Nine years ago I realized there was something seriously wrong with me. I was constantly tired, no matter how much coffee or water I drank or the healthy foods I ate. No matter how many hours of sleep I got or how many hours of work I reduced. Resting for too long would cause

RT @AChVoice: “#JointPain can make it difficult to simply walk around or go up and down stairs, let alone do daily chores or exercise. #Art….

RT @AChVoice: “It wasn’t until I personally became #disabled that I truly grasped the concept of #ableism. I found myself belonging to one….

RT @AChVoice: “#RA makes me feel envy of those who can hold down a #FullTimeJob. I never thought I would miss #working so much. RA makes me….

RT @Arthritis_ARC: @Arthritis_ARC senior scientist @LLi_1 highlights importance of authentic patient & public engagement in #research + off….

💊 From fears around side effects to the stigma of medications, we tackle the tough questions with Dr. Hazelwood as he shares insights on risks and benefits, and why treatment can change lives. 💥Available on all major podcast platforms, just look up “Arthritis Life Podcast!”

RT @LupusCanada: Lupus doesn’t look the same in men. They’re more likely to face organ damage, pleurisy, seizures, and forms like discoid….

RT @serenebutterfly: "I’ve lost self-confidence, a lot of sleep, and sometimes, all hope. Coping with these emotions and finding a way out….

RT @ACR_Journals: ✨ New this week in Arthritis Care & Research. No increased risk of thyroid cancer in patients with newly diagnosed RA.htt….

RT @Arthritis_ARC: 📣 New Research Results: As AI becomes embedded in daily life, @Arthritis_ARC researchers looked at accuracy of ChatGPT r….

RT @eular_org: 🙌Thank you for attending the #EULAR2025 Congress!.We hope you had a memorable experience!. 📺Access the On-demand Congress Pl….

RT @ACR_Journals: Risk of developing systemic autoimmune rheumatic diseases related to long-term exposure to fine particulate matter was in….

RT @AChVoice: "It might be my way of saying “Hey, don’t forget about me. I haven’t forgotten about you; I am just dealing with something at….

RT @OMERACT: The June 2025 edition of the OMERACT Newsletter is out! Thanks to the 120 participants from 20+ countries for attending OMERAC….

RT @Arthritis_ARC: Have #arthritis? Sometimes flares and serious complications make visiting the ER unavoidable. We’ve got tips to help you….

I have a number of projects around a hot topic I am noticing - #MedicalGaslighting. So I had a moment of creativity because this topic is weighing heavy on my mind. Quote from a presentation where I spoke about my difficult journey to get a diagnosis of #RheumatoidArthritis.

We are busy recording three episodes this week - We'll be busting myths and highlighting evidence around Sleep, Medications and #AxialSpondyloarthritis by interviewing experts! Stay tuned @realcc .#RheumaticDisease #Podcast

RT @Arthritis_ARC: An #arthritis diagnosis can be overwhelming at any age. Find out what @Arthritis_ARC Senior Scientist and Physiotherapis….

And it is a good thing we did, this is the cost it was to keep him alive for the last few weeks.

I am exhausted. #FuckCancer

As always, I put my presentation into a blog post. #PatientAdvocate .