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Action for A-T Profile
Action for A-T

@ActionforAT

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Following
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Raising money for medical research into Ataxia Telangiectasia (A-T) - rare, neurodegenerative, genetic disease leading to disability and premature death.

UK
Joined January 2012
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@ActionforAT
Action for A-T
10 days
Huge congratulations to Chris Spedding for completing the New York Marathon yesterday. Please also join us in thanking Chris as his efforts generated £3,800 for more A-T Research. Rest well Chris, you deserve it. #runningforresearch #ataxiatelangiectasia #charityrunner #newyork
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@ActionforAT
Action for A-T
20 days
Huge thanks to Stephen Russell of Clarion Golf & everyone who attended the Clarion Pairs event at @WoburnGC yesterday for our final golf day of 2025. £13k was raised & these funds will be committed to new A-T research shortly. See you on the fairways in 2026. #charitygolf
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@ActionforAT
Action for A-T
1 month
Run for Research in the 2026 TCS London Marathon! Action for A-T has 4 guaranteed places available — and they’re waiting for passionate runners like YOU. Visit https://t.co/e90mbblWlV for more details.
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@ActionforAT
Action for A-T
1 month
Huge congratulations to the @Brightwake team for completing their 272km, "Way of the Roses" cycle ride from Morecambe to Bridlington. The team battled through some tough conditions, over 3 days, but all completed the ride safely raising £10,391 for more A-T research 💪🙌🙏
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@ActionforAT
Action for A-T
1 month
The team at @Brightwake are cycling 270km for @ActionforAT — inspired by Emilia, diagnosed with A-T at just 6 weeks old 💙 Every mile = hope. Every donation = progress. Thank you, @Brightwake, for riding with heart 🙌 #BrightwakeForAT #CycleForACure #EmiliasJourney #RareDisease
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@ActionforAT
Action for A-T
2 months
One week on from the Constellation Automotive Group walk & cycle event, we are delighted to confirm that £100,000 was raised for more A-T research. We are so grateful to everyone who took part plus sponsors & volunteers for their incredible support. @cinchuk @MarshallMotorGp
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@ActionforAT
Action for A-T
2 months
The sun shone, the greens ran true & the donations were generous at the stunning @royalautomobileclub yesterday. £13,200 was raised for more A-T research. Thanks to everyone who supported and congratulations to all of the prize winners #charitygolf
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@RJYanezMunoz
Rafael J. Yáñez-Muñoz
3 months
I am raising sponsorship funds for @ActionforAT: https://t.co/hpgijD3gai. This September I will ride the "French" Camino de Santiago (478 mi/770 Km) in support of @ActionforAT, which has funded my lab's research project https://t.co/MyaQndNvJh. Please sponsor if you can, thanks
Tweet card summary image
justgiving.com
Help Rafael Joaquín Yáñez-Muñoz raise money to support Action for A-T
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@ActionforAT
Action for A-T
4 months
Huge congratulations to all the @QuestLondon students who graduated today. Their fundraising efforts raised over £17k for more A-T research we are so grateful for their generous support. Enjoy the party tonight guys, you’ve earned it. #teamwork #ataxiatelangiectasia @rorybremner
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@ActionforAT
Action for A-T
4 months
Huge thanks to our good friends at @StewartGolf and their generous customers for helping us raise £15,000 via their online auction. These funds will be committed to new A-T research in the coming weeks. #CharityGolf #CollaborationForACure #ataxiatelangiectasia #thankyou
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@StewartGolf
Stewart Golf
5 months
Only 24 hours remaining in the @ActionforAT charity auction, with some incredible prizes on offer: ⛳️ Golf for 4 at Hollinwell, Royal St. Georges & Moor Park 🏝️ Trips to Jamaica, Barbados & Spain 🎟️ Once-in-a-lifetime experiences View all prizes here 👉 https://t.co/vhpxUxxiOe
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@ActionforAT
Action for A-T
5 months
🚴‍♂️ Roger Sibley is cycling 2,000 km around Europe to support @ActionforAT and raise awareness for children with #AtaxiaTelangiectasia 💙 Follow his journey & help turn every km into a step toward a cure: 🔗 https://t.co/2YE922PIHY #RogerRides4AT #RareDisease #CycleForACause
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@ActionforAT
Action for A-T
5 months
Today we’re proudly going #RedForResearchDay2025! Every red outfit worn supports vital research into rare diseases like Ataxia-Telangiectasia (A-T). Join us, wear red, and help drive forward the science that gives hope. 🔬❤️ #RareDiseaseResearch #ATawareness
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@ActionforAT
Action for A-T
5 months
The @LondonMarathon ballot results are being sent this week & entrants will find out if they have secured a place. If you or someone you know would like to join the 2026 @ActionforAT team please ask them to get in touch as we have a number of places available. #runningforresearch
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@ActionforAT
Action for A-T
5 months
Please visit our online auction site to view the amazing prizes on offer.
@StewartGolf
Stewart Golf
5 months
Throwback to our last golf day with @ActionforAT at The Oxfordshire ⛳️ Our 2025 auction, in support of Action For A-T is now live with a variety of incredible prizes and experiences on offer. Check out the full list of auction items here: https://t.co/Uy9jEhMlJP
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@ActionforAT
Action for A-T
5 months
We were delighted to receive £2500 from the president of @EpsomRotary yesterday. The funds were raised at their centenary ball & will be committed to new A-T research in the coming weeks. Please join us in thanking everyone involved for their generous and valued support.
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@ActionforAT
Action for A-T
5 months
What a night.... Huge congratulations to the @QuestLondon students for delivering a fantastic event raising £17,000 for more research into A-T. They say it takes teamwork to make the dreamwork, these guys were incredible & totally smashed it... #futureleaders #teamwork #Ataia
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@ActionforAT
Action for A-T
6 months
Huge thanks to Simon Toon & everyone who played in the Ryder Cup style golf match at @Royal_Norwich this weekend. The Rest of World Team were crowned champions & along with team England, raised £12,000 for more A-T research. Great work guys, bring on 2026 for the rematch. 👏🙏
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@ActionforAT
Action for A-T
6 months
A huge THANK YOU to @HSFCharity for donating £2,000 to support our research into repurposing existing drugs for children with A-T. 💙 🔗 https://t.co/zfE9SD33WW #ThankYou #ActionForAT #RareDisease #MedicalResearch
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@ActionforAT
Action for A-T
6 months
We are delighted to share details of our recent study at @ucl exploring Omaveloxolone efficacy in Ataxia-telangiectasia funded thanks to your generous support. Click on the link for more details https://t.co/s066YYhTWd
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