World Orphan Drug Congress USA
@OrphanConf
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Get regular updates on #WorldOrphanUSA! June 9-11, 2026 | Boston Convention & Exhibition Center
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Joined July 2010
RT @curehspb8: Ever heard of #HSPB8 #Myopathy (MFM13)? Probably not. Check out our poster from the @OrphanConf and if you're feeling bold,….
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RT @AbcuroInc: Our COO, Karen Tubridy, participated in a panel at @OrphanConf on women redefining healthcare, discussing topics including o….
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RT @X4Pharma: Our VP of Sales & Marketing recently hosted a fireside chat with Medical Publisher @CheckRare at #WorldOrphanUSA, a forum foc….
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Last week, we wrapped up #WorldOrphanUSA 2025 – our largest and most impactful edition to date! 🌟 🌟. Our team wants to give a huge THANK YOU to our sponsors, exhibitors, speakers, and attendees for making this year’s event unforgettable. Your passion, insights, and commitment
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RT @CheckRare: Thanks to Terrapin for another successful World Orphan Drug Congress USA! We look forward to our continued partnership with….
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RT @RareDisease_Adv: #WorldOrphanUSA: “The delay of MLD screening equals death for these babies. They cannot wait.”. - Christina Hartman, s….
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RT @laurencurehd: I am exhausted but empowered after the last few days at the @OrphanConf in Boston, especially after today's panel with fe….
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RT @ServaHealthLLC: Day 2 at #WODCUSA is all about the power of partnerships—patient advocacy, storytelling, and building community. It’s i….
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RT @PabloRamirezU: We out here repping @APSType1 and Rare Disease International at the @orphanconf #worldorphandrugcongress .
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RT @SmithSolve: We're at @OrphanConf this week to support our clients and participate in important conversations for rare diseases. We're p….
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RT @RareDisease_Adv: #WorldOrphanUSA: Jennifer McNary, CEO of Canary Advisors, speaking April 23, 2025, at @OrphanConf. @LLuxner #RDAatWOD….
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RT @SumitomoPharma: That’s a wrap on the 2025 @OrphanConf! SMPA was honored to contribute alongside researchers, clinicians and advocates d….
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RT @RareDisease_Adv: #WorldOrphanUSA: "Everyone is not their diagnosis…& we clinicians can’t assume that because we see the world & their d….
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Good morning from Boston! Day 2 of #WorldOrphanUSA 2025 is underway 🌟.After an incredible first day packed with insight, energy, and collaboration, we’re diving into another full day of advancing the future of #OrphanDrug development and #raredisease care. We’re starting strong
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RT @RareDisease_Adv: Rare Disease Advisor is in Boston, MA for #WorldOrphanUSA. Follow along for live updates, expert interviews, and our f….
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🥁 𝘋𝘳𝘶𝘮 𝘳𝘰𝘭𝘭 𝘱𝘭𝘦𝘢𝘴𝘦. Day 1 of the World Orphan Drug Congress USA 2025 is finally here!. The #raredisease community is taking over Boston this week, and we’re kicking things off with a powerhouse lineup of visionary keynote sessions setting the tone for the days
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📣 Meet the Day 1 Chairs of #WorldOrphanUSA 2025!.Tomorrow, these industry leaders are bringing their expertise, energy, and vision to the forefront – guiding the conversations that matter most in rare disease and orphan drug innovation. ✦ 𝐈𝐧𝐧𝐨𝐯𝐚𝐭𝐢𝐨𝐧 &
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Don't miss any highlights from #WorldOrphanUSA 2025! Follow our LinkedIn page below to catch LIVE coverage the next 3 days in Boston 📸. 🗓️ April 22-24.📍 Boston Convention & Exhibition Cetner.
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𝘛𝘩𝘦 𝘸𝘢𝘪𝘵 𝘪𝘴 𝘧𝘪𝘯𝘢𝘭𝘭𝘺 𝘰𝘷𝘦𝘳. #WorldOrphanUSA 2025 kicks off today with our Pre-Conference Day! 🎊 With a jam packed schedule filled with interactive workshops, presentations, and fireside chats , you won't want to miss this. Take a glimpse into what's in store
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