AMMF
@CharityAMMF
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AMMF is the UK's only cholangiocarcinoma (bile duct cancer) charity. Working throughout the UK and Europe, and collaborating globally.
UK
Joined June 2009
#AMMF recently hosted its annual #cholangiocarcinoma conference. We are delighted to share highlights from the 3 days. Hear from the attendees including specialists, patients and our sponsors explain what attending meant to them.
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RT @monicabeharding: The Rare Cancers Bill has passed!. I am proud to have supported this bill all the way through parliament from the begi….
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The #RareCancersBill is moving through UK Parliament—offering hope to those facing rare & less survivable cancers. It tackles:.Delayed diagnoses .Limited treatments.Lower survival rates. Write to your MP. Because rare shouldn’t mean forgotten. #CancerAwareness #HealthEquity
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Write to your MP and support the #RareCancersBill. Call for:.More research Rare cancer champions in all UK nations Better incentives for orphan drugs.Let’s push for better care, faster diagnoses & more hope. #CancerAwareness #HealthEquity #cholangiocarcinoma #CCA #AMMF
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Dr Chris Wadsworth explained the difference between ERCP and PTC, and how both can play their roles when stenting is being considered for a #cholangiocarcinoma patient during #AMMF's conference in May.Watch back the presentation at #bileductcancer
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If you or a loved one has a #BiliaryTractCancer, please take part in our new online surveys to share your experiences, preferences and priorities with #AMMF. Patients: .Partners/Family/Caregivers:
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Thank you to all that attended #AMMF’s live webinar on molecular profiling. We hope you found it both informative and engaging. We are delighted to announce the webinar is now available on our website!.Click here to watch it #LiverTwitter #BileDuctCancer
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Surgery to completely remove the cancer is currently the only potentially curative treatment for cholangiocarcinoma. Mr Hassan Malik explained during #AMMF's #cholangiocarcinoma conference in more detail what makes surgery possible for a patient.
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During #CCAAwareness Month #AMMF returned to Westminster. The event was to formally launch the next phase of our #RethinkLiverCancer campaign, calling for a #FairerDealFaster those diagnosed with #cholangiocarcinoma.
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Do not miss #AMMF's molecular profiling webinar - happening today at 18:00 BST. Find out what molecular profiling is and how it can impact treatment for people with #cholangiocarcinoma. There is still time to register! .#livertwitter
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#AMMF is at Holyrood! Prof Tim Kendall highlighted the need for a comprehensive molecular testing programme in Scotland to prevent some #cholangiocarcinoma patients missing out on treatment opportunities. #RethinkLiverCancer #FairerDealFaster
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#AMMF’s CEO Dr Helen Morement shared data from the Scottish Cancer Registry revealing #CCA rates are higher in Scotland than in England & increased by over 40% from 2001-2018. This highlights the need to #RethinkLiverCancer & get a #FairerDealFaster for CCA patients in Scotland.
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Sign up for #AMMF's webinar on molecular profiling, featuring our expert speaker, Dr Matt Evans, alongside CCA Patient Advocates Kevin Rodger and Ilona Smith. Register now to hear their expert insights and experiences: . #cholangiocarcinoma #LiverTwitter
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#CCA patient Kevin Wemyss spoke bravely about the disparities in molecular profiling in Scotland on STV .#AMMF are looking forward to discussing ways to #RethinkLiverCancer with @Jenni_Minto at our reception at Holyrood tomorrow. .
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Addenbrooke’s Hospital, Cambridge, has announced that it will be the first in the UK to offer #histotripsy for NHS patients with liver tumours. Learn more about the therapy & the announcement on #AMMF’s website. #cholangiocarcinoma #bileductcancer
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During #AMMF's #cholangiocarcinoma conference in May, Dr Matt Evans explained how approaches in molecular profiling are helping to improve diagnosis and open more doors to potential treatments in cholangiocarcinoma. You can watch this presentation back at
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What is histotripsy?.There has been a lot of interest in histotripsy within the #CCA patient community. To help you understand more about this therapy, #AMMF has prepared a new page for our website - .#cholangiocarcinoma
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RT @DrAngelaLamarca: Insightfull messages from our #PatientAdvocacyGroups involved in the @enscca @PrecisionBTCnet. -@CharityAMMF -manageme….
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RT @HelenMorement: Day One of the Precision-BTC Network meeting," Liquid Biopsy in BTC: From Bench to Bedside" has just finished. An amazi….
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RT @HelenMorement: Good to catch up with the leads of European patient advocacy groups (UK, Spain, Italy & France) here in Palma de Mallorc….
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