disorders or hypermobility related health problems, including but not limited to Ehlers-Danlos, Marfan & Stickler etc.
UK based, virtually global :)
Joined March 2011
Chronic illness creates a double bind most people never notice. The more private you are about your symptoms, the less people believe you. The more you share, the more you’re judged for talking about it. There’s no winning.
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https://t.co/YFyIWtil6Q To get these directly to your inbox, click through to the website and enter your preferred e-mail address in the box at the bottom right hand corner of every page.
hypermobility.org
Ask the OT with expert Occupational Therapist, Jo Southall 19th February at 7pm (FREE to all, members and non-members) Returning to our usual, year-round schedule of solution-focused, holistic...
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Mini e-news out now with links to info about, and registration for, sessions over the next few days. Yet more will be added to the website over the next few days, and a longer bulletin with more information about those and our other activities will follow. Link in thread
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📣 FREE clinical education event! Navigating Craniocervical Instability (CCI) in Hypermobile Patients 🗓 28 Jan & 11 Feb 2026 | 19:00–20:30 GMT 💻 Online 2‑part er Free to attend For physios, GPs, OTs, rheumatology, neurosurgery & more. 👉 Register (free): https://t.co/cEZ9pge3G3
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Que levante la mano (si el #ehlersdanlos os deja) quienes prueban quinientos colchones y cuatrocientos sofás antes de decirse a comprarlo, porque tu espalda, cervicales, cadera, hombros... son muy suyos por culpa del colageno mutado
What kind of mattress works for a hypermobile body? No simple answer, but we ask now and then because tech and trends evolve. Memory foam, hybrid, futon, smart-bed, or a stack of layers like the princess & the pea? Share your wins, fails, and top tips. #BendyBeds #Hypermobility
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Ask the Experts replay: https://t.co/OTUSQwFg23 & we’re wrapped for 2025! Memberships are automated if you want to join or gift one. We’re back Mon 5 Jan with MellowMonday; Living Well starts 10 Jan.. Solstice Greetings, Merry Christmas, Happy Hannukah & Hogmanay, or 'Restival'
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Jo and Kim run our final session of 2025 tonight at 7pm GMT ✨Ask the Experts Christmas Special✨ Festive Q&A with Jo Southall (OT) and special guest Kim Clayden (Psychotherapist). 🎁 Free tickets ▶️Busy? Register for replay link. 👉 Register: https://t.co/vMjzUTYSKw
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🎄 Feeling overwhelmed this festive season? Join HMSA’s Ask the Experts: Christmas Special with OT Jo Southall & psychotherapist Kim Clayden. 🗓️ 18 Dec | ⏰ 19:00 GMT | 📍 Online 🎥 Live Q&A for patients via Zoom – no app needed! 🔗 https://t.co/cBiwlRYowY
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This is so vitally important it made me tear up this evening.
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💜 New blog: Celebrating the launch of the Integral Movement Method (IMM) by @jdibon! A fresh approach to hypermobility management through gentle, accessible movement. 🔗 Replay and exclusive discount code: https://t.co/IgqusRYwgi
#Hypermobility #IMM #Accessibility #JeannieDiBon
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1/2 📚New UK study into #PoTS, #AutonomicDysfunction and #EDS. 'Joint Hypermobility: An Under-Recognised Cause of Palpitations, Dizziness, and Syncope in Young Females' https://t.co/1QoY5vTZBr This study emphasises that JH syndromes are a common cause of palpitations...
mdpi.com
Background: Symptoms of dizziness, syncope, and palpitations are common presentations in outpatient and emergency care, frequently attributed to stress and anxiety when conventional neurological and...
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The first of our winter 'Ask the OT' sessions & Jo is joined by Joy Mason, of Mast Cell Action. Please note: in the UK clocks went back since last month! Session is at 7:00 GMT/UST on Thursday the 21st of November. Register here: https://t.co/2aXMGydcMa... for live/replay link.
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🚨 Overwhelmed by hypermobility referrals? GPs in the UK are turning to The HMSA's Quick Reference Guide, an essential resource devised by Philip Bull & Kim Clayden in collaboration with the HMSA. Clear. Practical. Game-changing. https://t.co/ROdXJpU8DL
#Hypermobility #GPtools
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Trustees’ Week is a time for us to celebrate the achievements of nearly one million trustees in the UK. Thank you for the time, commitment, and effort you bring to help your charities thrive. You can find out more about our trustees here: https://t.co/E4dL1hZ9jW
#TrusteesWeek
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Do you know someone who looks great in Red? 🎅 Run, jog or walk through London dressed as Santa, all in aid of the HMSA! 📅 2nd–4th Dec | 🕖 7PM | 📍 Paternoster Sq 🎽 Santa suits for adults provided! 💜 Support hypermobility awareness 🔗 Sign up: https://t.co/x7VdmBGm2y
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New study alert! 📢 IMM = gentle movement designed for hypermobility. Participants with hEDS/HSD felt safer, stronger, and more connected. Read the blog via HMSA: 🔗 https://t.co/MPjyhg624q
#Hypermobility #EDS #HSD #IMM #ZebraClub #HMSA #PoTSUK
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Neurologist checking his chart: That can't be true, only lazy, deconditioned people get POTS.
Kristaps Porzingis dealt with ‘POTS’ last postseason, per @FredKatz. “POTS, an autonomic condition that can dramatically increase a patients heart rate when standing up instead of spread horizontal… In his worst moments Porzingis’ heart rate could stabilize while laying down,
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#LivingWithPoTS This will resonate with many of you. It is so important to remember it's the little things that count💜 #PoTSAwarenessMonth #PoTS
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DWP research: 41% of health-related benefit claimants are on an NHS wait list for treatment. Of those out of work, 50% say their job prospects hinge on getting that care. This vicious cycle as disabilty gets cemented by lack of care but psychologised as a willpower problem.
@Shrink_at_Large I'd love to know the stats on people claiming disability benefits because they're waiting for treatment. This must be a huge number, and with waits of over 2 years for many. Especially for mental health support. The best way to reduce disability benefits is improving the NHS
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Delighted to be hosted by @HMSACharity for this article about research into movement. https://t.co/rxG5TAGWuC
hypermobility.org
By Jeannie Di Bon, Movement Therapist and Founder of The Zebra Club, and Catherine Nation, MS, PhD(HMSA note: We are delighted to share this information from our great friend Jeannie Di Bon. Watch...
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