
Sail for Epilepsy - Phil Haydon
@sailforepilepsy
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Neuroscientist with TBI induced epilepsy, sailing the world's oceans to inspire, raise awareness, raise funds for research & educate. #sail4epilepsy
Boston, MA
Joined May 2018
#ProtecttheNIH @EpilepsyFdn @AmericaEpilepsy @AmEpilepsySoc @CureEpilepsy @TuftsMedSchool @TuftsUniversity @NBC10 @NBC10Boston @amyklobuchar @MassAGO @JohnsHopkins @fredhutch @BrainsExplained @VirusesImmunity @TristanSnell @lpackard @UCIrvine @ucdavis @Rep_Magaziner.
Dr. Philip G. Haydon, President of @SailForEpilepsy and an internationally recognized neuroscientist who lives with #epilepsy, shares his thoughts on the severe impact of NIH funding cuts:
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During #EpilepsyAwarenessMonth, we are sharing the amazing things our Virtual Shipmates are doing, to live a full life despite epilepsy! Sean, from Yorkshire, England, is sailing around the world with @ClipperRace. Follow along at: .#sail4epilepsy
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Phil and co-skipper Alex spend one last day out on the water for the 2023 training season. With their sights set on the @BdaRace in June 2024, training will begin again in April, after a series of winter projects. #sail4epilepsy @EtsJeanneau @NorthSails.
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We applaud @Norwood_Library for displaying a selection of books in honor of #EpilepsyAwarenessMonth. Visit your local library and encourage them to do the same!.@jenniferlcroft.@sam_kean.@natasha_pulley.@CMaccarald.@JHUPress.@mskarlam.#sail4epilepsy
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Dispelling some of the myths about #epilepsy. Please share so that together we can all educate and raise awareness. #sail4epilepsy #epilepsyawareness #EpilepsyAwarenessMonth
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During #EpilepsyAwarenessMonth, we're highlighting ways our Virtual Shipmates are taking One More Step to live fuller lives. Haley decided to learn to play the guitar, even though she wasn't sure she could do it. This summer she gave us an update. Great job, Haley! #sail4epilepsy
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November is #EpilepsyAwarenessMonth! I believe the stigma surrounding epilepsy is due to lack of knowledge. We can help combat this by talking about #epilepsy. I use sailing to encourage conversations about my epilepsy journey. What will you do to raise awareness? #sail4epilepsy
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This weekend's training run marked the 26th voyage leg sailed in 2023! To highlight the prevalence of #epilepsy (1 in 26 people will develop epilepsy in their lifetime) we set a 2023 goal of sailing 2600 nautical miles consisting of 26 independent legs:
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This past week we had the pleasure of meeting epilepsy communities in Canada and WA State. It seems that no matter what state or country we visit, we meet individuals affected by #epilepsy who continue to inspire us. Photos and reflections: #sail4epilepsy
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unspoken symphony provides non-verbal ways of communicating. It all started when a father explained some of the challenges of having a non-verbal child who suffers from rare forms of #epilepsy. Hear & see our symphony! Try it out yourself: #sail4epilepsy
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We had moments of sheer joy, made an error, had moments of frustration, and near the end, several minutes of furious conditions which were the most challenging that I’ve ever sailed in. Solo-Twin Race recap: #sail4epilepsy #offshoreracing #epilepsy
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What does Phil do the night before a race? One critical item is planning the voyage route, based on the predicted wind speed and direction. #sail4epilepsy #epilepsyawareness #sailing #epilepsy #offshoreracing.
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Tomorrow Phil & Alex are competing in the Solo-Twin, race from Newport, RI. They will sail for 3 of our Virtual Shipmates, who live on 3 different continents, but are connected by #epilepsy & participating in the One More Step Challenge. #sail4epilepsy.
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Thanks to @TalkAboutItorg for the inspiring conversation about #epilepsy and ways we can all set goals and overcome challenges. Have a watch and please share! #sail4epilepsy.
NEW EPISODE dropped today, featuring @sailforepilepsy and a surprise celebrity special guest! Hosted by @greggrunberg. Available wherever you grab your pods, and on video here: #EpilepsyAwareness
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Looking forward to attending this event as a special guest and meeting the local epilepsy community. If you live in the area, I hope you can join us. Visit to buy tickets and learn more. #sail4epilepsy.
On Sunday August 13th from 11:30 AM to 2:30 PM, we will be holding our 64th anniversary party at Charles Rummel Centre in Burnaby with special guest Dr. Phil Haydon from #SailforEpilepsy! Visit to buy tickets #Epilepsy #EpilepsyAwareness #BCEpilepsySociety
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Meet one of our Virtual Shipmates, Jared, & his family! Phil and Jared first connected by live video while Phil was sailing across the Atlantic Ocean and we've been inspired by his positive attitude despite facing continued challenges: #sail4epilepsy
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Last night was spectacular for the stars & planets. I always enjoy finding the North Star & think of all our Virtual Shipmates that we’ve met in port stops and taught how to find this same star. As the morning broke we were back to clouds. #sail4epilepsy
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Less than one day until the double-handed return race from Bermuda to Newport: "It looks like the first 24h will be sporty with winds at 22kts gusting to the mid 30s and then they will subside, a little." #sail4epilepsy #epilepsyawareness #bermuda12
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A key part of any Sail For Epilepsy voyage is sharing it with our followers, especially our Virtual Shipmates. What tools does Phil use for this while he's sailing hundreds of miles offshore? @GarminMarine @Garmin @IridiumComm @thalesgroup #sail4epilepsy .
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"Now that I’ve gotten some rest I’m reflecting on the past 5 days. I’m not actually sure what day it is, but what I do know is that there are key moments that rise to the top of my mind, when I think back." Enjoying the Moment: #sail4epilepsy #bermuda12
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