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Cholangiocarcinoma Foundation Profile
Cholangiocarcinoma Foundation

@curecc

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Following
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Our mission is to find a cure and improve the quality of life for cholangiocarcinoma patients. #CCAhope

Joined July 2009
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@curecc
Cholangiocarcinoma Foundation
20 hours
A CCA survivor thriver, his wife & his oncologist, Dr. Katie Kelley, just climbed to the top of Salesforce Tower 💪. She’s a CCF Innovation Grant recipient & Mark R. Clements Awardee—and a true partner in the climb toward a cure. #Cholangiocarcinoma #LivingBeyondDiagnosis
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@curecc
Cholangiocarcinoma Foundation
2 days
Happy Independence Day! ✨ Celebrating freedom, unity, and the land of the brave. Wishing you a sparkling 4th of July from all of us at CCF! 🎆
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@curecc
Cholangiocarcinoma Foundation
3 days
🏌️‍♂️ Ryan Adkins Memorial Golf Outing.Join us Saturday, July 12, at SPG Green Garden Country Club in Frankfort, IL!. 📍 Registration: 7:30 AM.⛳ Tee Time: 9:00 AM.💲 $125 per golfer (includes lunch, four drink tickets & range balls). 📧 Register: ryanadkinsmemorial@gmail.com
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@curecc
Cholangiocarcinoma Foundation
4 days
🗞️ CBS Sunday Morning featured this urgent call, spotlighting patients like Natalie, a mother of two battling stage 4 colorectal cancer. She qualified for a potentially life-saving trial—but it's now delayed due to NIH staffing cuts. Since her wait, she has developed new tumors.
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@curecc
Cholangiocarcinoma Foundation
4 days
📣 Save the Date!. The 2025 Chicago Cholangiocarcinoma Symposium is coming this fall! 🧬💚. Join leading experts, researchers, healthcare professionals, patients, and advocates for a powerful day focused on the latest in cholangiocarcinoma research, treatment, and hope. 💡🩺. 📍
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@curecc
Cholangiocarcinoma Foundation
4 days
RT @ArndtVogel: 🔥Jazz Pharmaceuticals Receives European Commission Marketing Authorization for Ziihera®.(zanidatamab) for the Treatment of….
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@curecc
Cholangiocarcinoma Foundation
5 days
Happy Canada Day to the cholangiocarcinoma community up north! 🇨🇦 🍁
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@curecc
Cholangiocarcinoma Foundation
5 days
🎉 Save the Date! 🎉. We’re excited to announce that the 13th Annual Cholangiocarcinoma Foundation Conference will take place on May 1–3, 2026, in Salt Lake City, Utah, as we celebrate 20 years of progress, community, and impact. Mark your calendars—more information coming soon!
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@curecc
Cholangiocarcinoma Foundation
5 days
RT @FlavioRochaMD: Many 🙏🏼 to @AMVillanoMD and @JeffreyFarma .for putting this 📕 together and inviting us to .write the #cholangiocarcinoma….
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@curecc
Cholangiocarcinoma Foundation
6 days
📣 We’re hiring!.Join CCF as Director of Data & Tech—a fully remote role driving data strategy, ethical AI, & tech innovation. Full-time + benefits. Apply now or share:.🔗#AIJobs #TechForGood #NonprofitTech.
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@curecc
Cholangiocarcinoma Foundation
6 days
Matt turned 40 with big plans. A healthier lifestyle. More time with family. But when unexpected symptoms led to a rare cancer diagnosis, everything changed. Thanks to the support of his medical team, a liver transplant, and the resources he found through the Cholangiocarcinoma
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@curecc
Cholangiocarcinoma Foundation
6 days
RT @FlavioRochaMD: 🔑note speaker🔈@rachnatshroff @UAZCancer .dropping the 🎤 on targets 🎯 and drugs 💊 for .#Cholangiocarcinoma @curecc #PDX R….
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@curecc
Cholangiocarcinoma Foundation
6 days
RT @FlavioRochaMD: MultiD liver tumor board @curecc @OHSUKnight.regional #PDX #cholangiocarcinoma symposium .moderated by our #HPB fellow @….
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@curecc
Cholangiocarcinoma Foundation
6 days
RT @ACCCBuzz: New 3-part video series developed by @ACCCBuzz & @curecc, address disparities in biliary tract cancer care. Featuring insight….
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@curecc
Cholangiocarcinoma Foundation
6 days
RT @OncoDailyGI: Flavio Rocha Welcomes the Cholangiocarcinoma Foundation Community to OHSU for Regional Symposium.@FlavioRochaMD @curecc @O….
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@curecc
Cholangiocarcinoma Foundation
9 days
RT @supriyadocc: Thank you for the phenomenal session on biliary tract cancer! 💥 As Dr. Flavio perfectly said Dr. Shroff is a true “bundle….
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@curecc
Cholangiocarcinoma Foundation
9 days
RT @FlavioRochaMD: @curecc leadership presenting the history and .mission of the #cholangiocarcinoma Foundation #advocacy #earlydetection #….
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@curecc
Cholangiocarcinoma Foundation
9 days
Happening today in Portland: our latest Cholangiocarcinoma Symposium, bringing together patients, caregivers, researchers, and providers for a day of connection, education, and hope. We’re grateful to everyone who joined us to advance knowledge and build community for those
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@curecc
Cholangiocarcinoma Foundation
9 days
RT @FlavioRochaMD: Getting ready to kick off @curecc @OHSUKnight PDX Regional #cholangiocarcinoma Symposium
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@curecc
Cholangiocarcinoma Foundation
9 days
📝 Share Your Experience. The International Liver Cancer Association (ILCA) is inviting patients to take a brief survey about their experience with liver cancer care—including treatment, decision-making, and awareness of tools like molecular testing and multidisciplinary tumor.
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