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PKD International Profile
PKD International

@PKD_Int

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A Global Alliance of #PKD Patient Groups promoting research and improved care for everyone affected by #ADPKD and #ARPKD

Worldwide
Joined April 2011
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@PKD_Int
PKD International
22 minutes
🌍 Today is #PKDAwarenessDay !. The global community comes together to raise awareness, share knowledge, and support one another. Throughout September, our members across many countries are hosting events and activities to shine a light on Polycystic Kidney Disease (#PKD).
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@PKD_Int
PKD International
3 days
🌍 On Sept 4, the global PKD community unites for #PKDAwarenessDay to raise awareness, support patients & push research forward. #PKDInternational #EndPKD #ADPKD #PKDResearch
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@PKD_Int
PKD International
6 days
πŸ’› Together, we can transform the future of PKD care . Polycystic Kidney Disease (PKD) affects millions of lives worldwide β€” but with your help, there is hope. πŸ’» Be part of the change today: #PKDInternational #DonateForPKD
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@PKD_Int
PKD International
10 days
Eating well with PKD doesn’t have to be complicated. In this helpful blog post, Emily Campbell shares practical strategies to build healthy eating habits that last. Read the full article by the @endPKD to learn how small:
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endpkd.ca
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@PKD_Int
PKD International
15 days
πŸ—“οΈ September 20, 2025 . PKD International is honoured to join the celebration of the 20th anniversary of our founding member @AIRPonlus, marking two decades of dedication to the fight against polycystic kidney disease. πŸ‘‰
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@PKD_Int
PKD International
17 days
πŸ€πŸ‡¦πŸ‡Ί Proud to Partner with @PKDAustralia 🌏. πŸ’› Together, we’re raising awareness and empowering individuals affected by PKD in Australia and worldwide. #PKDInternational #ADPKD #ARPKD #PolycysticKidneyDisease #PKDResearch #PatientSupport #KidneyHealth #RareDiseases
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@PKD_Int
PKD International
20 days
Did you know there’s a Mental Health & Wellbeing Toolkit created specifically for people affected by rare diseases?. This free resource, developed by EURORDIS, is designed for patients, caregivers, and professionals. πŸ‘‰ #PKDInternational.@eurordis
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@PKD_Int
PKD International
24 days
When living with polycystic kidney disease, knowing which fruits and vegetables to choose can make a big difference. In this blog from the PKD Foundation of Canada, dietitian Emily Campbell shares tips to safely balance your diet: @endPKD
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@PKD_Int
PKD International
27 days
Supporting #PKDInternational means investing in research, education, and advocacy for people living with Polycystic Kidney Disease worldwide. Every donation, big or small, brings us closer to better treatments and real hope for the future. πŸ’»
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@PKD_Int
PKD International
1 month
πŸ€πŸ’› Proud to collaborate with Niervereniging Nederland. 🌟 #PKDInternational is honored to partner with Niervereniging Nederland (Dutch Kidney Association), a trusted non-profit organization dedicated to supporting people living with kidney disease in the Netherlands πŸ‘‡
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@PKD_Int
PKD International
1 month
πŸ’› Why Are Kidneys So Important?. Kidneys perform vital functions for our bodies: they filter toxins, regulate fluids, control blood pressure, support bone health, and aid in red blood cell production. When kidney function is impaired, it affects the whole body.
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@PKD_Int
PKD International
1 month
KDIGO ADPKD Guideline: A Milestone in Genetic Kidney Diseases Why is a global guideline for ADPKD so important?. Prof. @MuellerRom explains how the new KDIGO guideline marks a crucial step forward in harmonizing care for patients with #ADPKD) worldwide πŸ‘‡
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@PKD_Int
PKD International
1 month
Millions of patients around the world live with Polycystic Kidney Disease, facing daily challenges and uncertainties. Every contribution moves us closer to improved care and a brighter future for the PKD community. #PKDInternational #DonateForPKD
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@PKD_Int
PKD International
1 month
RT @MuellerRom: Interested in a postdoctoral fellowship on polycystic kidney disease? Linking molecular data with outcome? Please get in to….
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@PKD_Int
PKD International
1 month
πŸ“£ Today’s the day! Join us today for this inspiring webinar hosted by the PKD Foundation of Canada and discover how patient voices are driving real change. πŸ”— Register here and join us live: . @endPKD #PKDInternational #PKDFoundationCanada.
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@PKD_Int
PKD International
2 months
🌞 Stay Cool, Stay Safe: #SummerTips for Living with #PKD. Hot weather can bring extra challenges for those living with Polycystic Kidney Disease (PKD). These simple precautions can help you enjoy the season while protecting your kidneys and overall health πŸ‘‡
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@PKD_Int
PKD International
2 months
πŸ“Ί Patient-scientist collaboration – key to investigator-initiated trials: SGLT2i and beyond. In this video interview, Prof. @MuellerRom highlights the power of working together: scientists, patients, and advocacy groups united to tackle the big questions in #PKD
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@PKD_Int
PKD International
2 months
πŸ’¬βœ¨ How Can Your Story Shape the Future of Kidney Care?.Join us on July 22 for an inspiring webinar hosted by the PKD Foundation of Canada and discover how patients are stepping up as partners to drive meaningful change. πŸ”— Register for free: @endPKD.
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@PKD_Int
PKD International
2 months
πŸ’› By donating funds to #PKDInternational, you help accelerate research, raise global awareness, and amplify the voices of patients and caregivers everywhere. Your financial contribution supports education, advocacy, and patient support initiatives πŸ‘‰
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@PKD_Int
PKD International
2 months
πŸ€πŸ’› #PKDInternational is proud to collaborate with Bundesverband Niere e.V., Germany’s largest kidney patient advocacy network. Together, we amplify patient voices, promote knowledge exchange, and advocate for better care and access for everyone living with PKD πŸ‘‡
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