Synapticure
@synapticure
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Following
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Personalized virtual neurology care for neurodegenerative diseases like Alzheimer's and related Dementias, Parkinson's, ALS, and Huntington's
Joined December 2020
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Pinned Tweet
We now provide compassionate, personalized
#MentalHealth
support to patients and caregivers living with
#NeurodegenerativeDiseases
.
If you or your caregiver is looking for extra support, we are here for you ❤️
Want to learn more? Click below
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We have lived ALS. Today, ALS care is hard. It doesn’t have to be. We built Synapticure to make ALS care easy, accessible and personalized for all. If you or a loved one are living with ALS click on this link to find out more:
#NewEraOfHope
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We are so excited to publicly launch with this story by
@maureenmfarrell
in
@nytimes
. This telemedicine company will bring personalized care to all living with ALS. Together, we'll leave behind the era of, "I'm sorry, but I can't help you."
#NewEraOfHope
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"You’re pushing for better access to care and more support for caregivers." - Dr. Jill Biden,
@FLOTUS
.
Yesterday was a big day! Our co-founders,
@bsw5020
and
@sabrevaya
, brought the fight for improved health care and caregiver support to the
@WhiteHouse
.
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One last story about
@bsw5020
and
@sabrevaya
to close out the year on
@NewsHour
. Grateful for the work they've done for neurodegenerative disease and in the ALS community with
@iamalsorg
.
#ENDALS
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To people living with
#ALS
,
#PLS
&
#Parkinsons
, thank you for trusting our Synapticure team with your
#neurology
care.
➡️
#teleheath
#neurotwitter
#MedTwitter
#EndALS
#parkinsonsdisease
#seniorcare
#EndPD
#telemedicine
#parkinsonscare
#ALSwarrior
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“Tragedy is a call to action, especially with family.”
Meet Peter Wallach, our co-founder and Chief Financial Officer, who shares his incredible story about how his brother’s ALS diagnosis led him to start Synapticure.
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It can be difficult to access
#mentalhealth
care when you need it. That’s where Synapticure comes in. Our psychologists are expertly trained to help families dealing with
#neurodegenerative
diseases navigate grief, build coping skills & find better ways to practice self-care.
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Thanks to
@CBSSunday
for sharing the story of
@synapticure
's cofounders who were diagnosed with a fatal disease and decided to change access to
#healthcare
for people with
#ALS
& other
#neurodegenerative
diseases likes
#Alzheimers
,
#dementia
&
#Parkinsons
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We are thrilled to announce that Synapticure has received IRB approval to launch a study treating presymptomatic carriers of pathogenic ALS-associated genes with Riluzole.
What, exactly, does that mean?
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This isn't just Brian's diagnosis, this is OUR diagnosis.
And caregivers need care too.
~
@sabrevaya
Join us tonight at 7 pm ET to learn about
@synapticure
's new Mental Health support team that's here to help patients & their families with
#ALS
,,
#Parkinsons
,
#Alzheimers
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Over the coming weeks, we want to better explain how we help patients living with ALS through patient stories. From insurance navigation, benefits and VA access, ALS clinic referrals and appeals for insurance coverage, we're here to help.
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We are in awe of the tireless advocacy of the ALS community and clinicians. We want thank the AdCom and the
@US_FDA
for the recommendation to approve AMX0035. We hope that approval will come quickly for all people living with ALS.
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"I have been amazed at how this program really supports me and wraps me in care". -
@bsw5020
To learn more about our Collaborative Mental Health Care Program, click below to register for our webinar on Monday, January 22nd:
If you are living with a neurodegenerative disease, comprehensive mental health support is now available for you, your caregivers, and your family at
@Synapticure
.
To learn more, click below to register for a webinar on Monday, January 22nd.
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Thank you
@TrilliantHealth
,
@DevinCarty
,
@martinventures
for hosting the Trilliant Summit fireside chat featuring
@synapticure
founders, Brian Wallach and Sandra Abrevaya as they shared their inspiring journey of advocacy for families affected by
#neurodegenerative
diseases.
#ALS
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We've seen a few questions about family histories of ALS and genetic testing, so figured we'd tackle them here.
1/4
The best way to end ALS is for all of us to get genetic testing. If you do, it will unlock new treatments like Tofersen.
If you have any questions or have not yet had testing,
@synapticure
is here for you.
Visit to learn more.
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If you read
@people
magazine, you might see a few familiar faces in the latest issue!
Synapticure's co-founders
@bsw5020
and
@sabrevaya
sat down for an interview about their unrelenting fight on behalf of the
#ALS
and
#neurodegenerative
communities.
