CURE Epilepsy
@CureEpilepsy
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CURE Epilepsy is the leading nongovernmental funder of epilepsy research, with over 300 grants funded in 18 countries to date.
Chicago, IL
Joined March 2011
Our community makes it possible to unlock the doors holding back progress. We find and fund innovative scientists and projects - ones looking beyond the status quo and rethink what is possible in the world of epilepsy research. (Video made possible by Whitten-Newman Foundation.)
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Mark your calendar: UNITE to CURE Epilepsy on Tue, 9/30! We support @CUREepilepsy's mission to end epilepsy. Meet Dr. Rachel June Smith + team advancing research. Donations matched $1-for-$1 by Brackenridge families! 👉 Donate: https://t.co/OOvUQKQN0W
#EpilepsyAwareness
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FUTURES TRADERS: Get 40% off all evals, no activation fees, end-of-day drawdown in our live-market PRO+ accounts…and still daily PRO payouts!
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Mark your calendar! 📆 9/30 is UNITE to CURE Epilepsy, our annual day of community, solidarity, and giving. During UNITE, you’ll meet Dr. Rachel June Smith and the budding scientists working in her lab. Get the ball rolling by making a gift today: https://t.co/3p6kv4WVc0
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We were thrilled to sponsor the 2025 Night of Discovery Gala by @CureEpilepsy this weekend in Chicago. A powerful evening with families, researchers & advocates united for a cure. https://t.co/iiJ2ZTFLoR
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🧬 #NIH renews its commitment to #raredisease research with an $8.6M grant to support neurodevelopmental studies via the Rare Diseases Clinical Research Network, led by OHSU. Focus: ultra-rare neurogenetic disorders, better diagnostics & treatment. 🔗
scienmag.com
In a groundbreaking advancement for the field of neurodevelopmental genetics, Mustafa Sahin, MD, PhD, Neurologist-in-Chief and Chair of the Department of Neurology at Boston Children’s Hospital,...
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This Epilepsy Explained answers questions about PTE, like: 🧠 Treatments and how effective they are 🧠 If a person suffers head trauma, are they at risk for the rest of their lives? 🧠 Are some meds better at treating depression in people with PTE? Watch:
cureepilepsy.org
Dr. Pavel Klein, MD, Neurologist and Epilepsy researcher, explains post-traumatic epilepsy (or PTE), seizures that result from traumatic brain injury (or TBI). Dr. Klein discusses who is most at risk...
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📢 NIH’s FY26 budget may see a modest bump: $46.9B advanced by House subcommittee, a big shift from earlier proposed 40% cut. Final numbers still pending Senate talks. Continuing resolution (CR) likely by Sept 30 to avoid shutdown. #NIHbudget #ScienceFunding #EpilepsyResearch
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New research links neonatal infections like sepsis and meningitis to a higher risk of childhood epilepsy, especially focal epilepsy. Early prevention and treatment could play a vital role. 🧠🦠 #EpilepsyResearch #ChildHealth #NeonatalCare 🔗 More details:
cureepilepsy.org
Exploration of the association between early-onset neonatal infection, specifically sepsis and meningitis, and childhood epilepsy.
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UCLA researchers used stem cell‑derived assembloids to show how SCN8A variants trigger cortical hyperactivity and impair hippocampal rhythms. This new model may explain cognitive challenges beyond seizures and open avenues for better treatments. Read more:
newsroom.ucla.edu
The new research points to the distinct effects that a single disease-causing gene variation can have across different regions of the brain.
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🔬 Epilepsy Research News: Hippocampal low-frequency stimulation (LFS) in a mouse model of drug-resistant focal epilepsy (MTLE) led to: 🔻 Reduced seizures 🧬 Reversed memory deficits 🧠 Better synaptic health 🔗 Read more:
cureepilepsy.org
Insights into the seizure type-specific effects of hippocampal low-frequency stimulation, and support for the idea that it could contribute to enhanced seizure control and quality of life in Mesial...
