Explore tweets tagged as #CompCure
GloPAKH is happy to announce its newest member: CompCure! CompCure is a Danish not-for-profit association committed to improve the long-term outcome for patients through early diagnoses and improved treatment guidelines. Learn more: https://t.co/IAJVFpBykN
0
0
1
Today is #C3GAwarenessDay! #DYK? #C3G is a #RareKidneyDisease caused by the uncontrolled activation of the body's complement system. Learn more from CompCure: https://t.co/KMK0jph8DK
0
0
0
Patiententag 2025, #aHUS & C3G/#MPGN 28 – 30 November 2025: Patiententag in Heidelberg ein! Es wird ein Internationales und nationales Familienwochenende sein, da die Vorträge sowohl auf Deutsch als auch auf Englisch. https://t.co/4HOw0fDErw
#ERKNet #CompCure #renal #raredisease
0
0
0
‼️Starting tomorrow - the SEISMIC C3G and IC-MPGN Summit! Stakeholders will explore the clinical landscape, challenges and recommendable steps, accelerating access/drug development 🚀. Learn more: https://t.co/KS8ZYagIm5.
#GlomerularDisease #C3G #ICMPGN #NephCure #CompCure #ISGD
1
1
7
Today on C3G Awareness Day, we spotlight our SEISMIC initiative where ISGD, @nephcure, and CompCure convened leading experts at the SEISMIC summit to advance C3G diagnosis and treatment. Watch the highlights: https://t.co/6WvcFY1vqV
https://t.co/domHhYyd5U
#C3GAwarenessDay
0
1
8
The ISN participated in the "Patient Consensus Meeting" by CompCure, amplifying voices of those living with kidney diseases. Prof. Detlef Böckenhauer spoke on "Kidney Health and Public Policy." Together, we aim to drive actionable solutions for stronger kidney health policies.
0
4
12
Day 1 of the #SEISMIC C3G and IC-MPGN Summit in Reykjavík is underway! 💚 We’re excited to join @ISGDtweets & CompCure to unite experts, researchers, and advocates tackling clinical challenges and shaping next steps. Stay tuned for more!
0
2
3
Marianne Silkjær Nielsen, CompCure, shared very powerful testimonial at #KidneyForum2025 and asks for better #KidneyHealth: 1️⃣ Early detection 2️⃣ Access to experts, meds & trials 3️⃣ Support transplants: prevent ESRD & boost donations 4️⃣ Make kidney health a policy priority
1
2
3
Great points about awareness of #kidney disease #multimotbidity
#diagnose the type of kidney disease People need #access to #quality care! @ISNkidneycare @devex @globalkidney @EKHA_EU #CompCure
1
3
15
Are you looking for additional insights into your composites manufacturing? Our CompCure program provides real-time cure state visibility through on-site support, and a working prototype ready for management approval. Read our latest CEO Note for more: https://t.co/8hRlkpVn7M]
0
0
0
🇪🇺MEP Tomislav Sokol supports CKD and rare diseases 👉Encourage early diagnosis / screening 👉Support @EuRefNetwork 👉Cross border health care for rare diseases @EKHA_EU @CompCure @ERAkidney @EKPFpatients #kidneyforum2025
0
1
12
Hoy, en el #C3GAwarenessDay, destacamos la iniciativa SEISMIC, donde ISGD, @nephcure y CompCure reunieron a expertos líderes en la cumbre SEISMIC para avanzar en el diagnóstico y tratamiento de la C3G. Mira los momentos destacados: https://t.co/JugcUiuJkZ
https://t.co/DtzOVvYPGh
0
0
2
This week we joined experts & policymakers in Brussels at the #KidneyForum2025 to push kidney health higher on the agenda. The “Five Key Recommendations” were presented at the @Europarl_EN ! 🇪🇺 💬 @EKHA_EU @EKPFed @FEDERG_AISBL @ISNeducation @ERAkidney CompCure @EuRefNetwork
1
4
7
Invitation to EU Caregivers & Patients with #Complement Diseases (*#aHUS *C3 #glomerulopathy *IC-#MPGN) to Patients Day 2024, 14 & 15 Sept 2024 in Berlin. @EuRefNetwork Hosts: CompCure Foundation with Selbsthilfegruppe MPGN Und aHUS E.V FMI & Program https://t.co/iujsf4aKqy
0
1
2
