eGLILDnet
@glildnet
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The official Twitter account of ERS CRC eGLILDnet - promoting better care and research for those with CVID+granulomatous-lymphocytic interstitial lung disease.
Joined April 2019
*NEW* 👀 . Our research prioritisation for #GLILD in #CVID is now published in @ERSpublications ERJ Open Research. Thanks to all those @EuroRespSoc @ESIDsociety and @ipopi_info for taking part. People living with GLILD deserve more evidence-based care.
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RT @ProfHurst: I'm proud to be a member of the @EuroRespSoc, and really value the Clinical Research Collaborations which bring together mul….
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RT @ProfHurst: Do you recommend biopsy in a person with suspected GLILD?. What are colleagues doing?. When might you not need to biopsy?. 👀….
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RT @ProfHurst: I’m part of the @EuroRespSoc @glildnet collaboration that aims to improve outcomes in #GLILD. We are interested in knowing….
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RT @Heba_Bintalib: Exciting news🎉My chapter on "Granulomatous & lymphocytic interstitial lung disease in common variable immunodeficiency"….
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RT @Heba_Bintalib: Are you a clinician interested in #GLILD?🩺🫁. Our survey to help understanding current practices and considerations in lu….
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💥 NEW 💥- Pleased to share this, from a 🇬🇧 team working in #GLILD - great work led by @Heba_Bintalib. 👏🏻.
The use of MMF is associated with long-term effectiveness in GLILD and permits weaning of corticosteroids. A delay in initiating and continuing maintenance treatment could lead to disease progression.
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RT @ProfHurst: Wait for me!. Excited to be sharing an update on the @EuroRespSoc @glildnet Clinical Research Collaboration at #IPIC5 today!….
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RT @ProfHurst: We report the prevalence of #bronchiectasis and #GLILD in #CVID in 110 people from our @RoyalFreeNHS cohort, and show that l….
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RT @ESIDsociety: The first ESID #Grandrounds for 2022 is available for registration - @Siobhan13592648 will lead a fascinating discussion o….
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We had our Steering Committee meeting today and have B I G plans for 2022 - watch this space 😉.
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Thanks to @TakedaPharma for the opportunity to talk about eGLILDnet, #GLILD and the value of multi-disciplinary teams in the care of complex immunodeficiency at the IGNITE forum today. Great discussions.
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It’s a big day for us @EuroRespSoc #ERSCongress as @HebaB6 presents the results of our patient-clinician research prioritisation exercise for #GLILD in #CVID. Thanks to everyone for the support, including our friends at @ipopi_info and @ESIDsociety. Live talk 930 CET. Results ⬇️.
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We are very pleased to have held our first #GLILD MDT today with participation from 🇩🇰 🇫🇷 🇩🇪 🇸🇪 🇬🇧. We hope this will be a useful resource for @EuroRespSoc members and beyond. Do be in touch if you want to know more!.
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Latest paper in collaboration with our network, see ⬇️ by our co-chair @ProfHurst.
Very pleased to be a very small part of this important systematic review of treatment for #GLILD in #PID. May be of interest to those in @ipopi_info @ESIDsociety @theukpin and @EuroRespSoc. Completed in association with the ERS @glildnet CRC.
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RT @JohanPrevot: Great talk by @ProfHurst live now in @ipopi_info webinar on #lung complications in #PID .Focus on acute infections + chron….
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A big shout out to all those living with #GLILD in #CVID this #RareDiseaseDay2021 - our @EuroRespSoc funded CRC continues to work towards a brighter future. Our research prioritisation work is now complete and we will be releasing the results very soon! Stay tuned!.
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RT @EuroRespSoc: Are you an adult or paediatric #immunologist or #pulmonologist? 👩⚕ 👨. The @glildnet Clinical Research Collaboration is c….
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RT @EuroRespSoc: Calling all adult & paediatric #immunologists & #pulmonologists. 👩⚕ 👨⚕ Do you manage patients with granulomatous-lymph….
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