Action for A-T
@ActionforAT
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Raising money for medical research into Ataxia Telangiectasia (A-T) - rare, neurodegenerative, genetic disease leading to disability and premature death.
UK
Joined January 2012
Huge congratulations to all the @QuestLondon students who graduated today. Their fundraising efforts raised over £17k for more A-T research we are so grateful for their generous support. Enjoy the party tonight guys, you’ve earned it. #teamwork #ataxiatelangiectasia @rorybremner
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Huge thanks to our good friends at @StewartGolf and their generous customers for helping us raise £15,000 via their online auction. These funds will be committed to new A-T research in the coming weeks. #CharityGolf #CollaborationForACure #ataxiatelangiectasia #thankyou
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RT @StewartGolf: Only 24 hours remaining in the @ActionforAT charity auction, with some incredible prizes on offer:. ⛳️ Golf for 4 at Holli….
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🚴♂️ Roger Sibley is cycling 2,000 km around Europe to support @ActionforAT and raise awareness for children with #AtaxiaTelangiectasia 💙. Follow his journey & help turn every km into a step toward a cure:.🔗 #RogerRides4AT #RareDisease #CycleForACause
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Today we’re proudly going #RedForResearchDay2025!. Every red outfit worn supports vital research into rare diseases like Ataxia-Telangiectasia (A-T). Join us, wear red, and help drive forward the science that gives hope. 🔬❤️. #RareDiseaseResearch #ATawareness
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The @LondonMarathon ballot results are being sent this week & entrants will find out if they have secured a place. If you or someone you know would like to join the 2026 @ActionforAT team please ask them to get in touch as we have a number of places available. #runningforresearch
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Please visit our online auction site to view the amazing prizes on offer.
Throwback to our last golf day with @ActionforAT at The Oxfordshire ⛳️. Our 2025 auction, in support of Action For A-T is now live with a variety of incredible prizes and experiences on offer. Check out the full list of auction items here:
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We were delighted to receive £2500 from the president of @EpsomRotary yesterday. The funds were raised at their centenary ball & will be committed to new A-T research in the coming weeks. Please join us in thanking everyone involved for their generous and valued support.
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What a night. Huge congratulations to the @QuestLondon students for delivering a fantastic event raising £17,000 for more research into A-T. They say it takes teamwork to make the dreamwork, these guys were incredible & totally smashed it. #futureleaders #teamwork #Ataia
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Huge thanks to Simon Toon & everyone who played in the Ryder Cup style golf match at @Royal_Norwich this weekend. The Rest of World Team were crowned champions & along with team England, raised £12,000 for more A-T research. Great work guys, bring on 2026 for the rematch. 👏🙏
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A huge THANK YOU to @HSFCharity for donating £2,000 to support our research into repurposing existing drugs for children with A-T. 💙. 🔗 #ThankYou #ActionForAT #RareDisease #MedicalResearch
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We are delighted to share details of our recent study at @ucl exploring Omaveloxolone efficacy in Ataxia-telangiectasia funded thanks to your generous support. Click on the link for more details .
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Please vote for Action for A-T to help us secure £5,000 for more A-T research. Click on the link below to nominate us, it only take 1 minute & could make a massive difference.
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Please join us in congratulating our @LondonMarathon team as all 19 runners completed the course. They endured the heat & conquered the greatest marathon in the world raising an incredible £64,000 along the way. If you were inspired & would like to take next year, message us.
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Ready to receive the guests at the A-T Ball at Lythe Hill Hotel & Spa. Looking forward to another fun evening raising much needed funds for A-T research.
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Huge thanks to the captains of @HortonParkGolf for raising £3,347 for more A-T research during their 2024/25 tenure. If you or someone you know will be captaining their club, please consider @actionforat as a charity partner.
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RT @TVNaga01: Golf day Alert! 🚨. If you fancy joining us on June 17th @Moorparkgolf there are still some spaces for you to get a team toget….
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Wishing all of our supporters a Happy Easter Weekend. The office is now closed until Tuesday 22nd April. #HappyEaster
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Join @ActionforAT & our incredible patron @TVNaga01 at our annual golf day at @Moorparkgolf in association with @UKGInc. Message us to book your team.
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Looking for a meaningful #CSR partner? 💼💙.Support @ActionforAT and help fund life-changing research into a rare childhood disease. Small charity. Big impact. Real change. 👉 Learn more: #CorporateResponsibility #ActionForAT #RareDisease
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