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This weekend at #IEC2025, our CSO Dr. Laura Lubbers joined Dr. Dan Lowenstein for the Presidential Symposium on inclusive, patient-centered epilepsy care. She also shared updates on SUDEP Common Data Elements led by CURE Epilepsy. #ILAE #SUDEP #epilepsyresearch
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You can now find us on Bluesky! Follow us at https://t.co/FsT1QhPnmI to stay up-to-date on epilepsy research and key updates. https://t.co/bA3fd0Z46p
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Thank you so much to our Night of Discovery Platinum and Diamond Sponsors! We are so grateful for their generosity and commitment to finding cures for epilepsy. There's still time to join us as a sponsor of this year's Night of Discovery! Learn more here: https://t.co/0pB9fbMeyu
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Standardized preclinical Common Data Elements and Case Report Forms may transform SUDEP research. Aligning how variables are recorded improves reproducibility, cross-study comparisons, and discovery of biomarkers and targeted interventions. Read more:
cureepilepsy.org
The develop of SUDEP Common Data Elements (CDEs) and Case Report Forms to enable standardization and translation of preclinical SUDEP data.
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Parents and caregivers of children with #epilepsy can face new challenges and may feel uncertainty during the transition from youth to adulthood. Learn more from @CureEpilepsy about transitioning from pediatric epilepsy care to adult epilepsy care here: https://t.co/kYKnQlXVj0
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Fostering a community is different than just raising dollars. That's why we support groups like @CureEpilepsy @YAWECoast. -- Do you regularly contribute to an epilepsy nonprofit? #NationalNonProfitDay #EpilepsyAwareness
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ICYMI: From #lab discovery to #clinicaltrial in just 3 years — an FDA-approved drug for one disease is now giving hope to kids with rare epilepsies like SLC6A1 and STXBP1. Read more: https://t.co/AlDNNLQJ88
#epilepsy #raredisease #epilepsytreatment #fdaapproved
cureepilepsy.org
Repurposing currently FDA-approved drugs fast-tracks treatments for epilepsy, including the treatment of rare forms of epilepsy.
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💡 “If the funding stops, that’s only going to impede things in progress.” @UWMadison’s Barry Gidal discusses how #genetics, #neurotech & #CBD are reshaping treatment and why #research funding is critical. 🔗 https://t.co/spBKToRyco
#researchfunding #uwmadison #clinicalstudies
wpr.org
According to a Wisconsin clinical pharmacist, advancements in epilepsy treatment research include genetics, medical devices and prescription CBD.
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Panayiotopoulos Syndrome is a rare #epilepsy affecting young children, often misunderstood. Journalist Scarlette Whyte shares her family's dual diagnosis experience on Seizing Life. 🔗 Tune in: https://t.co/pktDPd6IQ7
@TvScar #pediatricneurology #epilepsyresearch #neurology
cureepilepsy.org
This week on Seizing Life®, journalist, television executive, and mother Scarlette Whyte joins us to share her family’s experience with Panayiotopoulos Syndrome, a type of early childhood epilepsy...
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Why can dogs detect seizures before they happen? 🐕 Join us September 4 at 5 PM CT for a webinar “Epilepsy Service Dogs: The Science Behind the Sniff" to learn more. Register: https://t.co/zE4DCDqmz0
#epilepsyresearch #servicedogs #neuroscience #servicedogawarenessmonth
cureepilepsy-784.my.webex.com
Simple, modern video meetings for everyone on the world's most popular and trusted collaboration platform.
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🧬🔬💊 A hopeful discovery: phenylbutyrate, an existing FDA-approved drug, may help reduce #seizures in rare #genetic epilepsies like #SLC6A1 and #SYNGAP1. This could speed up treatment timelines for families urgently seeking options. https://t.co/TbvQKmxeJs
cureepilepsy.org
Repurposing currently FDA-approved drugs fast-tracks treatments for epilepsy, including the treatment of rare forms of epilepsy.
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