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Let's Talk Trials!
Check out our blog, where we discuss the urgency in getting an
#ALS
diagnosis & factors that impact your ability to qualify for & choose a
#clinicaltrial
.
#EndALS
#ALSclock
#neurology
#LouGehrig
#Neurotwitter
#Medtwitter
#familypractice
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We’re honored to announce that The Michael J. Fox Foundation for
#Parkinsons
Research (
@MichaelJFoxOrg
) has formed an advisory relationship with Synapticure!
⬇️PRESS RELEASE
🧵(1/3)
#ParkinsonsDisease
#PDWarrior
#EndPD
#telehealth
#telemedicine
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If you're new to us, there's no cost for signing up and finding out more. If we can help (or you aren't sure and would like to find out more), feel free to grab time with our team here
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Synapticure has launched a remote respiratory monitoring program, which allows our care team to monitor your SVC in real-time and inform the care you receive. We're grateful to our early test users, and excited to roll this out to all of our patients soon.
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On Global
#ALS
Awareness Day,
@synapticure
's co-founders share their vision:
"We are turning hope into action every day.
And that action can & will change the world for those living with ALS"
JOIN OUR FIGHT!
#EndALS
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Excited to now be live for teleneurologists visits in 41 States. Welcome Colorado! 9 more to go.
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As of today, Synapticure's ALS care is now live in 45 States AND
@bsw5020
's home town, Washington D.C.
Marching to all 50 across neuro.
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.
@ScottFightsALS
and
@JamieLW8
, Synapticure patient and caregiver, are sharing how Synapticure makes their life with two little ones so much easier.
2
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Synapticure's founders began their ALS journey by bringing patient voices to Congress.
Now, they're helping establish the first-ever virtual clinic for neurodegenerative diseases. Synapticure is built by patients, for patients.
#ALSAwarenessMonth
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There are <300 ALS and <700 PD specialists in the US for 30,000 and ~1M patients, respectively. Traveling all day for most patients to receive care is a burden; seeing patients when they need care with the existing infrastructure is near impossible. That's why we exist.
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Synapticure was co-founded by a patient and caregiver.
We believe that changes everything.
(1/4)
This photo is from October 2017. Two months after I was diagnosed with ALS.
On the outside, I look normal but on the inside, I was spinning with questions and uncertainty about my future.
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Being a
#caregiver
is a profound commitment to making a difference in someone's life. It's a journey that requires compassion, empathy, resilience, and a loving support team.🫶
At
@Synapticure
we are here for you❤️
On the last day of National Family Caregivers Month, I want to share that being a caregiver has been the single hardest experience of my life.
It is incredibly painful, overwhelming and I often feel like with Brian's illness I have lost my own identity, my freedom, my own life.
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Synapticure launched with a New York Times story one year ago today. Since then, we’ve had the privilege of supporting nearly 1,000
#ALS
,
#PLS
, and
#Parkinsons
patients.
1/6
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54
.
#OTD
ALS took the life of
#LouGehrig
in 1941.
@MLB
now celebrates
#LouGehrigDay
on June 2nd, honoring the
@Yankees
' slugger by helping raise awareness & research funding for
#ALS
, the disease that ended Gehrig's Hall of Fame career at 2,130 games.
0
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.
@synapticure
is proud to announce we have been selected as an Established Participant in
@CMSGov
's GUIDE program, serving families living with dementia as part of GUIDE starting July 1st in all 50 states.
Learn more:
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51
Our co-founders
@bsw5020
and
@sabrevaya
shared with the
@garybisbeeshow
why they created Synapticure, and how Synapticure’s platform and Care Coordinators create the next level of continuity of care.
ALS is a devastating diagnosis, Brian Wallach and his wife Sandra Abrevaya are working to reframe the narrative around
#ALS
to focus on hope
Today on
#TGBS
@bsw5020
&
@sabrevaya
, founders of
@iamalsorg
and
@synapticure
, share their story
Watch here -
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Exciting update: Synapticure is now live in 48 States and Washington DC! If you live in any state except South Dakota and Delaware (working hard to get those soon!), our MDs are ready and able to see you.
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This
#NurseAppreciationWeek
, we're especially thankful for the incredible
#Synapticure
nurses that support our patients & care partners every day.
If you're fighting
#Parkinsons
,
#ALS
, or
#PLS
, reach out today and see for yourself how amazing they are!♥️
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Sandra and Brian, our co-founders and a resilient husband and wife team, give a moving behind-the-scenes look into their lived experiences advocating for person-centered care for neurodegenerative diseases.
