The next chapter, "A Date with Redemption," is up on my #blog! It’s definitely different. Link in bio. #FlexOnALS #endals #alswarrior #alsadvocacy #alsawareness #blogger

Today was an up close reminder of how beautiful our hardwoods are. #FlexOnALS

For some reason my last tweet didn’t reach many of you, but I’m happy to announce that my latest chapter "A Date with Redemption" is now available on the blog. I have a link on my profile page. #FlexOnALS

Tomorrow’s (Wednesday’s) chapter will be like nothing you’ve ever seen out of my writing. I’m really excited/anxious to hear your thoughts regarding the direction I’m taking for the end of the book. 📖 #FlexOnALS #blog

Wishing everyone had as fun filled of a Halloween as this Mer-family! #halloween #kingtriton #ariel #halloweencostume #flexonALS

Today would normally be a #blog post day but I’m punting it to later this week on behalf of #Halloween. I want to enjoy all the amazing costumes coming across my feed plus add a few of my own! 💀👻🎃

I’ve been so busy writing I forgot how beautiful Falls are in Kansas City! #FlexOnALS

Also, before she said I was only going to get sicker and die, she saw me move my leg and told me I was so strong! I guess what I’m saying is I wanted to come clean and be 100% honest.

I didn’t feel good about yesterday’s post. I was feeling down and caught off guard by Iris talking about death for the first time. The truth is her therapy has been super helpful in her understanding of what’s happening to me… (1/2)

#TBT to last Halloween where I was still cool cause I could talk and go really fast. Cut to last night and Iris matter ‘o factly told me I was only going to get sicker and then die. The therapy is working. 😭

Thank you @Mayuri_Saxena for your thoughtful gift! My #ALS warrior friend got me a kit to make molds of my hands or my and my girls’ hands holding. Which do you recommend?

As a kid, I remember Pres Clinton saying bc of Pedro Zamora, we all knew someone who was living with AIDS.@ScottFightsALS @bsw5020 are that for me with ALS. Michael J does it with Parkinson’s. Showing one’s life makes us all better. It’s important work. Many thanks. @JuddWinick

In case you missed it… #FlexOnALS #blog https://t.co/wjSIhUTuF9

Thank you for your response to my Hope letter. I was blown away by the expressions of love and great ideas to use going forward. #FlexOnALS 💪

This is a very special #love letter to my youngest daughter and will be the prologue to the book! Up now on the #blog, link on my profile page. #FlexOnALS

This one took everything I had. New #blog chapter tomorrow!

1,227 comments and you better believe that through teary eyes I read EVERY. SINGLE. ONE. Wow. Just wow. #FlexOnALS

.@JamieLW8 & I have decided to accept in-home hospice services. My health took a turn for the worse and we needed to shift goals. This doesn’t mean I plan on dying in the near future. Some stay on #hospice long term. But I’m feeling the full weight of #ALS and could use some ❤️

#AMX0035 becomes the the third @US_FDA approved drug for #ALS! This is a rare victory for this community and deserves celebration. #FlexOnALS 💪

FYI #ALS families, there’s a relatively new telehealth service for pALS that I really wish was around to help me when I was first diagnosed. It’s called @synapticure and I’m honored to be on their advisory board. I ADVISE you to check them out! #endALS #FlexOnALS