PE-CGS
@PECGSnetwork
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The Participant Engagement and Cancer Genome Sequencing Network engages diverse and underrepresented communities in cancer genomics research.
Joined June 2022
Check out this fantastic podcast episode on “Overcoming Systemic Barriers to Make Patient-Partnered Research a Reality,” featuring @gliomaregistry and #OPTIMUM Co-Investigator @TheLizArmy! @JCO_ASCO
https://t.co/XpBKYNEhT8
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Count Me In is working within the @PECGSnetwork to empower patients as research partners, tackling barriers in consent & data sharing to advance cancer research together. Thank you to @DrVinayakV for highlighting this work in this recent @OncLive article. https://t.co/lNfpvMVyPZ
onclive.com
Investigators who champion patient-partnered cancer research have experienced challenges to their effective implementation.
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A little snow won't stop us! #OPTIMUM and @PECGSnetwork win the Reviewers' Choice Award for their poster on sharing personalized research results with study participants at the @GeneticsSociety Annual Meeting in Denver.
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Recently, #OPTIMUM, a study within the @gliomaregistry enrolled its 200th research participant! #OPTIMUM seeks to understand how treatment and genetics are related to #glioma evolution.
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At the @PECGSnetwork Annual Meeting this week, we celebrated the power of participant data in driving groundbreaking #cancerresearch. The progress is inspiring! #PECGS #CancerResearch #CountMeIn
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Newly diagnosed with an #Idh positive glioma? Consider joining @gliomaregistry for news on the topic- you can also participate in our research project sponsored by @PECGSnetwork #moonshot visit https://t.co/BqyJ9VLWOd for info
gliomaregistry.org
Low Grade Glioma Registry: A study of and with people facing oligodendroglioma and astrocytoma brain tumors
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STREAMING NOW! This #WorldCancerResearchDay, we're honored to be featured in @BBCStoryWorks' #RewritingCancer series. Check out how Count Me In is amplifying patients' voices to improve research. Watch now at https://t.co/XEFJ8UbCxE under "Changing the Odds".
bbc.com
Explore the #RewritingCancer series, streaming now
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WATCH: NCI's Cancer Information Service is ready to answer your cancer-related questions whether you are someone with cancer, a family member or friend, a health care provider, or a researcher. https://t.co/I0exZMNHQD
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Patient engagement is key to cancer research. @JCO_ASCO Commentary by members of @PECGSnetwork explores barriers to participants full involvement and proposes solutions to overcome them. Read more: https://t.co/TuM0Qtoc2T
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Patients who want to aid #cancerresearch often face barriers in consent & data sharing. Members of the @PECGSnetwork are addressing these issues. This #JCO Commentary in @JCO_ASCO proposes solutions with broad oncology applications. Read more: https://t.co/TycNUOqVIf
#OncTwitter
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Count Me In is aiming to uncover the genomic secrets of #osteosarcoma and #leiomyosarcoma by partnering directly with those most impacted. Check out our websites to learn how we're shedding light on these rare cancers through the power of innovative patient engagement.
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Eirian Siegal-Botti from @count_me_in and @broadinstitute presenting @PECGSnetwork @the_osproject @AgentsMIB Factor conference. Thanks to @AgentsMIB and #osteosarcoma participants for your partnership in research.
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@gliomaregistry has recieved funds from @theNCI @PECGSnetwork #cancermoonshot to better include persons who report being of Hispanic background -contact glioma@yale.edu or @MathewKrick if want more info!!#saludtues
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Cancer research is a vast, complex enterprise that involves researchers from many disciplines. It also relies heavily on the participation of patients and healthy volunteers, without whom #CancerResearch would not be possible. https://t.co/6LBOYwjI77
#NationalCancerResearchMonth
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@gliomaregistry @PECGSnetwork working with @SaludAmerica to provide education re #glioma #BrainTumorAwarenessMonth
Explore and learn more about the types of brain tumors, grades of brain tumors, and more during #BrainTumorAwarenessMonth! @gliomaregistry
https://t.co/sXtfJWqkcY
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The @PECGSnetwork (Participant Engagement and Cancer Genome Sequencing Research Network) is intended to accelerate #CancerResearch. Learn more about this collaborative effort that is part of #BidenCancerMoonshot
https://t.co/ajnNcnUfu5
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Hear about implementing culturally tailored programs to improve cancer genetic education and increase participation in genetic counseling, risk assessment, and genetic research at this #AACR24 session. #PECGS #CancerMoonshot
https://t.co/cSBrT3CnOA
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Exciting news! @PECGSnetwork was featured on HealthCast. @bfdrake discusses @WashU_PECGS work on rare & understudied cancer populations. Leah Mechanic from @theNCI shares how #PECGS is advancing health equity & cancer precision medicine. Check it out:
govciomedia.com
The effort engages cancer patients and survivors to advance research that addresses diversity and equity issues in cancer care.
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The @PECGSnetwork aims to promote and support the engagement of people with cancer and post-treatment cancer survivors as participants in an expansion of cancer genomic sequencing. Learn more: https://t.co/K7gbY8Rnxy
@NCICancerCtrl #CancerMoonshot #NationalCancerPlan
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