The Bonnell Foundation
@RoadmapToCF
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The Bonnell Foundation: Living with Cystic Fibrosis provides financial assistance, Educ. scholarships, & resources to navigate life with CF. #CFMomof2girls
Michigan
Joined September 2011
Donated to our silent auction! Thanks Sue Roebuck!!!! We could use more books and board games if you can donate! PObox 1215, Royal Oak, MI 48968. TY
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New Episode Drop! Laura is joined by 5 fierce advocates who took their voices to D.C. to influence policy with persistence, personal stories, and heart. They share how to move lawmakers, connect with staff, and turn passion into impact. #EveryVoiceMatters.
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New episode that’s NOW yours to enjoy!. Here’s what you can expect from this episode:.- How to connect with legislative staff.- The power of personal stories in advocacy.- Tips for staying organized and flexible.- Ways to advocate from home.- The emotional rewards of speaking up
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New Episode Drop! Laura is joined by 5 fierce advocates who took their voices to D.C. to influence policy with persistence, personal stories, and heart. They share how to move lawmakers, connect with staff, and turn passion into impact. #EveryVoiceMatters.
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We will tune in. Thanks Gunnar!.
I was on the Leerink Center for Pharmacoeconomics podcast this week to talk about the impact of biotech innovation, as well as the time, effort, and capital that goes into developing new treatments. We covered everything from DTC pharma ads to affordability and the cost of R&D.
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Behind the scenes of advocacy in DC:.- How personal stories move lawmakers.- The power of persistence.- Advice for first-time advocates. Listen to five voices that made an impact on July 21st, on @Spotify or watch on @YouTube!. Host: @LauraTbonnell
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New episode, out Monday, July 21st! Meet five incredible advocates who took their voices to DC + expert guests from biotech, policy, & IP law. From first-time advocates to seasoned pros - hear how real change happens. Host: @LauraTbonnell
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Thank you @MissAmerica Abbie Stockard for coming on our Living with cystic fibrosis podcast. She’s raising awareness about CF! Abbie is 22 years old, a nursing student and changing the world for the better! Hear our podcast on September 8 th! @ViatrisInc @VertexPharma #advocacy
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What’s it like to walk the halls of Congress and fight for change?. Five advocates just did it - and shared everything. From nerves to breakthroughs, it’s all in the next episode. Listen on Monday, July 21st, on @Spotify or watch on @YouTube. Host: @LauraTbonnell
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In this episode, five passionate advocates reflect on their trip to DC, and experts dive into biotech, policy, and innovation. A must-listen for anyone driven by change, advocacy, or big ideas. Watch on @YouTube or listen on @Spotify on Monday, 7/21. Host: @LauraTbonnell
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If you live in Colorado, and or on any of the below meds, or know someone who is. they need your help to advocate! Please do what you can to help.
Live in CO & take Enbrel, Simponi, Humira, Cimzia, or Remicade? Join us Friday, July 11, to speak out against forced medication changes made for cost, not care. Help protect your access to the treatment that works for you. Learn more: Please share!
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From NY Social Worker: "Katie, an Amish woman w/ CF, couldn’t access grants online. We applied on her behalf and thanks to the Bonnell Foundation, she now has the oxygen support she needs to keep farming.".Community. Compassion. Access. #CF #BonnellFound #HealthEquity #CFstrong.
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When families in the CF community lost vitamin coverage, @MVWNutritionals asked if we could help. We said YES. Together, we supported 75 families. Listen on @Spotify or watch on @YouTube today! .Host: @LauraTbonnell .Sponsors: @VertexPharma @ViatrisInc
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Buy the book here:
focolaremedia.com
The Roses Speak: A Chronic Illness Journey explores the reality of living and dying with a chronic disease through the eyes of the cystic fibrosis community. Encompassing 100 voices from ten...
Our friend Dr. @JimmyMenkhaus (who has CF) has written a book! You can preorder. The Bonnell Foundation's @LauraTbonnell is featured - with many other Foundation CEO's. Proceeds from the book goes to Foundations but you have to buy it and designate us!
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Our friend Dr. @JimmyMenkhaus (who has CF) has written a book! You can preorder. The Bonnell Foundation's @LauraTbonnell is featured - with many other Foundation CEO's. Proceeds from the book goes to Foundations but you have to buy it and designate us!
docs.google.com
Thank you for purchasing "The Roses Speak: A Chronic Illness Journey" by James Menkhaus. 100% of the author's proceeds from books purchased from New City Press will be donated to organizations who...
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"We start with a yes." How wonderful it is to hear! MVW Nutritionals - the podcast out today!
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Proud to work with partners like @MVWNutritionals who don’t wait to act. They ask: What do you need? And they start with yes. More of this, please!.Tune in on Monday, July 7th - listen on @Spotify or watch on @YouTube. Host: @LauraTbonnell.Sponsors: @Viatris @VertexPharma
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A great article. You'll know more after reading it. Thank you Dr. Chung.
🌟 Join us in creating a sustainable future for rare disease research! Engage, share stories, and advocate for medical research! #RareDiseaseResearch #Advocacy #Innovation #Healthcare #PolicyChange #CollectiveImpact
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Don’t Let Rare Disease Patients be Left Behind with Research Cuts
linkedin.com
As Congress faces consequential decisions about federal research funding and drug pricing reforms, patients like me are watching closely. For the rare disease community, these policy choices aren’t...
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I love working with people who lead with YES. That’s what happened with Mike Walters & Jason Vandiver of @MVWNutritionals. Together, we helped 75 CF families. Listen on July 7 on @Spotify or watch on @YouTube. Host: @LauraTbonnell .Sponsors: @VertexPharma @ViatrisInc
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