
Cholangiocarcinoma Foundation
@curecc
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Our mission is to find a cure and improve the quality of life for cholangiocarcinoma patients. #CCAhope
Joined July 2009
Are you a researcher or clinician passionate about advancing knowledge in biliary tract cancer? The 2025β2026 Precision-BTC Network / ENS-CCA / ICRN Mentorship Program is now accepting applications for mentors and mentees! This international program connects emerging
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Happy Diwali from the Cholangiocarcinoma Foundation! π May this season of light inspire hope, brighten every path, and remind us that together, our community shines stronger. ππͺπ #Diwali #LightThePath #CureCCA #strengthincommunity
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Combined data: N=110, FGFR2 altered CCA treated with tinengotinib, presented by @JavleMilind #ESMO25 ; N.B. PFS 6 mo & OS 17 mo for pts refractory/relapsed to FGFR2 inhibitors; FIRST-308 enrolling. Need option for these pts previously treated @curecc @CharityAMMF
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π October is Liver Cancer Awareness Month. Cholangiocarcinoma (bile duct cancer) is a rare and complex form of liver cancer β but awareness can lead to earlier diagnosis and better outcomes. Swipe β‘οΈ to learn about risk factors, symptoms, and how the Cholangiocarcinoma
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π Your October CCF Update is here! πββοΈ Markβs Legacy Lives On β Join On Your Mark, our monthly giving society, and help carry forward the mission that started it all. π Educational Webinars β Gain expert insights to support patients, caregivers, and professionals. π¦ Turkey
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π» CCF Webinar: Managing Side Effects of FGFR Inhibitors Join Dr. Lipika Goyal from Stanford University as she reviews common side effects of FGFR inhibitors and shares practical strategies for managing them. Learn about supportive care, monitoring, and interventions to improve
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π October is Liver Cancer Awareness Month π The Cholangiocarcinoma Foundation stands with the International Liver Cancer Movement in a global effort to raise awareness of liver cancer, with a focus on cholangiocarcinoma (bile duct cancer), a rare but aggressive form of liver
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PUMP-2 published in JCO! HAIP chemo for intrahepatic cholangiocarcinoma #pump #CCA @FlavioRochaMD @ArndtVogel @curecc @timpawlik @DrAngelaLamarca @LorenzaRimassa @SyedAAhmad5 @JCO_ASCO
https://t.co/vG6tVXEoQ8
ascopubs.org
PURPOSEThe 3-year overall survival (OS) for advanced intrahepatic cholangiocarcinoma (iCCA) confined to the liver after systemic chemotherapy with gemcitabine-cisplatin (gem-cis) is only 3%. Hepatic...
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π₯Hepatic Arterial Infusion Pump Chemotherapy for Unresectable Intrahepatic Cholangiocarcinoma PUMP-2 @JCO_ASCO @BasGrootKoerkam β‘οΈPhase II, 48 patients β‘οΈHAIP with floxuridine + GemCis (if not previosly) β
PR: 44%, DCR at 6th mo: 84% β
mOS: 22.3 mo β
1y-OS: 80%, 3y-OS: 31.5%
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π Pretty cool data with the PUMP2 trial- HAIP for unresectable intrahepatic cholangiocarcinoma. @curecc @TheGutOncLab 48 patients. 22 patients (44%) achieved a PR and 42 patients (84%) disease control at 6 months. 5 patients (10%) converted to resection, of whom one had a pCR.
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When Katie Courtney turned 30, she expected heartache β another birthday without her husband, Bobby. Instead, she found hope through Bobbyβs Ducks, a heartfelt campaign turning Jeep βduckingβ into a symbol of awareness for cholangiocarcinoma. π¦ At the Wally Armour Jeep Jam,
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Creating a Memorial Page for Your Loved One We know how meaningful it is to honor a loved oneβs legacy through giving. Thatβs why we offer families and friends the option to create a memorial fundraising pageβor In Lieu of Flowers (ILOF) pageβwhen the time feels right. With
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Please join us for our second Houston CARE event β a chance for patients, caregivers, family, and community supporters to connect, share, and support one another in person. π
Date: Saturday, November 8, 2025 π Time: 10:00 a.m. π Location: Memorial Park β Golf Clubhouse π
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π Running for Hope π Alex Kovala carried more than determination along the 26.2 miles of the Whistlestop Marathon on October 11. He carried the memory of his sister Hope Bretting, the former Ashland Oredockers track and field star and coach who died from cholangiocarcinoma, a
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π Thank you, Kenton & Preston! In memory of their grandpa, Dr. James K. Welling, these incredible brothers hosted their 5th annual Apple Cider Stand to cure bile duct cancer β raising $1,154 this year and bringing their lifetime total to $8,606! ππ From green CCF shirts and
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https://t.co/OGRKcIfj2A Enjoy the recording from this weekβs webinar: Understanding Your Options After an Adverse VA Decision with @KatrinaEagle1. She demystified the VA claims & appeals process and taught how to navigate denied disability claims. ποΈ
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π§ You're their guide. We're your partner. Healthcare Providers: CCF can help you explore treatment options, connect to research, and offer trusted patient resources. Start here π https://t.co/J9pXjaxg9e
#Cholangiocarcinoma #RareCancer #Oncology #ClinicalTrials
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ποΈ October Virtual Support Meetings β Join Us! ποΈ π Patient Support Group β’ Monday, October 20 @ 4:00 PM EDT π€ Caregiver Support Group β’ Thursday, October 16 @ 4:00 PM EDT π Bereaved Support Group β’ Monday, October 6 @ 4:30 PM EDT π Grupo de Apoyo (Spanish) β’
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π Save the Date! The 2025 Houston Cholangiocarcinoma Symposium will take place on December 12, 2025, at the Houston Methodist Research Institute. Join leading experts, researchers, healthcare professionals, patients, and advocates as we share the latest advancements and address
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Introducing our International Cholangiocarcinoma Research Network (ICRN) Next-Gen Webinar Series! ποΈ Tips for Giving an Academic Talk β November 7, 2025 | 11 a.m. ET / 5 p.m. CET. Join Dr. Lipika Goyal for practical guidance on preparing and delivering effective academic
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