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Cholangiocarcinoma Foundation Profile
Cholangiocarcinoma Foundation

@curecc

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Our mission is to find a cure and improve the quality of life for cholangiocarcinoma patients. #CCAhope

Joined July 2009
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@curecc
Cholangiocarcinoma Foundation
2 hours
Are you a researcher or clinician passionate about advancing knowledge in biliary tract cancer? The 2025–2026 Precision-BTC Network / ENS-CCA / ICRN Mentorship Program is now accepting applications for mentors and mentees! This international program connects emerging
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@curecc
Cholangiocarcinoma Foundation
6 hours
Happy Diwali from the Cholangiocarcinoma Foundation! 🌟 May this season of light inspire hope, brighten every path, and remind us that together, our community shines stronger. πŸ’›πŸͺ”πŸ’š #Diwali #LightThePath #CureCCA #strengthincommunity
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@MGMcNamara
Mairead G McNamara
13 hours
Combined data: N=110, FGFR2 altered CCA treated with tinengotinib, presented by @JavleMilind #ESMO25 ; N.B. PFS 6 mo & OS 17 mo for pts refractory/relapsed to FGFR2 inhibitors; FIRST-308 enrolling. Need option for these pts previously treated @curecc @CharityAMMF
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@curecc
Cholangiocarcinoma Foundation
1 day
πŸ’š October is Liver Cancer Awareness Month. Cholangiocarcinoma (bile duct cancer) is a rare and complex form of liver cancer β€” but awareness can lead to earlier diagnosis and better outcomes. Swipe ➑️ to learn about risk factors, symptoms, and how the Cholangiocarcinoma
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@curecc
Cholangiocarcinoma Foundation
2 days
πŸ’š Your October CCF Update is here! πŸƒβ€β™‚οΈ Mark’s Legacy Lives On – Join On Your Mark, our monthly giving society, and help carry forward the mission that started it all. πŸŽ“ Educational Webinars – Gain expert insights to support patients, caregivers, and professionals. πŸ¦ƒ Turkey
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@curecc
Cholangiocarcinoma Foundation
3 days
πŸ’» CCF Webinar: Managing Side Effects of FGFR Inhibitors Join Dr. Lipika Goyal from Stanford University as she reviews common side effects of FGFR inhibitors and shares practical strategies for managing them. Learn about supportive care, monitoring, and interventions to improve
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@curecc
Cholangiocarcinoma Foundation
3 days
πŸ’š October is Liver Cancer Awareness Month πŸ’š The Cholangiocarcinoma Foundation stands with the International Liver Cancer Movement in a global effort to raise awareness of liver cancer, with a focus on cholangiocarcinoma (bile duct cancer), a rare but aggressive form of liver
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@Erman_Akkus
Erman Akkus
6 days
πŸ₯Hepatic Arterial Infusion Pump Chemotherapy for Unresectable Intrahepatic Cholangiocarcinoma PUMP-2 @JCO_ASCO @BasGrootKoerkam ➑️Phase II, 48 patients ➑️HAIP with floxuridine + GemCis (if not previosly) βœ…PR: 44%, DCR at 6th mo: 84% βœ…mOS: 22.3 mo βœ…1y-OS: 80%, 3y-OS: 31.5%
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@UGrewalMD
Udhayvir Grewal
6 days
πŸ“ Pretty cool data with the PUMP2 trial- HAIP for unresectable intrahepatic cholangiocarcinoma. @curecc @TheGutOncLab 48 patients. 22 patients (44%) achieved a PR and 42 patients (84%) disease control at 6 months. 5 patients (10%) converted to resection, of whom one had a pCR.
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@curecc
Cholangiocarcinoma Foundation
4 days
When Katie Courtney turned 30, she expected heartache β€” another birthday without her husband, Bobby. Instead, she found hope through Bobby’s Ducks, a heartfelt campaign turning Jeep β€œducking” into a symbol of awareness for cholangiocarcinoma. πŸ¦† At the Wally Armour Jeep Jam,
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@curecc
Cholangiocarcinoma Foundation
5 days
Creating a Memorial Page for Your Loved One We know how meaningful it is to honor a loved one’s legacy through giving. That’s why we offer families and friends the option to create a memorial fundraising pageβ€”or In Lieu of Flowers (ILOF) pageβ€”when the time feels right. With
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@curecc
Cholangiocarcinoma Foundation
5 days
Please join us for our second Houston CARE event β€” a chance for patients, caregivers, family, and community supporters to connect, share, and support one another in person. πŸ“… Date: Saturday, November 8, 2025 πŸ•™ Time: 10:00 a.m. πŸ“ Location: Memorial Park β€” Golf Clubhouse πŸ“
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@curecc
Cholangiocarcinoma Foundation
6 days
πŸ’š Running for Hope πŸ’š Alex Kovala carried more than determination along the 26.2 miles of the Whistlestop Marathon on October 11. He carried the memory of his sister Hope Bretting, the former Ashland Oredockers track and field star and coach who died from cholangiocarcinoma, a
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@curecc
Cholangiocarcinoma Foundation
6 days
πŸ’š Thank you, Kenton & Preston! In memory of their grandpa, Dr. James K. Welling, these incredible brothers hosted their 5th annual Apple Cider Stand to cure bile duct cancer β€” raising $1,154 this year and bringing their lifetime total to $8,606! πŸŽπŸ’š From green CCF shirts and
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@curecc
Cholangiocarcinoma Foundation
10 days
https://t.co/OGRKcIfj2A Enjoy the recording from this week’s webinar: Understanding Your Options After an Adverse VA Decision with @KatrinaEagle1. She demystified the VA claims & appeals process and taught how to navigate denied disability claims. πŸŽ–οΈ
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@curecc
Cholangiocarcinoma Foundation
11 days
🧭 You're their guide. We're your partner. Healthcare Providers: CCF can help you explore treatment options, connect to research, and offer trusted patient resources. Start here πŸ‘‰ https://t.co/J9pXjaxg9e #Cholangiocarcinoma #RareCancer #Oncology #ClinicalTrials
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@curecc
Cholangiocarcinoma Foundation
11 days
πŸ—“οΈ October Virtual Support Meetings – Join Us! πŸ—“οΈ πŸ’š Patient Support Group β€’ Monday, October 20 @ 4:00 PM EDT 🀝 Caregiver Support Group β€’ Thursday, October 16 @ 4:00 PM EDT πŸ’” Bereaved Support Group β€’ Monday, October 6 @ 4:30 PM EDT 🌎 Grupo de Apoyo (Spanish) β€’
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@curecc
Cholangiocarcinoma Foundation
12 days
πŸ’š Save the Date! The 2025 Houston Cholangiocarcinoma Symposium will take place on December 12, 2025, at the Houston Methodist Research Institute. Join leading experts, researchers, healthcare professionals, patients, and advocates as we share the latest advancements and address
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@curecc
Cholangiocarcinoma Foundation
12 days
Introducing our International Cholangiocarcinoma Research Network (ICRN) Next-Gen Webinar Series! πŸ—“οΈ Tips for Giving an Academic Talk – November 7, 2025 | 11 a.m. ET / 5 p.m. CET. Join Dr. Lipika Goyal for practical guidance on preparing and delivering effective academic
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