The first-ever patient and public involvement and engagement (#PPIE) summit in #Pakistan happening right now at Ziauddin University. Follow the session in this thread! 🧵

RT @info_TGHN: How can uptake of research into policy be strengthened?. Join the next Mesh webinar on Advisory Groups for Research in 🇮🇳🇵🇰….

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Huge thanks to @remap_cap for being a champion for patient and public involvement and engagement in #criticalcare.

Thanks to @ISARIC1 for highlighting our public engagement summit in Pakistan in this blog post as well as supporting our activities to bring the patient voice into clinical research. Read more here: #PPIE #communityengagement

A compelling opinion piece shared by my friend and colleague @bharathkumartv: "To make global health truly participatory, the world’s health institutions must adopt a radical approach to listening to everyday people".

Today - Register here: @drarishay and I will share our journey in public engagement in Pakistan with researchers in Brazil. Excited for this South-to-South collaboration and mutual learning with @bricnetbr @SBPPC2016 @Insper and others

Great to end my day reading messages of hope from leading individuals working on health #equity - A field which can often seem like a long list of issues that haven't been solved.

Great to see UK regulators creating guidance to support the design of more inclusive trials! The challenge will be in the uptake, particularly by those who don't already consider diversity. Will contribute to this consultation with @drarishay & encourage others to do the same.

Just registered for this! Really excited to learn more, particularly about the patient and public engagement component of this exciting project. Might be of interest to @drarishay and colleagues in the @africacritical network.

RT @F_lunat: An absolute pinch me moment to have the main ROSHNI2 paper published in @TheLancet . This marks a shift in the years of conver….

Looks like a great event! Unfortunately I won't be in Europe, but would encourage others to attend.

All these pieces of work are hopefully contributing to a more efficient, ethical and socially responsible conduct of trials in South Asia. We hope to publish much of this work soon. Stay tuned and follow me and @drarishay if you'd like to keep up to date.

Empowering Patients - Revising Informed Consent Processes for Critical Care Trials in Pakistan. Our public group has worked with us to make informed consent for @MegaROXtrial and @remap_cap more culturally sensitive and relevant in the Pakistani context

Strengths, weaknesses and applicability of the PRECIS-2 tools in low and middle-income countries. Through a systemic review and 20 focus groups, we've looked at their relevance in South Asia. Lots of lessons learned that we hope will inform PRECIS-3 @FrancesShiely

Who are we missing from pragmatic ICU trials?. Analysing data from Pakistan (@PRICE_critcare) and Nepal (@NepICRF) we showed that older patients with comorbidities from poorer and more rural geographical areas are not represented adequately in our critical care trials

Your step by step guide to public engagement in clinical trials in Pakistan. We set up the first ever public group to support the design, conduct and reporting of trials in Pakistan with support from @MORUBKK. Read more about it here:

What does being a pragmatic trial mean in South Asia?. We evaluated 3 international trials (@remap_cap @MegaROXtrial RECOVERY). Absent post-discharge follow up and poor physician and public understanding of trials constrained their incorporation into usual care

Last week I attended @ictmc2024 where @drarishay and I had the privilege of sharing our work with three posters and two oral presentations. Highlights from our work on pragmatic trials, consent redesign, public engagement and representativeness in trials in South Asia below 🧵

Attended the first ECHO learning platform for trialists organised by @CANTAPTALENT . A clear informative talk by @lmbuagbaw on pilot & feasibility studies. This interesting @PLOSONE article came up when discussing how such studies may prevent research waste - Worth a read

RT @shauntreweek: @ictmc2024's final keynote speaker @kamleshkhunti is guest editor with @ShobaDawson of a new Trials journal article colle….

RT @GilliesKatie: .@TimoTolppa giving a fab talk by telling us a story about the complex cultural problems in the consent process for an IC….