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Oregon Pain Action Group Profile
Oregon Pain Action Group

@ORPainAction

Followers
204
Following
990
Media
62
Statuses
766

The focus of this group is for the issues that affect us as #ChronicPain #patients in #Oregon. Access to #QualityCare including #PainMedication. #HumanRights

Oregon, USA
Joined December 2018
Don't wanna be here? Send us removal request.
@OregonAdvocate
Oregon Advocate
2 months
Ways to help those with disabilities who rely on snaps in your community. 💜 #snaps #oregon #helpDisabled #waystohelpcommunity #challenges #disabilities
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@OregonAdvocate
Oregon Advocate
5 months
@PainNewsNetwork to this very relevant topic (shows how multilayered this is). (OEDSA put together to get word out) YouTube link: https://t.co/jg359HJBii
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@ibdgirl76
Bev Schechtman🇮🇱
5 months
Why Long Term Opioids and Pain RCTs Fail the Ethics Test - In this clip from Episode 57, "20+ Years Fighting Opioid Myths: Dr. Chad Kollas on the FDA’s Latest Move," Dr. Kollas explains why randomized controlled trials on opioids for pain aren’t just impractical, they’re
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@broadwaybabyto
Kelly
5 months
You’re far closer to becoming disabled or homeless than you are to becoming a billionaire. They’re not choices or moral failings. They can happen in an instant from an infection, accident, job loss or sudden illness. They’re minority groups you can join at any time.
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@PainNewsNetwork
Pain News Network
5 months
Crystal Lindell thought getting a diagnosis would finally end the stigma and judgement she faced from doctors about her unexplained chronic pain. It didn't change a thing.
painnewsnetwork.org
By Crystal Lindell A few months after I got my first official diagnosis of Ehlers-Danlos syndrome in 2018, I had an appointment with a new orthopedic doctor.  I was having really bad pain in my left...
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@aander1987
Andrea Anderson
6 months
Support Act letter to Senate Help Committee members: [Your Name]   [Your Address]   [City, State, ZIP Code]   [Email Address]   [Phone Number]   [Date: June 19, 2025] Re: Amendment to H.R. 2483 – Addressing Harmful Opioid Restrictions Dear Senators, Approximately 50
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@PainNewsNetwork
Pain News Network
6 months
A new review found little evidence that opioid prescribing leads to addiction & overdoses. The author says many patients use opioids “successfully and appropriately,” but have been adversely affected by "misinformation surrounding the use of opioids."
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painnewsnetwork.org
By Crystal Lindell “There is little evidence that physicians and surgeons prescribing opioids for short-term pain relief leads to substantial levels of opioid use disorder (OUD), addiction, or...
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@PainNewsNetwork
Pain News Network
7 months
"We all are going to die." Sen. Joni Ernst caught a lot of flak for saying those words while talking about Medicaid cuts. PNN's Crystal Lindell says the remark also describes how many politicians and healthcare providers view pain patients.
painnewsnetwork.org
By Crystal Lindell Last week Sen. Joni Ernst (R) of Iowa said the quiet part out loud at a town hall meeting.  While responding to a comment about President Trump’s planned Medicaid cuts possibly...
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@AsafKlaf
Asaf (Klaf) Weisman
7 months
💥The inspiration for the study was my very own Fibromyalgia. I am a healthcare providers/pain researcher and probably one of the most educated persons on earth with regard to pain (in the 99th percentile). Yet, somehow, my fibro prevails. If I cannot “retrain my brain,” to
@AsafKlaf
Asaf (Klaf) Weisman
7 months
Finally published💥 A comprehensive empirical and logical refutation of the theoretical basis of cognitive-based interventions for pain reduction 💥 The simple point is: If healthcare providers who possess great knowledge about pain and know the theoretical basis of these
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@ibdgirl76
Bev Schechtman🇮🇱
7 months
🟥 Double Standards in Opioid Care: Pain Patients Pay the Price One thing I find fascinating and infuriating is how the exact same behaviors are treated completely differently depending on whether a patient is on Suboxone (MOUD) or prescribed opioids for pain. 🔻 For pain
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@PainNewsNetwork
Pain News Network
7 months
@ChadDKollas @JohnsHopkinsSPH I remember reading that Dr. Alexander didn't take the law firms' money in cash, but had them funnel it directly into his research org. So in effect the law firms involved in opioid litigation are funding anti-opioid research studies. Conflict of interest anyone?
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@ChadDKollas
Chad D. Kollas, MD (he/him/his)
7 months
You buried the lede, @JohnsHopkinsSPH... Dr. Alexander gets paid to testify against opioid manufacturers and distributors. He's no hero... he's a mercenary.
@JohnsHopkinsSPH
Johns Hopkins Bloomberg School of Public Health
5 years
"The opioid litigation is a matter that has affected generations of Americans," says @JohnsHopkinsEPI's Caleb Alexander. "Understanding the genesis of the epidemic can help to ensure history doesn't repeat itself."
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@APainPrincess
Princess, The Tower
7 months
“There‘s not one moment I‘m not in pain. The medication simply allows pain to be at a level where I don’t absolutely lose my mind… Sometimes my pain‘s so intense that [#opioids] don’t even touch it. Anyone with severe #ChronicPain will tell you the same.”
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@AsafKlaf
Asaf (Klaf) Weisman
7 months
Finally published💥 A comprehensive empirical and logical refutation of the theoretical basis of cognitive-based interventions for pain reduction 💥 The simple point is: If healthcare providers who possess great knowledge about pain and know the theoretical basis of these
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@OregonAdvocate
Oregon Advocate
8 months
Question: any state advocates etc happen to know if your state considers working with a health insurance company and also serves on a state (Government) health commission that votes on policy & coverage for Medicaid? A COI? In this case it’s a CCO vs private insurance.
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@ibdgirl76
Bev Schechtman🇮🇱
8 months
🚨 Here’s the info for Monday’s FDA PMR meeting including links to watch meeting, results, agenda, roster, & more below. At first glance? The results confirm what we already knew: OUD, misuse & abuse rates in chronic pain patients are low. More breakdowns coming soon. Stay
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patreon.com
Get more from The Doctor Patient Forum with Claudia A. Merandi and Bev C. Schechtman on Patreon
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@ORPainAction
Oregon Pain Action Group
8 months
Here is the link to our groups Comment to the FDA. If you have not commented yet, please do so now. https://t.co/kyqM7t4Mtv
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@ORPainAction
Oregon Pain Action Group
8 months
Please comment!
@aander1987
Andrea Anderson
8 months
Regarding the FDA meeting on May 5, 2025, here is relevant history, studies, and meeting information: Yes, absolutely. Thank you for your encouragement. There is a lot of history to review to get the full context behind what is happening. I’ll give you all the history and then
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