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CurePSP Profile
CurePSP

@CurePSP

Followers
3K
Following
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Media
1K
Statuses
3K

To raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.

New York, NY
Joined April 2009
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@CurePSP
CurePSP
5 days
🔬Now Published: Proceedings from #Tau2024, hosted in partnership by @curepsp @alzassociation and @RCFNeuro, which showcased global progress in understanding tau biology, biomarker discovery and therapeutic development. . #BecauseHopeMatters #Research
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@CurePSP
CurePSP
7 days
Navigating grief with PSP, CBD or MSA? Join our Ask the Expert webinar August 6 at 2PM ET: "Understanding Ambiguous Loss during Anticipatory Grief" with Dr. Nicole Reidy. Get practical tools for complex emotions. Register: . #AskTheExpert #PSP #CBD #MSA
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@CurePSP
CurePSP
8 days
During a time of uncertainty around funding for neurodegenerative research and federal support, #CurePSP is advocating for people with PSP, CBD & MSA—their access to quality healthcare, support services, and hope for a cure. 📢 Read our full statement
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@CurePSP
CurePSP
11 days
Attending #AAIC25 in Toronto? Meet the @CurePSP team at the @RCFNeuro booth (#1540) from 10:30–11:00 AM on Sun, July 27 & Mon, July 28 to learn about our grant programs!.🔗
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aaic.alz.org
The Alzheimer's Association International Conference is the world's largest forum for the dementia research community. London, UK, and online.
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@CurePSP
CurePSP
15 days
CurePSP was honored to join the @NIH_NINDS Nonprofit Forum at @NIH 🧠, held in partnership with @AmericanBrainCo, marking NINDS’s 75th anniversary. @RepWexton's powerful story of her PSP diagnosis reminded us why this work matters. Grateful to be part of this vital conversation!
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@CurePSP
CurePSP
18 days
Join us August 6 at 2PM ET: "Understanding Ambiguous Loss during Anticipatory Grief" with Dr. Nicole Reidy. Navigate uncertainty with PSP, CBD and MSA through practical coping strategies. Register: #AskTheExpert #AmbiguousLoss
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@CurePSP
CurePSP
26 days
$400,000 in new funding is fueling breakthrough PSP and CBD research!. CurePSP spoke directly with the dedicated scientists receiving our latest Pathway and Pipeline Grants:
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@CurePSP
CurePSP
26 days
🧠 CurePSP’s Pathway & Pipeline Grant Program is open! . We're funding innovative PSP & CBD research led by early career investigators. Advance understanding, treatment and prevention. 🗓️ Deadline: Oct 15, 2025, 5PM ET.📎 #CurePSPGrants #ResearchFunding
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@CurePSP
CurePSP
27 days
Season two of The Collective Mind is here! We’re back with Chris and Mike, two amazing community members who have used their time since Chris’ PSP diagnosis to make the most of every moment together. Listen to the full episode here:
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@CurePSP
CurePSP
29 days
We were honored to visit the #CurePSP Center of Care at the Kaye Edmonton Clinic in Alberta, Canada. Their interdisciplinary approach to PSP, CBD and MSA care, led by Drs. Miyasaki and Shetty, is a model of innovation, compassion and community engagement. #BecauseHopeMatters
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@CurePSP
CurePSP
1 month
🏃‍♀️ FINAL CALL: Join #TeamCurePSP at Tokyo Marathon 2026!. Applications close July 7th - 2 days left! Race Tokyo's streets March 1st. Turn your miles into hope for PSP, CBD & MSA. Apply: #TokyoMarathon2026 #TeamCurePSP . ©️TOKYO MARATHON FOUNDATION
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@CurePSP
CurePSP
1 month
🏃‍♀️ Run through Tokyo with #TeamCurePSP at the 2026 Tokyo Marathon! Experience Japan's vibrant capital on March 1, 2026. Applications now open for this world-renowned race with electric atmosphere! . Apply: . #TokyoMarathon2026 #RunForACause
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@CurePSP
CurePSP
1 month
CurePSP was proud to be represented at the @UTSWMedCenter Annual Parkinson’s Symposium by amazing volunteers Ileen McFarland & Lisa Henderson! They shared resources on PSP, CBD & MSA and highlighted their monthly support group. Thank you both for your compassion & advocacy! ❤️
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@CurePSP
CurePSP
1 month
By joining the CurePSP #Genetics Program, you can contribute to meaningful progress in understanding PSP, CBS and MSA. Your participation may lead to improved diagnosis, future treatment options and access to clinical trials. Our goal is 1,000 participants—help us get there!.
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@CurePSP
CurePSP
1 month
DNA samples undergo whole genome sequencing at the @NIH, and if significant genetic variants are found, results can be reviewed with a genetic counselor. #GeneticResearch.
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@CurePSP
CurePSP
1 month
🧬 The #CurePSP Genetics Program has received over 350 applications from individuals helping to advance understanding of the genetic causes of PSP, CBS and MSA, all through a free, at-home DNA collection. 🔗 Learn more or enroll today:
psp.org
CurePSP's mission is to increase awareness, educate, and find a cure for Progressive Supranuclear Palsy (PSP) and related neurodegenerative diseases.
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@CurePSP
CurePSP
1 month
Join us on the green in Raleigh, NC, for a special day of golf honoring Katie Lyons, who is courageously living with PSP. ⛳️ Enjoy food, community, and guest speakers, all in support of CurePSP's mission. Register:
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@CurePSP
CurePSP
2 months
We're honored to share Shayne Campbell's story - one of our Team CurePSP NYC Marathon runners. He's running in memory of his father for PSP awareness. Thank you, Shayne, for your dedication. #TeamCurePSP #NYCMarathon.
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saltwire.com
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@CurePSP
CurePSP
2 months
She’s joined by Dr. Janis Miyasaki, neurologist and co-director of a CurePSP Center of Care at @UAlberta, who highlights the value of compassionate, team-based care. A moving conversation on resilience, technology, and support for those living with PSP.
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