
PKD International
@PKD_Int
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A Global Alliance of #PKD Patient Groups promoting research and improved care for everyone affected by #ADPKD and #ARPKD
Worldwide
Joined April 2011
π Today is #PKDAwarenessDay !. The global community comes together to raise awareness, share knowledge, and support one another. Throughout September, our members across many countries are hosting events and activities to shine a light on Polycystic Kidney Disease (#PKD).
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π On Sept 4, the global PKD community unites for #PKDAwarenessDay to raise awareness, support patients & push research forward. #PKDInternational #EndPKD #ADPKD #PKDResearch
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π Together, we can transform the future of PKD care . Polycystic Kidney Disease (PKD) affects millions of lives worldwide β but with your help, there is hope. π» Be part of the change today: #PKDInternational #DonateForPKD
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ποΈ September 20, 2025 . PKD International is honoured to join the celebration of the 20th anniversary of our founding member @AIRPonlus, marking two decades of dedication to the fight against polycystic kidney disease. π
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π€π¦πΊ Proud to Partner with @PKDAustralia π. π Together, weβre raising awareness and empowering individuals affected by PKD in Australia and worldwide. #PKDInternational #ADPKD #ARPKD #PolycysticKidneyDisease #PKDResearch #PatientSupport #KidneyHealth #RareDiseases
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Did you know thereβs a Mental Health & Wellbeing Toolkit created specifically for people affected by rare diseases?. This free resource, developed by EURORDIS, is designed for patients, caregivers, and professionals. π #PKDInternational.@eurordis
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Supporting #PKDInternational means investing in research, education, and advocacy for people living with Polycystic Kidney Disease worldwide. Every donation, big or small, brings us closer to better treatments and real hope for the future. π»
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π€π Proud to collaborate with Niervereniging Nederland. π #PKDInternational is honored to partner with Niervereniging Nederland (Dutch Kidney Association), a trusted non-profit organization dedicated to supporting people living with kidney disease in the Netherlands π
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KDIGO ADPKD Guideline: A Milestone in Genetic Kidney Diseases Why is a global guideline for ADPKD so important?. Prof. @MuellerRom explains how the new KDIGO guideline marks a crucial step forward in harmonizing care for patients with #ADPKD) worldwide π
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Millions of patients around the world live with Polycystic Kidney Disease, facing daily challenges and uncertainties. Every contribution moves us closer to improved care and a brighter future for the PKD community. #PKDInternational #DonateForPKD
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RT @MuellerRom: Interested in a postdoctoral fellowship on polycystic kidney disease? Linking molecular data with outcome? Please get in toβ¦.
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π£ Todayβs the day! Join us today for this inspiring webinar hosted by the PKD Foundation of Canada and discover how patient voices are driving real change. π Register here and join us live: . @endPKD #PKDInternational #PKDFoundationCanada.
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π Stay Cool, Stay Safe: #SummerTips for Living with #PKD. Hot weather can bring extra challenges for those living with Polycystic Kidney Disease (PKD). These simple precautions can help you enjoy the season while protecting your kidneys and overall health π
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πΊ Patient-scientist collaboration β key to investigator-initiated trials: SGLT2i and beyond. In this video interview, Prof. @MuellerRom highlights the power of working together: scientists, patients, and advocacy groups united to tackle the big questions in #PKD
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π¬β¨ How Can Your Story Shape the Future of Kidney Care?.Join us on July 22 for an inspiring webinar hosted by the PKD Foundation of Canada and discover how patients are stepping up as partners to drive meaningful change. π Register for free: @endPKD.
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π By donating funds to #PKDInternational, you help accelerate research, raise global awareness, and amplify the voices of patients and caregivers everywhere. Your financial contribution supports education, advocacy, and patient support initiatives π
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π€π #PKDInternational is proud to collaborate with Bundesverband Niere e.V., Germanyβs largest kidney patient advocacy network. Together, we amplify patient voices, promote knowledge exchange, and advocate for better care and access for everyone living with PKD π
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