Psoriatic Disease UK
@PsorOrg
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Patient-led, Person-centred. Awareness • Peer Support • Collaboration. For everyone impacted by Psoriatic Disease. Charity in England & Wales (1209730)
UK
Joined June 2023
Please be aware that we no longer use this platform, but you can find us here: https://t.co/g1eiav3oeF and join our peer support community here: https://t.co/qA8WTdJO5L. 🧡💜
psor.org
The only patient-led organisation in the UK that supports equally those affected by psoriatic disease, including psoriasis, psoriatic arthritis, and caregivers.
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Nominate Psoriatic Disease UK for Movement for Good 12 Days of Giving before the 19th December to give us the chance of receiving a vital £1000 in funding! Nominate here: https://t.co/M9TbD5wfWi
#charity #nonprofit #giving #fundraising
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With everyone sharing their #SpotifyWrapped right now, we wanted to remind everyone of what's on our rotation here at Psoriatic Disease UK. If you could have a 'Most Listened To' message for policymakers, what would it be? #caregivers #psoriasis #psoriaticarthritis #spotify
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Want to join the hottest new peer support space for psoriatic disease on the internet but don't know where to start? Perhaps you have never used Discord before? We've created a step-by-step guide so you can socialise with people who understand in minutes! https://t.co/H7APL7PUEg.
psor.org
Want to join the hottest new peer support space for psoriatic disease on the internet but don't know where to start? Have you never used Discord before? We've created the following guide to walk you...
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As some may know, those behind our new creative patient organisation are big supporters of creating playable spaces to escape and distract from our health conditions. Please help us to build places where you can find relief by telling us what games you play for fun. 👇#gaming
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Thank you, @NASSexercise 🧡💜 To join PSOcial Space:
discord.com
A peer support community for EVERYONE impacted by psoriasis, psoriatic arthritis and associated health conditions. | 87 members
It's important to find your community of people who live with the same condition. Many people with #axialSpA have #psoriasis, so we're sharing @PsorOrg's wonderful community, PSOcial Space. Share your experiences and attend meetups: https://t.co/U1WxDZgzCB
#PsoriasisAwarenessWeek
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🧡PSOR Social is this Saturday🧡 Join us for 12 hours of nonstop gaming as we raise awareness of psoriatic disease by streaming Free2Play* and cross-platform games with you at home to showcase the best that community, peer support, distraction, and escapism have to offer.
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🧡PSOR Social is this Saturday🧡 Join us for 12 hours of nonstop conversation and peer support as we raise awareness of psoriatic disease by sharing our experiences until the clocks go back. Share your story in chat or live on stream, and help us call time on psoriatic disease!
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Has your psoriasis, psoriatic arthritis or associated conditions impacted your career, ability to find work, or employment? If so, a member of our PSOcial Space Discord community wants to hear from you! Join here: https://t.co/qA8WTdJO5L.
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If you're a parent with psoriatic disease, the guilt you can feel for your children who also live with the condition can feel immense. Our Founder shared his experience and advice as a parent living with psoriatic arthritis/psoriasis in this @WebMD film:
webmd.com
An honest account of what parenting is like with PsA. Kids don’t care about your condition, Joel Nelson says, they just want your attention.
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If you're a parent with psoriatic disease, the guilt you can feel for your children who also live with the condition can feel immense. Our Founder shared his experience and advice as a parent living with psoriatic arthritis/psoriasis in this @WebMD film:
webmd.com
An honest account of what parenting is like with PsA. Kids don’t care about your condition, Joel Nelson says, they just want your attention.
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We understand the mental burden of psoriatic disease. If you need help this #WorldMentalHealthDay or ever, talk to somebody. 🧡💜
It’s #WorldMentalHealthDay 🌍 Take that first step to getting help. Save and share this post and help us make sure there’s no mind left behind. You could also try 👇 @PAPYRUS_Charity Hopeline: 0800 068 4141 Text SHOUT 85258 @GiveUsAShout
@samaritans @theCALMzone @TheMixUK
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Have you joined PSOcial Space yet? A unique peer support community for EVERYONE impacted by psoriasis and psoriatic arthritis. Join here: https://t.co/k9deOReQe9
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We are delighted to have more new members join the GlobalSkin family. If you're a dermatology patient organization and want to join our global alliance, learn more at https://t.co/bO6uoeHyWu.
#GlobalSkin #StrongerTogether #PatientAdvocacy #JoinTheMovement
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Read the full press release here: https://t.co/wEiUTiEtso
psor.org
Psoriatic Disease UK becomes a member of the International Alliance of Dermatology Patient Organizations (IADPO)
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We seem to have something to announce every day in this exciting first chapter of our new patient organisation! Keep up with all the latest news on our website here: https://t.co/OdPR0xOwKP, and keep your eyes peeled tomorrow for another announcement! 👀
psor.org
Stay up to date with the latest news, advice and events from our patient-led UK psoriasis and psoriatic arthritis charity.
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Peer support is central to everything we do here at Psoriatic Disease UK. Today, we are delighted to launch our first service offering as a nonprofit that aims to provide direct peer support and community for everyone living with psoriatic disease. Join: https://t.co/uJ0APYwPva
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Researchers at @SalfordUni are looking for working individuals aged 18 and over with Psoriatic Arthritis who are interested in using and providing feedback on the WORKWELL Digital platform as part of a study funded by @VersusArthritis. https://t.co/k02xgDXfWv
psor.org
Researchers at the University of Salford are eagerly looking for a wide range of working individuals with Psoriatic Arthritis
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