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Nick Bird Profile
Nick Bird

@adamsappeal

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Dad to Adam, who died age 9 of neuroblastoma cancer in 2013. Chair & Research Trustee @ Solving Kids' Cancer UK. Patient Advocate - NCRI, NHSE, ITCC, CCI-E ++.

Epsom, UK
Joined February 2009
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@DrScottArthurMP
Dr Scott Arthur MP (Edinburgh South West) 🌍🌈🌹
7 months
Today, I was honored to welcome Kira the Machine, her mother Aud, and Emily from @SKC_UK to my office to discuss my Rare Cancers Bill. Kira, a remarkable young woman from Edinburgh South West, was diagnosed with aggressive neuroblastoma at age eleven, a tumour that was a
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@adamsappeal
Nick Bird
9 months
What a bunch of scammers @APCOAUK are! Issue me a false penalty notice. Then make it AS DIFFICULT AS POSSIBLE to appeal or get in touch with them. Claim I'm not the driver having not asked me if I was the driver. We can email you but you have to write to us.
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@adamsappeal
Nick Bird
9 months
Quite the honour and quite the surreal experience too. Delighted to find myself awarded an MBE in the 2025 New Year Honours List.
@SKC_UK
Solving Kids' Cancer UK πŸŽ—
9 months
We are delighted to share that our wonderful Chair of Trustees, Nick Bird, has been awarded an MBE in the 2025 New Year Honours list for his exceptional services to research and advocacy for children affected by neuroblastoma. Read more at: https://t.co/2HIiv3k4ER
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@adamsappeal
Nick Bird
10 months
I am sure this will resonate with many. Very interesting and insightful read.
@NIHRinvolvement
NIHR Involvement
10 months
πŸ’¬ "I am not there to really point out any of the issues. I am there just to get on with it." - a #PPI study participant. Have a read of this interesting blog from our colleagues at @ARC_S_L, all about the unseen labour of patient and public involvement:
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@adamsappeal
Nick Bird
10 months
Great to see this finally published – the output from two @cci_europe multi-stakeholder workshops on randomised clinical trials. Big thanks to my co-authors for participating in the meetings and producing the manuscript. Biggest thanks of all to my partner in crime @NicSco!
@JAMANetworkOpen
JAMA Network Open
10 months
These 8 multistakeholder consensus recommendations for RCTs of new therapies for children with poor-prognosis cancers balance the pressing need for new therapies and the need for rigorous scientific evaluation. https://t.co/3OK8ujxcQo @adamsappeal @cci_europe
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@adamsappeal
Nick Bird
10 months
Great to see this finally published – the output from two @cci_europe multi-stakeholder workshops on randomised clinical trials. Big thanks to my co-authors for participating in the meetings and producing the manuscript. Biggest thanks of all to my partner in crime @NicSco!
@JAMANetworkOpen
JAMA Network Open
10 months
These 8 multistakeholder consensus recommendations for RCTs of new therapies for children with poor-prognosis cancers balance the pressing need for new therapies and the need for rigorous scientific evaluation. https://t.co/3OK8ujxcQo @adamsappeal @cci_europe
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@adamsappeal
Nick Bird
10 months
Fame at last for Jake! πŸ‘‡πŸ˜‚
@itvfootball
ITV Football
10 months
πŸ“’ PUBLIC APPEAL πŸ“’ If you are this person then please send us a picture of your view! πŸ“ΈπŸ˜… #EmiratesFACup
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Nick Bird
11 months
If ever there was any more evidence needed that many cyclists are a law unto themselves ...
@NFBUK
NFBUK
11 months
WARNING: We filmed at the Elephant & Castle Floating bus stop late last month. The clip includes a rental e-bike rider crashing into a child. The floating bus stop designs are not safe & they need to be urgently halted please.
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@SKC_UK
Solving Kids' Cancer UK πŸŽ—
1 year
Sharing stories of families affected by neuroblastoma can offer support and hope to others going through a similar experience. These stories not only raise awareness about childhood cancer but also motivate people to get involved. πŸ“§ communications@solvingkidscancer.org.uk
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@SKC_UK
Solving Kids' Cancer UK πŸŽ—
1 year
πŸ“’ We want to give a massive shout-out to the @zimmerbiomet team who took on a mammoth 100-mile charity cycle last month! Cycling over two days from Swindon to Bridgend, the team have so far managed to raise over Β£12,500 for our newest named fund, The ForeverSIX FundπŸ™Œ
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@adamsappeal
Nick Bird
1 year
Wonderful and amazing Kira πŸ’›πŸŽ—οΈ
@SKC_UK
Solving Kids' Cancer UK πŸŽ—
1 year
Kira is 21 years old. She was diagnosed with cancer when she was 11 years old πŸŽ—οΈ #KidsGetCancerToo #ChildhoodCancer #Neuroblastoma #ChildhoodCancerAwarenessMonth #CCAM #ChildhoodCancerResearch
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@SKC_UK
Solving Kids' Cancer UK πŸŽ—
1 year
Kira is 21 years old. She was diagnosed with cancer when she was 11 years old πŸŽ—οΈ #KidsGetCancerToo #ChildhoodCancer #Neuroblastoma #ChildhoodCancerAwarenessMonth #CCAM #ChildhoodCancerResearch
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@SKC_UK
Solving Kids' Cancer UK πŸŽ—
1 year
We were honoured to be invited to the premiere of @CwC_UK's documentary, β€˜Kids Like Us’, an incredibly moving film following eight children navigating life after a cancer diagnosis πŸ’› Kids Like Us raises important awareness of childhood cancer and you can watch now on @skytv.
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@SKC_UK
Solving Kids' Cancer UK πŸŽ—
1 year
We are delighted to confirm that double Brit-award Nominee singer-songwriter @EllaHenderson will be performing at this year's @SKC_UK Christmas Concert on 16 December in London 🀩 🎟️ Tickets will be on sale Wednesday 2nd October at 10am πŸ‘‡ https://t.co/qkwLpgaQTk
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@USAmbKyiv
U.S. Ambassador to Ukraine
1 year
Horrifying images from Okhmatdyt Hospital, Ukraine’s largest children’s hospital, which provides treatment to children with cancer & other illnesses, and was struck during Russia’s massive missile attack this morning. Our thoughts are with the children and their families.
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@SKC_UK
Solving Kids' Cancer UK πŸŽ—
1 year
πŸ“’The next SKC Parent Conference, featuring the latest research and treatment insights from experts, will take place on 8-9 March 2025! And we're hosting it as a hybrid event, welcoming families in person and keeping it accessible virtually 🌍 Stay tuned for more details! πŸ’›
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@adamsappeal
Nick Bird
1 year
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@NeuroblastomaUK
Neuroblastoma UK πŸŽ—
1 year
Today is #ClinicalTrialsDay, recognising the commitment & dedication of those working on clinical trials. 6 year old George is cancer-free following his treatment on the BEACON clinical trial in 2021. Read George’s story here: https://t.co/EOoQDOmGHE #CTD2024
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@SKC_UK
Solving Kids' Cancer UK πŸŽ—
1 year
🚨Today, we are launching our pre-election manifesto: #KidsGetCancerToo πŸŽ—οΈ πŸ“’We are calling for a focused effort by the next Government to bring in newer, more effective #childhoodcancer treatments. Read the manifesto and share πŸ‘‡ https://t.co/zKUOryklJT
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