If someone calls themselves a mental health advocate but you run a mile when bipolar, or schizophrenia comes up, you're not an advocate. Learn the basics about mental illnesses, support us all, not just the "acceptable" conditions.
Worst things someone in the MH profession have said to me in crisis...
"You only have bipolar 2, that's the easy one"
After I disclosed I was worried about my safety because my brother took his own life too "yeah but that wasn't bipolar that was just depression"
Let's share!..
I am bipolar but I read about other psychiatric disorders like schizophrenia, and CPTSD, DID, etc. because I want to understand how my neurodiverse peers experience life with their condition. I know others do the same, and we all support each other and I just think it's beautiful
My CBT therapist: How do you usually cope with your depressive and psychotic episodes?
Me:....I mean, I don't?
Honestly that's such a weird question, I don't "cope", I just somehow survive.
Okay so I've been told that needing background noise to sleep is common in mental illness and can be because of a fear of abandonment...hands up if this you too 🙋🏻♀️
So today after seeing a psychologist, it seems like:
Psychologist: empathetic and listens, cares about how you feel, includes you in decisions
Psychiatrist: isn't really arsed, wants to give you more meds, they're right you're wrong
If someone with a mental illness opens up to you, dont try and give advice on medication. That's what our psychiatrist is for. Don't try and give advice on wellness techniques. That's what our therapist is for.
Just be a friend, that's what we need you for.
@samueljmargrave
@sophie_e_hill
Wow what? No. So we should be thankful that they're normalising women "giving up their hopes and dreams" to have a family? What century are you living in?
One of the most difficult and dangerous things about episodes of mental illness is how alone it makes you feel.
It isolates you not only from reality, but from your support network. It manipulates what you believe, see, feel...until you believe fully that you are alone.
Hey so everyone remember to check how many meds you have left and make sure you have enough to see you over the holidays. Get your requests in ASAP if you need more because its going to be busy!
Symptoms and episodes themselves can create trauma in people with Bipolar Disorder. I personally have had terrible flashbacks to times I've been in psychotic episodes. It's a deeply distressing thing to go through
I've been told "I expect a lot from you" because I'm a high achiever. The thing is, when I achieve something, I've fought 1,000 battles to even get there. And I can't always. Sometimes I need to stop, I need some slack, understanding, some recognition just for being me.
Today's my birthday. I've made it to 39, thanks to Team Mel. I'm appreciating the sun today, and thinking about the people who support me and make my life possible 💗 you all are a part of that, so thank you
So after my meeting with my psych last week about my bipolar meds, I finally got the care plan in the post today. Imagine my surprise when he's decided to pop on a little extra dx of EUPD that I've never had, or even mentioned in the plan. I'm fucking fuming at the mistake 🙃
I've always had OCD, but people ask me why I've never been completely open about it until recently.
One word: stigma.
There's a reason it's called the silent mental illness. I still keep obsessions mostly private, but I'm determined to be vocal in changing perceptions of OCD.
We don't HAVE to recover, or even suffer, silently anymore. As people with mental illness, we have the opportunity to be visible and help shape the change in perception that society has of us. And what's more, if we're vocal, we help others also suffering...
I went out tonight with my workmates for a meal. It was so lovely, but it reminded me how quickly my battery can be drained by noise and socialising. Made sure I'm home at a good time and resting so I don't overdo it. Anyone else feel like they need to do the same?
#bipolarclub
I think it takes a certain kind of person to be friends with someone who's mentally ill. My friends are few, but they are made from that special kind of fabric
I don't have any memories before bipolar or OCD. Some of my earliest memories are steeped in monolithic feelings if sadness and despair, even as a kid. I don't know what's worse...having a "before" to yearn for or never knowing life without mental illness.
One of the toughest things about mental illness is not having control of your own mind. Like sometimes it feels like you're watching a shitshow unfold but you can't do anything about it. It's distressing.
Everyone's all "talk about mental health" until shit gets real, then they expect you to go into the woods and sit on a rock until it passes and you're socially acceptable again.
Sometimes I wish there was something that could be seen in a blood test, or a scan, or DNA swab that showed bipolar. Not only would it be easier to dx, but it would validate me when I'm having a "what if I'm making all this shit up?!" day.
#bipolarclub
#bipolar
What OCD isn't: I've put all the labels the right way because I like them to look neat
What OCD is: I've put all the labels the right way because if I don't something terrible will happen happen my family and this will save their lives
I'm high functioning, but I deserve care when I'm struggling. I'm high functioning but I can still fall HARD. I know even when I am struggling, I can still deliver and get stuff done, but don't take advantage of that. Allow me the choice to stop if I feel I need to.
#bipolarclub
I've had an idea. Nap rooms for people with mental illness. If we get tired of all the shit in our heads we get to go and have an hours power nap at any time of day.
I was recently told in a bipolar Facebook group that because I work and can eat most of the time, my depression "must be that bad or non-existent". It's always worse hearing shit like that when it's coming from inside the house.
#bipolarclub
My psych insists on calling hallucinations "sensory disturbances", like yeah that sounds less scary but doesn't feel accurate. Sensory disturbances can be many mundane things...which aren't hallucinations, so why confuse matters?
Getting an official diagnosis:
🧠 validated my experiences
🧠 helped me understand myself better
🧠 helped me stop masking
🧠 encouraged me to advocate for myself
🧠 made sense of my past experiences
🧠 helped me find the right treatment and peer support
I wish it was possible to explain symptoms of mental illness to someone who doesn't have it. It's such a personal, abstract, multi-sensory experience that putting it into words feels impossible to me.
