Nuevo video de #PabloElRaro! Anoche pude hablar con Sergio Beltrán, director médico de @Roche, sobre la experiencia de los pacientes con enfermedades raras. Estuvo riquísima la tertulia, así que disfruten también de ella!.

About two months ago I was invited on behalf of Rare Disease International’s Youth Leadership Programme on @SciMagWebinars’s Redefining Connection: How young people are shaping the future of the rare disease community through technology and innovation with @YaminaHsaini,

Prepping for the Rare Diseases International event that’s starting soon. Join in and watch live b/c otherwise the FOMO will be real.

Huge boarding ticket and even huge-r excitement for this amazing journey and experience in Geneva! (With a layover in Spain, of coure). Un pase de abordaje grandísimo, y unas ganas aún más grandes de disfrutar esta oportunidad tan increíble en Ginebra! (Claro que con escala en

¿Cómo es esa vaina del Youth Leadership Programme de Rare Disease International el cual eligió a Pablo? ¡Mejor contarles antes de que se monte en un avión rumbo a Ginebra!.

RT @ScienceMagazine: Join #ScienceWebinars for their next #ScienceAndLife broadcast on Thursday, 8 May at 12 p.m. ET ➡️ Redefining Connecti….

RT @SciMagWebinars: Join #ScienceWebinars on Thu, May 8 at 12 PM ET to hear @PabloRamirezU, @RichHorgan, Shandra Trantham & Yamina Hsaini d….

Friends! A few days ago I was lucky enough to be part of this conversation courtesy of @aaas, @ScienceMagazine, @SciMagWebinars, and @FondationIpsen with some incredible people (it was also in a for-real filming studio which was wild??), and I’d love it if y’all were able to tune

It was the people, who made the World Orphan Drug Congress for me (which is why I can confirm that none of those smiles were fake or forced, the whole thing was a delight). Something about meeting people with different areas of expertise, from all across this globe of ours, with

We out here repping @APSType1 and Rare Disease International at the @orphanconf #worldorphandrugcongress

Here we go for the (last day) of the @OrphanConf!

RT @Almagro_OEA2015: En el Día Mundial de las Enfermedades Raras, nos sumamos al llamado a la comunidad internacional para que se una en ap….

RT @fidelcanoco: Los pacientes de enfermedades raras están angustiados por la falta de claridad ante la crisis del sistema de salud y de re….

RT @NoticiasRCN: En el Día Mundial de Enfermedades Raras, desde Fecoer resaltaron las dificultades que viven los pacientes diagnosticados e….

RT @JonnyDiamond: The situation for trans people in America is dire. Please consider donating to orgs trying to change that. .

RT @EEopinion: La súplica de los pacientes de enfermedades raras 🔗👇.

RT @immunedeficienC: Today is #RareDiseaseDay. Those diagnosed with primary immunodeficiency (PI) are #rareandpowerful! Today we shine a li….

RT @NarcolepsyNtwrk: Today is #RareDiseaseDay 2025! A day to raise awareness for the 10,000+ rare conditions and approximately 30 million A….

RT @DanielSamperO: Ojo a esta columna de @RSilvaRomero75, no se la vayan a perder: . "¿Qué tan posible es que esta presidencia, que no ha q….

RT @RSilvaRomero75: La situación se ha tornado tan crítica, que desde Fecoer lanzaron en redes sociales la campaña #MuerenPacientes, con ca….