#RHSummit23
@Rock_Health
#digitalhealth
@bsw5020
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What is Synapticure? More importantly, how can it help those living with Neurodegenerative diseases and their loved ones?
Hear our story and why we exist to provide cutting-edge care that is personalized and compassionate directly from our co-founders 👇
Today, let's start with a question many of you have asked. What the heck is
@synapticure
?
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"Speed."
"Hope."
"Discover."
"Something new."
We think we're onto something when patient feedback sounds like this.
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42
Let's go, Bri! We love seeing
@synapticure
's fearless co-founder increase his step count and continue saying, "Not today, ALS. Definitely not today."
If you want to learn more about in-home PT, give us a shout--we'd love to help you get started.
#ENDALS
Today, I want to talk about physical therapy as it has helped me go from walking 4 feet to 16 feet in eight weeks.
Let’s get physical…therapy
If you have any questions about how to get it in your home or how much it costs, I know someone who can help:
@synapticure
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“If there’s a single thing I can add to the universe coming out of this illness, it is to build something that helps caregivers.”
Our CEO, Sandra Abrevaya, shares her powerful journey as a
#caregiver
with
@PMDAlliance
in the face of a terminal illness:
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12
43
On the heals of
@biogen
's approval today of Tofersen,
@brookcroke
explains what we understand so far for eligibility, how to engage with ATLAS, and more regarding the journey to today . We'll be updating as we learn more:
1
11
43
Did you know that 32,000 Americans are living with
#ALS
?
Beside each of those 32,000 patients are care partners, family, and friends who want a better future for those who hear the words, "You have ALS."
We're working to create that future. Will you join us?
#alsawarenessmonth
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"This was my wake up call...when I came face-to-face with how important access to quality care is to ALS patients and how too many patients do not have that access."
Meet Dr. Geraldi, one of our amazing Neurologists and learn about her incredible journey.
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Take 30 seconds to listen to Ada's tips for those newly diagnosed with ALS.
Wow--we are in awe of our patients.❤️
What tips would you share with newly diagnosed pALS?
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🤔 How much does Synapticure cost? Hear directly from our co-founders!
Our mission is to democratize care, making it accessible financially and geographically. Your first consultation with a care navigator is at no cost. Ongoing care should be covered by most insurance.
#RoonALS
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We're excited to share that Synapticure has partnered with the
@alsassociation
to expand access to ALS care nationwide! Here's to setting a new standard of care for ALS while reducing the burden on individuals and families.
Learn more:
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41
A step by step guide to what happens next for AMX0035, from our care team at Synapticure.
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Sabrina Johnson is
@synapticure
's Insurance Navigator. She also was a
#caregiver
for her father, who lived with
#ALS
.💙 Read how her empathy-driven caregiving transformed into a motivational and fulfilling career.
Blog Here ➡️:
@MDAorg
@bsw5020
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Over 1M Americans are battling Parkinson's, but 70% are not receiving care from a
#parkinsons
#neurologist
.
We believe all patients deserve specialized care so we established a virtual
#ParkinsonsClinic
that you can visit from the comfort of home.
#EndPD
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"You guys have given him hope. You've given him a new lease on life.” - Caregiver to Synapticure patient
We are so proud to support patients and caregivers on their
#mentalhealth
journey. Your bravery and resilience inspire us every day🌟
📽️Full video:
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Kicking off Monday with our first prior-auth approvals for Relyvrio, with more to follow. Hope to see many new treatments over the coming years in ALS.
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Wanna know the best part of our Monday?
Hands down, today's highlight was watching Carla and Denby's amazing video about their experience with
#Synapticure
😍
We're honored to support their
#ALS
journey and we'd love to do the same for you. Enroll today:
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Today is Rare Disease Day.
Every day, people living with rare diseases navigate isolating, difficult diagnoses and are forced to fight for care.
We're honored to support those patients, and we know all too well that one day is not enough.
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We are incredibly proud of what we accomplished in 2022. From launching a national care coordination network to moving to 45+ States of licensed and trained neurologists support, to getting in-network with major payers and partnerships we've built with brick and mortar clinics.
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As we kick of 2024, we want to remind everyone who we are:
@synapticure
provides expert neurologist and wrap around care including care coordination, Behavioral Health, SLT, insurance navigation, PT / OT / RT, EAPs, clinical trial support and more for patients living with...
1
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36
Synapticure is personalized care for all people living with ALS. See how Synapticure works:
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Wanted: Physicians who are passionate about care and democratizing care through innovation in
#telemedicine
. To join our growing team, apply below.
#neurotwitter
#neurology
#AANEM
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Insurance shouldn't be hard to navigate; we’re here to guide you through it.
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.
