Natalie
@PSSD_Info
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Raising awareness about post-SSRI sexual dysfunction (PSSD). & interested in the connection between upper airway resistance syndrome (UARS) & ME/CFS/fibro/etc.
Joined July 2024
Follow me at @nataliezzz3 if you want to see content on UARS & ME/CFS. I will try to use this account to post about PSSD & other psych. med harms. Here's a š§µ on PSSD I made a while back. I want to specify that 1) I do not have severe PSSD & 2) Some ppl 1/.
Post-SSRI sexual dysfunction (PSSD) is not rare. Long-lasting severe cases (the ones we hear about) are likely rare so we think PSSD is like ex. 1 but PSSD probably occurs on a spectrum with severity/duration of symptoms varying as in ex. 2. Incidence of PSSD could be >25% 1/9
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RT @abcsoka: I published this paper on epigenetic side-effects of medications in 2009, and believe it explains a significant percentage ofā¦.
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@mecfsskeptic Putting this here for posterity as this will not age well. This is some wild behavior from a medical professional! (I wont read the evidence bc it sounds crazy and the author doesn't have a great PubMed track record, even tho he's a clinician, which is why he figured this out) š¤¦āāļø
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@mecfsskeptic & just dismissed Dr. Gold based on his PubMed history (Dr. Gold is primarily a clinician, not researcher, he just happened to put the pieces together bc was seeing a lot of "FSS" in his UARS pts). I know we could have an actual productive discussion about it tho. *sigh* š 2/.
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@mecfsskeptic Well at least 1 person "forestglip" actually engaged in a discussion w/ me about it (I don't really see it going anywhere productive, but still nice). Was def not expecting Edwards to dismiss it as a "nonsense quack theory" while openly admitting that he didn't even read my š§µ 1/.
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RT @BrainstemMd: @PSSD_Info UARS causes my PEM and chronic fatigue, this is not debatable, Iāve been collecting the data that shows this foā¦.
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RT @PSSD_Info: "Eppur si muove, baby." Yup. You can show ppl piles of evidence that sleep fragmentation is not cause of fatigue in SDB ptā¦.
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RT @PSSD_Info: Links for anyone curious. The moderator of r/UARS - u/carlvoncosel - essentially cured himself of what sounds like classic Mā¦.
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Being partly right is apparently not good enough for some people though; it's all the way, or nothing! 8/.
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I'm sure even Zachary will come around to UARS before @cfs_research, & the sad thing about all this is, @cfs_research was actually closest to the truth w/ his detailed writings about effects of chronic stress/HPA axis dysf. on the body - he was just missing the stressor: UARS. 7/.
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Re: attempted doxing (ādozingā), I did link his website (which doesnāt have his name on it) in a reply, but I have now deleted it. And no, I have not engaged @ZacharyGrinDPT on UARS since he blocked me; I replied to @Jo_Ireland100 under his post (& specifically unchecked him). 6/.
@Jo_Ireland100 Yes, most ppl w/ "functional somatic syndromes" prob. meet criteria for multiple "functional" disorders (functional limb weakness, functional cogn. disorder, etc.) but this doesn't mean it should be treated like FND; let's ID & treat the actual root cause!.
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There's no excuse for this behavior (let's see him try to come up w/ one later tho!); he knows the evidence for UARS is strong & chooses to ignore it. Helping pts is not his priority! He wanted to be the one whose theory of ME/CFS prevailed, & UARS came & rained on his parade. 5/.
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@cfs_research @cfs_research has ignored the evidence re: UARS since he first heard about it. Evidently, me sharing evidence re: my preferred theory of ME/CFS under pplās posts discussing the pathophys. of ME/CFS is ābadgering,ā while him continually doing the *exact same thing* is A-OK! š¤¦āāļø 4/.
@cfs_research accuses me of "badgering" @ZacharyGrinDPT on the connection between UARS & chronic complex illnesses & proceeds to hide my civil replies to his comment ā¬ļø I linked the only 2 times I've directly engaged Zachary on it below. Why are these ppl hiding info on UARS? 1/
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I know fibro ā ME/CFS, but those of us who recognize the interconnectedness of these disorders (incl. @cfs_research) understand that fibro & ME/CFS are likely different/overlapping presentations of 1 disorder (~1/3 of ppl w/ ME/CFS meet fibro criteria, reverse may be higher). 3/.
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UARS/OSAS causing fibromyalgia is a fact, not a theory! If you have an objective finding (alpha-delta sleep) associated w/ fibromyalgia that disappears along w/ fibro sx when you treat UARS/OSAS, UARS/OSAS is the cause of (that person's) fibromyalgia! 2/.
Case #2 contd. With mandibular advancement device (MAD) treatment for OSA, "multisite pain resolved completely," headaches decreased from daily to once every 2-3 months, mental health dramatically improved, & alpha-delta sleep was absent from follow-up PSG. 4/n
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As Dr. Renz-Polster has convincingly argued, ME/CFS sx (incl. PEM) can be explained by a dysf. CNS stress responseā¦except for orthostatic intolerance (OI) IMO, which UARS explains. š§µ on this & how mind-body/ābrain retrainingā recoveries are compatible with a UARS etiology. 64/n.
HPA axis activation by stress can account for many symptoms in ME/CFS (fatigue, brain fog, pain, IBS, etc.) but doesn't readily explain OI/ā¬ļø cerebral blood flow. It's likely caused by abnormal ANS responses to inspiratory flow limitation during sleep. 1/n.
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I used to think PEM was the 1 ME/CFS sx UARS couldnāt explain; now Iāve reversed my thinking. Other ME/CFS sx can all be sx of other disorders (incl. peripheral ones like autonomic neuropathy); PEM is best explained as a CNS problem involving impaired adaptation to exertion. 63/n.
Thank you @RenzPolster for saying what ppl need to hear about PEM. "I would certainly try to question if we should really distinguish the 'real' PEM. triggered by physical exercise & other forms of PEM. As a patient, I can tell you it's all the same & 1/n.
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And if you're not yet convinced that UARS can cause ME/CFS because you think it can't explain PEM, see š§µ in next comment on why I think PEM is actually best explained as a CNS problem. Dr. @RenzPolster's write-up is featured but linking it here too: 62/n.
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Podcast from @CANADALAND on PSSD feat. @EmilyGreyPSSD & @DrDavidHealy: ."I woke up one morning and instantly knew something has gone terribly wrong. I quickly realized I'd lost all sexual sensation in my body. and it's just never gone away" -Emily Grey.
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RT @katiamek: Iām sorry but this is more than absurd and unethical. CHARGING PATIENTS 60K for being their doctor for conditions with no curā¦.
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š§µ with my thoughts on why ME/CFS/fibro/etc. patients typically only experience partial improvement on PAP (35-50% in Dr. Goldās experience). Basically, breathing pressurized air is likely acting as a stressor on a sensitized nervous system too (albeit less of one than IFL). 61/n.
Some thoughts on why ME/CFS (& fibro, etc.) pts only feel ~35-50% better on PAP. Yes, there's the "stress of sham CPAP" (i.e. the mask on your face, etc.) but if it were just that we should feel ~80-90% better (the Gulf War illness pts on sham CPAP only got mildly worse). 1/n.
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