📺 Patient-scientist collaboration – key to investigator-initiated trials: SGLT2i and beyond. In this video interview, Prof. @MuellerRom highlights the power of working together: scientists, patients, and advocacy groups united to tackle the big questions in #PKD

💬✨ How Can Your Story Shape the Future of Kidney Care?.Join us on July 22 for an inspiring webinar hosted by the PKD Foundation of Canada and discover how patients are stepping up as partners to drive meaningful change. 🔗 Register for free: @endPKD.

💛 By donating funds to #PKDInternational, you help accelerate research, raise global awareness, and amplify the voices of patients and caregivers everywhere. Your financial contribution supports education, advocacy, and patient support initiatives 👉

🤝💛 #PKDInternational is proud to collaborate with Bundesverband Niere e.V., Germany’s largest kidney patient advocacy network. Together, we amplify patient voices, promote knowledge exchange, and advocate for better care and access for everyone living with PKD 👇

At #PKDInternational, we are united by one mission: improving the lives of people affected by Polycystic Kidney Disease worldwide. Together, we can change the future for everyone living with PKD. 💛 #PolycysticKidneyDisease #PKD #ADPKD #ARPKD.

🎥🧪 SGLT2 Inhibitors: Should They Be Used in ADPKD?. In this new video, Prof. @MuellerRom — medical doctor and researcher at the University of Cologne — explores one of the most debated questions in the field of kidney disease today 👇. #PolycysticKidneyDisease

💛 This is such an important resource for anyone living with a rare kidney disease or supporting a loved one. Mental health matters just as much as physical health. Thank you @eurordis for making this Toolkit available to all. 🌿🧠 #RareDisease #MentalHealthMatters.

‼️Breaking News‼️ @Novartis completed acquisition of Regulus Therapeutics, advancing #farabursen an investigational therapy targeting microRNA‑17 to slow cyst growth in #ADPKD . 🔗

🌞 Summer Tips . Hot weather can pose additional challenges for people living with Polycystic Kidney Disease (PKD). Here are some essential tips to help you stay well and protect your kidneys during the warmer months 👇. #PKDTips #PKDInternational #LivingWithPKD #ADPKD #ARPKD

🇫🇷 @PolykystoseFR has long been a trusted partner of PKD International in the fight against polycystic kidney and liver diseases. We share a common vision, a deep commitment, and a clear goal: to improve the lives of people affected by PKD. #PKDInternational #APKF #ADPKD #ARPKD

#PKDKnowledge — A Shared Vision of #OpenScience. “Why is open science important to patients? Because time matters.”. 🗣️ Our President @FLAVIAZH reminds us that patients don’t have time to waste. We often only see published studies — but that’s just the tip of the iceberg 👇

#PKDKnowledge — A Shared Vision of Open Science. “Why is open science important for polycystic kidney disease?”.It’s a vital question and one that @MuellerRom, Professor of Translational Nephrology and Deputy Director at the University Hospital of Cologne, helps us explore 👇

💛 A small gesture can change the future for those living with PKD. Polycystic kidney disease continues to affect millions of lives — but with your support, we can take meaningful steps toward hope. Support us today: #PKDInternational #ADPKD #ARPKD

Last week, #PKDInternational had the pleasure of participating in the #ERACongress in Vienna. Representing us were our President @FLAVIAZH and Secretary Uwe Korst, who engaged with experts, researchers, and fellow patient advocates from across Europe. @ERAkidney

PKD International is at the ERA Congress in Vienna!. Our President @FLAVIAZH and Secretary Uwe Korst had the pleasure of meeting Professor Albert Ong, a leading expert in Renal Medicine at the University of Sheffield, UK. @ERAkidney #PKDInternational

Today, PKD International participated in the #ADPKD Community Advisory Board organised by @VertexPharma. Members from 🇪🇸 Spain, 🇩🇪 Germany, 🇮🇹 Italy and 🇬🇧 the UK — brought the voice of the ADPKD patient community from across Europe to the table. @ERAkidney

We’re all set for the 62nd ERA Congress in Vienna, happening from Wednesday the 4th to Saturday the 7th of June!. @FLAVIAZH and Uwe Korst will be attending the event. Be sure to stop by the PKD International booth — Hall X.1, Booth X1.230. @ERAkidney #PKDInternational

RT @ERAkidney: 📣 Save the date! Symposium 1.1 at #ERA25 will focus on "Game changers in genetic diseases: gene therapy", join our speakers….

✨ We’re excited to share that from Wednesday, June 4 to Saturday, June 7, @FLAVIAZH and Uwe Korst will be in Vienna to attend the #ERA25 Congress!. You’ll be able to find them at the PKD International booth (location in the graphic below). @ERAkidney #PKDInternational

💛 Behind every donation, there’s a story of hope. Polycystic Kidney Disease touches millions of lives — but your support can rewrite the future. 👉 Be part of the change:.🔗 #PKDInternational #ADPKD #ARPKD #KidneyHealth #HopeForPKD #TogetherStronger