A friend commented on how great it must be when I'm hypomanic. People seem to think it's ace looking from the outside in...if only I could convey actually how horrible is, during and after the episode
@VeryBadLlama
Those are the songs of our people...they play the stories of our past, our glory, our downfall. All through the medium of 3 blind mice being tooted out badly.
I can't remember which, but a book I read recently described stable periods in Bipolar like feeling as if it's a dragon soundly sleeping beneath the house. Like you're carefully walking around, being careful not to wake it. And I've really got those feels.
I've made a big pink happy pill! I'm going to be making lots of these for sale in various funky-arse colours and some smaller versions too. I'll be making donations to Bipolar UK from the profits. If you're interested and have a colour in mind let me know!
#bipolarclub
#bipolar
When you're in a good stable and happy period, there's always that feeling of "this feels really nice...how long will it last?" and looking out for symptoms reaaalllyyyyy sucks.
It's just dropped into my brain that "my therapist is literally paid to pretend to give a shit about me and how I feel" and now I'm completely stuck in an existential crisis
I think the point in my bipolar I feel with the most intensity and the most beauty is when I'm on the way up out of a depressive episode. I feel everything phsyically, like a tingle, like warm sun on my face, like I'm floating in tranquil sunlight.
#bipolarclub
"I want to help because I care" is a lovely sentiment. Its means a lot. But people need to remember that mental illnesses are serious medical conditions. They require medications and can be life threatening. 1/2
Neurortpical people don't understand the impact of a MH diagnosis. They're like "wellll you've always had it, now it just has a label?". Well yes Samantha I have always had it but I didn't KNOW I did. I didn't know other people experienced this thing, I thought I was alone. 1/
So apparently my psych "copied the EUPD diagnosis off my last care plan" which I can't find, and neither can my GP who looked through my records for me. What the FUCK is the NHS doing. I swear they cause 80% of the stress in my life when they're supposed to help me.
There are so many symptoms I've experienced all my life that I didn't know was any different to the norm, and was actually bipolar. I thought everyone lost touch with reality sometimes, had suicidal ideation, intrusive thoughts, persecutory delusions, etc.
Got my 5th kyu today. The biggest fight for me me is always ignoring the voices screaming "you ain't fuckin good enough to be here tf you doing??", fighting tears, but I did it. I beat it today and I'm 100% focused on purple now.
Your intrusive thoughts are so intense that they're squeezing up against the inside of your skull and you can't stop it...what do you do to try and distract yourself/break the cycle?
As someone with mental illness, please stop pressuring me by always expecting me to fight my demons, to be resilient and able to pick myself up every time. Sometimes I need to just crash and cry because that's the only time in my life I can catch my breath in the constant war.
My first wristband designs are made! They'll be ready to buy on my etsy store shortly. This is my first design and if they're popular I'm going to make a bunch more...what do you think?
#bipolar
#bipolarawareness
#bipolarclub
Please somebody else tell me that they have this thing in psychosis where they keep seeing inanimate objects as something else? Like for 2 weeks I've been seeing every pile of clothes, pair of shoes, basically anything on the floor as a cat.
I listened to a really good talk about living well with bipolar this morning. "Eat a healthy balanced diet, and cut out junk foods" he said, as I sat, having a Twix for my breakfast.
When I was first diagnosed I thought medication was the answer. The ultimate key to wellness that would fix me completely. But now I realise it's half of the book, not the whole story. Therapy and ongoing learning is just as important, and the health service need to catch on.
I'm only recently diagnosed. I went straight back to work right after appointment, but my head was spinning. It still is almost 2 months later. There was no after support and I worry that the weight of it will suddenly hit. This is a struggle of being high functioning.
During a period of hypomania I developed an obsession that I had to shoplift something. I literally couldn't sleep for days planning out in my head where and how I was going to do it in detail. I never did, but that was a very strange week indeed.
Has anyone managed to actually see their mental illness as not so much as illness...but just a type of brain? An operating system, that can actually have positives?
The last nugget from my psych appointment which left me thinking "wut??" was that he said "people with Schizoaffective disorder aren't able to hold lucid conversation, they're mostly in hospital" which is a world away from the people I know, who are very articulate and eloquent.
With the help of Healthwatch and an advocate I'm making a formal NHS complaint about my previous psych adding EUPD to my care plan without my knowledge or input. They do this shit all too often without any repercussions, but I'm not leaving it.
Navigating the health service as someone with a mental health disorder can be difficult, even traumatic, down in a huge part to poor staff training. It's getting better, but there's a huge way to go. Some of the things I've encountered:
So I already knew that auditory hallucinations were the most common type across all psychiatric disorders, but I just discovered that it's actually Bipolar that has the highest rate of visual hallucinations? Surprising and interesting.
Do symptoms ever hit you so hard, and feel so overwhelming that you literally just want to sit on the floor, wherever you are? Like suddenly there's a monolithic weight on you and you can't move.
#Duringpsychosis
I thought everyone was having secret meetings about me, trying to get me fired. One day I came in and was convinced the office had been redecorated and moved around to try and confuse me, and everyone was gaslighting me by pretending it hadn't.
I'm still trying to get to grips with the fact that my life will never been the same again after Dx. I don't understand what I'm supposed to be doing about it.
#bipolarclub
I'm hoping my beautiful twitter fam can help...I'm still trying to organise a free mental illness stigma bashing online event, with speakers on a range of topics. I've got 1 interested, can anyone recommend people who they'd like to hear from at something like this? Please tag!