#OTD
84 yrs ago,
#LouGehrig
gave his "Luckiest Man" speech
2 yrs later on June 2nd, he died of
#ALS
Today we fight to expedite treatments & improve care for people with ALS
#4thofJuly
#July4th
#Yankees
#Yankeestwitter
#baseball
#fireworks
#EndALS
#MLB
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Another day, another state added to our coverage! Welcome to our family, South Dakota. Synapticure now operates in 49 States and DC.
Now just missing The First State...
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🚫 Planes, Trains & Automobiles
Living with
#ALS
, Brian knows first-hand that traveling to clinics becomes increasingly difficult
Synapticure is here to ease that burden
Meet with our
#neurologists
from the comfort of home
➡️
#telehealth
#telemedicine
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Our new blog is live! Our first post features one of our incredible Care Coordinators, Danielle, who shares her "why" on joining Synapticure.
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8
35
🚨Join us tomorrow for Hilarity for Charity’s Annual CareCon, with special guests like
@Trevornoah
, to empower and support those impacted by Alzheimer’s Disease.
Founded by
@Sethrogen
and
@IamLaurenMiller
,
@WeAreHFC
is bringing light to
#Alzheimer
’s while improving care. (1/2)
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36
We believe that every patient and patient family member with neurodegenerative disease should have access to genetic testing, should know about their rights for retesting, and when better tests have emerged.
Many patients for example received a sponsored test that didn't...
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Imagine a world where every neurodegenerative disease patient -- not just those with access -- got modern, standardize diagnosis and molecular testing, including genomics, to deliver targeted treatment and dramatically reducing the time cost of drugs like Tofersen and Zolgensma
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Brook Croke, one of Synapticure’s genetic counselors, explains why genetic testing and counseling is valuable for every pALS and their family, as well as for those who may be pre-symptomatic gene carriers, whom we are now enrolling.
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"With ALS, you can never have too much care.
@synapticure
just integrates ... with your care and it's really a beautiful thing."
We couldn't have said it better if we tried, Donald. Thank you for being in our corner; we will always be in yours.❤️
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When you have a
#RareDisease
like
#ALS
,
#PLS
or
#Huntingtons
, few neurologists have expertise in your disease, less know about clinical trials & almost none understand the unique mental health burdens in your disease.
At Synapticure, we wanted to change that.
#RareDiseaseDay
1/2
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"I'm approaching my care in a fight mode...I'm going to fight for extra time, over and over."
@sabrevaya
says it all: We're here for those who are fighting, who fought but got tired, and for those who have been scared to try.
We're here, ready to fight together. Let's do this👊
In this clip hear Sandra describe her & Brian's inspiration to launch
@synapticure
a healthcare company offering virtual care for those w/ ALS. Their generous spirit inspires me! Our chat: Visit::
@sabrevaya
@iamalsorg
@bsw5020
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8
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The Michael J Fox Foundation led efforts to introduce a bill called the National Plan to End
#Parkinsons
.
They've made it easy to contact your Congresspeople & ask them to co-sponsor the bill with just a few clicks on their website.
#parkinsonsdisease
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We're starting off 2023 with a bang by hosting our first-ever patient panel on Facebook Live! 🎉
This Thursday at 7:00p ET, four patients and caregivers will share their ALS journeys and why they decided to add Synapticure to their care team.
Block your calendars now!
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31
"We. Love. Dr. Faber."
It feels like we hear that message daily from patients and caregivers who have seen Dr. Faber, one of Synapticure's incredible sub-specialized neurologists. They love him--and we do, too!
See below to learn more about this incredible member of our team 🙌
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A few reminders of why we exist:
1. pALS and cALS carry an enormous burden of managing care outside the clinic, included finding DME, mental health, PT, etc.
2. We bring ALS-trained neurologists to all 50 States
3. We reach patients we are often left out of ALS clinical care...
1
9
31
We started Synapticure with one hope: to reimagine
#ALS
care..
Turning that hope into reality hasn't been simple--but, we think we're on the right track when feedback sounds like this.
Synapticure is built for patients, by patients.
⬇️Give us a try today
2
7
30
In neurodegenerative disease, Feb' 22 story counts as a lifetime ago. From a small care coordination program to a 45 state, in-network medical practice, we're just getting started. Come find out the future of care at home in our bio.
#ENDALS
#ENDParkinsons
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We're here for one reason: to make sure you as a patient or caregiver receive the best care possible, via digitally enabled tools we offer, via your clinic partners in person, or with (and helping to build) your local support network.
We can do better, and are here to help.
