New episode, out Monday, July 21st! Meet five incredible advocates who took their voices to DC + expert guests from biotech, policy, & IP law. From first-time advocates to seasoned pros - hear how real change happens. Host: @LauraTbonnell

Thank you @MissAmerica Abbie Stockard for coming on our Living with cystic fibrosis podcast. She’s raising awareness about CF! Abbie is 22 years old, a nursing student and changing the world for the better! Hear our podcast on September 8 th! @ViatrisInc @VertexPharma #advocacy

What’s it like to walk the halls of Congress and fight for change?. Five advocates just did it - and shared everything. From nerves to breakthroughs, it’s all in the next episode. Listen on Monday, July 21st, on @Spotify or watch on @YouTube. Host: @LauraTbonnell

In this episode, five passionate advocates reflect on their trip to DC, and experts dive into biotech, policy, and innovation. A must-listen for anyone driven by change, advocacy, or big ideas. Watch on @YouTube or listen on @Spotify on Monday, 7/21. Host: @LauraTbonnell

If you live in Colorado, and or on any of the below meds, or know someone who is. they need your help to advocate! Please do what you can to help.

From NY Social Worker: "Katie, an Amish woman w/ CF, couldn’t access grants online. We applied on her behalf and thanks to the Bonnell Foundation, she now has the oxygen support she needs to keep farming.".Community. Compassion. Access. #CF #BonnellFound #HealthEquity #CFstrong.

When families in the CF community lost vitamin coverage, @MVWNutritionals asked if we could help. We said YES. Together, we supported 75 families. Listen on @Spotify or watch on @YouTube today! .Host: @LauraTbonnell .Sponsors: @VertexPharma @ViatrisInc

Buy the book here:

Our friend Dr. @JimmyMenkhaus (who has CF) has written a book! You can preorder. The Bonnell Foundation's @LauraTbonnell is featured - with many other Foundation CEO's. Proceeds from the book goes to Foundations but you have to buy it and designate us!

"We start with a yes." How wonderful it is to hear! MVW Nutritionals - the podcast out today!

Proud to work with partners like @MVWNutritionals who don’t wait to act. They ask: What do you need? And they start with yes. More of this, please!.Tune in on Monday, July 7th - listen on @Spotify or watch on @YouTube. Host: @LauraTbonnell.Sponsors: @Viatris @VertexPharma

A great article. You'll know more after reading it. Thank you Dr. Chung.

Don’t Let Rare Disease Patients be Left Behind with Research Cuts

I love working with people who lead with YES. That’s what happened with Mike Walters & Jason Vandiver of @MVWNutritionals. Together, we helped 75 CF families. Listen on July 7 on @Spotify or watch on @YouTube. Host: @LauraTbonnell .Sponsors: @VertexPharma @ViatrisInc

Please reach out to your Senators. Urge them to support the "Orphan Drug Fix" to prevent it from being removed during this process. Their support will make a significant difference for rare disease patients. Find your U.S. Senator here: #advocate #rare.

Time to Take Action. The Bonnell Foundation supports the efforts of @AccessRare in regard to the Orphan Cures Act now included in the current reconciliation package being debated in the US Senate. Your immediate action is crucial to ensure its continued inclusion.

We track heart health and steps—but what about our lungs?. Get practical, science-backed tips from a top voice in respiratory health. Out today! Watch on @YouTube or listen on @Spotify. Host: @LauraTbonnell .Sponsors: @ViatrisInc @VertexPharma

Lung health: do you think about it? Todays NEW podacst out today!

We are truly thankful for your continued commitment to the cystic fibrosis community. With sincere appreciation,.Heather.

Your thoughtful contribution has had a direct and meaningful impact on Miss. XXX’s health and well-being. Support like yours not only meets essential medical and nutritional needs but also reminds our patients that they are not alone in their journey.