The Osteosarcoma Project
@the_osproject
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A @Count_Me_In initiative to partner directly with patients to accelerate and share discoveries in osteosarcoma. Please follow us there for updates!
Cambridge, MA
Joined September 2019
We are improving how and when we communicate so that you have more timely, clear messages that give you continuous information about the Osteosarcoma Project - as well as our other projects. Please follow us at @count_me_in to stay up to date with us.
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A reminder to please follow us at @count_me_in to stay up to date with us. Thank you!
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By joining the OSproject, every patient who has ever been diagnosed with osteosarcoma in the US & CA can share their information and voice with researchers. Learn more about how you can help transform research at https://t.co/hSwQsbxwS8
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We’re excited to share that as of today, #CountMeIn is now available to all patients with cancer in the US & Canada. Learn more at https://t.co/NBKxmbmCri. By participating in the OSproject, you are already a part of Count Me In and your participation will not be affected.
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A new $16 million @theNCI grant will support two @count_me_in patient partnered research projects in rare cancers:
Broad, @DanaFarber, and @count_me_in launch research projects in two rare cancers, with focus on optimizing patient engagement; efforts aim to reveal rare cancer's genetic roots, mechanisms of drug resistance, and potential new treatment strategies. https://t.co/8XyVBV6Hj1
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Many cancer patients are treated in community settings where research might not be performed. OSproject aims to empower patients anywhere in the US & Canada to participate in research and accelerate treatment discoveries. Find out more at https://t.co/vZv3u59TFc
#JoinCountMeIn
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Patient-partnered research has the ability to empower and affect treatment change for patients with osteosarcoma, like Phoebe. Together we can drive research to discover better treatments for patients with osteosarcoma. #JoinCountMeIn
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Tania and Imani are working to de-identify and prepare tissue samples for genomic sequencing. Here's what a de-identified sample looks like when it's ready to go. Find out more at [ https://t.co/7XX8ota78e]
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Meet Rafael, Clinical Data Specialist for Count Me In. What questions do you have for Rafael about his hours spent reading thousands of pages of medical records?
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Medical records have stories to tell - through 100s of pages, we learn about a person & their experiences. During this time, we continue to receive & generate data from these records. Join the https://t.co/hSwQsbxwS8 to share your story & help speed treatment discoveries.
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Agents: Fri 16Oct is a BIG day: “Clouds” premieres on Disney+, the story of OsteoWarrior, Zach Sobiech - the kid that fought #Osteosarcoma with all his heart and soul - for his life, for his family and for his beloved. It is our collective OS story.
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.@targetcancer has long been a tireless advocate for #rarecancer research, most recently evidenced by their launch of TCF-001 TRACK. We are grateful for their deep partnership in our work and look forward to seeing the continued success of their projects.
Since 2009, @targetcancer has been dedicated to supporting #rarecancer researchers and patients. TCF-001 TRACK represents our largest step forward in that work. TRACK will enroll 400 patients with rare cancers and cancer of unknown primary. Learn more: https://t.co/O46Dipde2p
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Treatments for osteosarcoma haven't changed in 30-40 years. Maeve was frustrated by the old treatments she received for her osteosarcoma. The OSproject wants to accelerate research and the development of new therapies. #RareCancerDay #ChildhoodCancerAwarness
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The graph below is an illustration of individual patient power. Power that is especially needed for #rarecancer research. #RareCancerDay (1/5)
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Burt, the parent of a patient with osteosarcoma, has invaluable information to provide about his family's experience. Together, the entire osteosarcoma community has the power to move research forward. https://t.co/hSwQsbfVty
#ChildhoodCancerAwarnessMonth
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@the_osproject The @the_osproject needs more participants, especially adults. There are more adults diagnosed each year than children with this type of #sarcoma but much less research. If you’ve ever had #osteosarcoma please visit https://t.co/COl39v3uyd for more information.
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Though osteosarcoma tends to affect people ages 10-30, the https://t.co/vZv3u59TFc is open to anyone ever diagnosed with osteosarcoma. The age at diagnosis for our current participants ranges from under 10 years old to over 50 years old. #ChildhoodCancerAwarenessMonth
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Today is #WorldCancerResearchDay & we want to accelerate research. We are working hard on requesting med records & samples to generate & release data. Curious what that data might look like? Check out the data our sister project has released at
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The story of Zach Sobiech, a teenager with osteosarcoma, is the basis for an upcoming movie from Disney+, "Clouds". https://t.co/heCz20235z
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