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9
28
Synapticure is now offering compassionate and personalized mental health support for people and caregivers living with
#Alzheimers
,
#Dementia
,
#ALS
,
#PLS
,
#Parkinsons
, and
#Huntingtons
.
Register here to learn more about our collaborative program:
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Last week
@synapticure
and
@iamalsorg
co-founders Brian Wallach and Sandra Abrevaya provided a heartfelt testimony during the introduction of the "Promising Pathway Act".❤️
#ALS
#patientexperience
#advocacy
#healthcare
@bsw5020
@sabrevaya
@SenatorBraun
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If you are living with PD, ALS, or PLS: Synapticure is now in-network with United Healthcare!
If you have UHC, your co-pay to see a Synapticure MD from your own home is usually the same or lower than going in person.
Click below to calculate your copay:
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PLS patients, like ALS and other neurodegenerative disease patients, deserve better care.
This is Sherry's story.
#PLS
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We hope everyone has a restful remainder of 2022, take time with those close to you, remember what's important in life, and celebrate the little things.
For those who can use help living with ALS, PD or other neurodegenerative disease, we hope to see you in 2023.
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We've had a lot of people ask for mobility support, so our physician and care coordination team decided it was time to more closely partner with DME suppliers. Find out how Synapticure can help with mobility support with partners like NuMotion here:
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Hearing testimonials like this reminds us why we're here: to bring much-needed support and care to those living with neurodegenerative diseases 💙. We're proud to be on your team.
Interested in learning more about our mental health program? Click here:
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26
For those curious,
@costplusdrugs
has made Riluzole available for $8.10/month for 30 tablets. You can find out more at the link below:
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25
We're excited about this one(!)...
On Monday, tune in to hear Dr. Jinsy Andrews and Dr. Danielle Geraldi discuss ALS care today. They'll cover promising treatments in the pipeline, limitations of ALS care today, and how Synapticure partners with clinics.
1
10
26
Learn from our very own Dr. Geraldi about how Synapticure helps
#ALS
patients obtain Riluzole, oral Radicava, and Relyvrio.
We'll work with you every step of the way, from prescription to insurance approval. Reach out today--we'd love to get started together!
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7
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Patients have become so used to the separation of specialty neurologists and care coordination that it seems normal to be left alone to manage medications, symptoms, DME and medical care.
But it's not normal -- patients with Parkinson's and ALS/PLS deserve better.
#wpc2023
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"Synapticure is my partner. I feel like team at Synapticure cares about what's happening to me and they're there for anything that I need."
We're here to 👂listen to, 🤝support, and 💪empower every patient--nothing more, nothing less.
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It's been seven months since this was published. In that time for ALS we've launched care coordination in 50 states, neurologist services in 41 States, GC services in all 50, and added remote spirometry. This is just the start.
#endALS
#neurotwitter
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Full clinical services for PD, ALS and PLS, available via telehealth and near on-demand, covered by insurance and partnered with your current care team, to make sure you can live life to your fullest while fighting these diseases. That's what we do.
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🚨
@ParkinsonDotOrg
receives research grant to expand genetics study🧬
We're moving one step closer to understanding
#ParkinsonsDisease
and unlocking new treatments🧪
We're thrilled about the potential breakthroughs this could bring to our patients and the PD community.
We are thrilled to announce the Parkinson’s Foundation is receiving a grant from
@ASAP_Research
. 🔬 This grant will be used to significantly expand our international genetics study, PD GENEration: Mapping the Future of Parkinson’s Disease. (1/2)
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Wow.
This tweet from
@BehanStrong
made our entire team's morning.
It's not easy to remake the
#ALS
care journey. But, we believe that it's right, and for many on our team, it's deeply personal.
So we're going to keep building--for Pat, and for you.♥️
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"There is more hope in even the smallest things."
We're always touched to hear such positive feedback from those we serve! We're committed to democratizing access to cutting-edge and compassionate care while putting patients AND caregivers first. 🧑⚕️❣️
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Welcome to Synapticure, Joe! 🥳
We're thrilled to announce that Joe Leinbach has joined Synapticure as the company's first Chief Operating Officer.
Learn more here ⬇️
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On
@CBSSunday
Morning, Synapticure's co-founders talked about prioritizing patients’ & caregivers’ voices in public policy &
#healthcare
, & why they launched a
#telehealth
#neurology
clinic to improve access to care in
#ALS
,
#Parkinsons
&
#Alzheimers
.
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With the Michael J. Fox Foundation as our newest advisor, Synpaticure is excited to improve access to specialty
#Parkinsons
#neurologists
Feedback like this that makes our day!
Improving
#ParkinsonsCare
- from the comfort of home!
⬇️ LEARN MORE:
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