“Pain is soul destroying. No patient should have to endure intense pain unnecessarily." #chronicpain #spoonie

“It's the reality when people cannot see your #pain or the other #symptoms accompanying #chronicillness. They assume it doesn't exist or that you're exaggerating it to be much worse than it is.” @serenebutterfly #FND #chronicallyill #chronicpain.

“I wept because of the pain. I wept at my inability to perform even the simplest of tasks. I wept at my lack of energy… I wept because I knew that soon, I would have to return to my bed. My prison.” #ChronicPain #ChronicIllness #pwME #pwLC.

“Prescription practices did not create the #opioidcrisis and are not sustaining it… Yet millions of #cpp have been force-tapered to ineffective doses and thousands are dying of medical collapse or suicide, while the DEA persecutes MDs for trying to help.”

“#ChronicPain can disrupt sleep, which in turn, exacerbates the pain, creating a distressing cycle. This disruption heightens #anxiety, reduces pain tolerance, and diminishes emotional resilience, making day-to-day coping a challenge.” #MentalHealthMatters.

“My “good hours” are spent working and my “bad hours” (rest of the day) are spent recovering… It’s a massive battle inside me all the time—like I need to prove to others that I’m not “lazy” by not actually taking the rest I need.” #chronicillness #spoonie.

“It’s not fair to have the same expectations from us as you would from a perfectly healthy person. This is a never-ending struggle! Most people tend to forget that #chronicillness is something you have to deal with every day of your life.” #pwME #pwLC #cpp.

“It’s so easy to feel alone…I know I am not…there are millions…fighting the same fight. Fighting to be heard, fighting to be understood, fighting to be believed… Lately, I have felt drawn to lighthouses… Beacons of light in the darkness.” @OSufferer.

“Music! My favorite music touches my soul. Listening to it perks me up, clarifies my mind, and drives away the distractions. Now, what was it we were discussing again?” 12 of the Most Surprising Things That Helped People With #BrainFog #chronicillness.

“Everything takes energy. And energy is in short supply. We can get #chronicillness #burnout when we try too many things at once for too long… So just take it slow… know not to push… I just want to work some things in. Thread them in a bit. Carefully.”

“#BeKind to yourself! Start small and listen to your mind and body, don’t push things that aren’t ready to be pushed, or if you do push and your body shouts no! then step back a little and reformulate.” The Importance of Accepting Your #ChronicIllness

“I have not dusted my home in months, just doing our living room would take me a couple of days! Plus, if I do that then I wouldn’t be able to do much else the rest of the day but things like—looking after mom, eating, showering—all still need to be done.”

“Having a “good day” doesn’t mean I’m better; it just means I’m having a good day. And even if I’m smiling and looking like I’m having a great time, there’s a good chance I’m screaming internally… Dealing with #ChronicPain drains me every day.” #spoonie.

“We grow when we do things slightly out of our comfort zone because growth does not happen in comfort zones… you have to push yourself a little…and sometimes, while doing that, you fail the first time but that is okay.” @sarahlynn358 #mentalhealthmatters.

“When I’m in public I’m often afraid of people touching me or bumping into me because I get so sensitive that a touch causes horrible pain… I fear not being able to make it back… At least when I’m at home the bed is there.” #ChronicPain #CRPS #allodynia.

“In my head I am still independent… then it hits me. I can’t even make it through a grocery trip without the burning #CRPS nerve pain… My body’s not the same… I didn’t want to accept this… I wanted to fight it.” #Compassion to a Body in #ChronicPain

“But you were fine yesterday so why are you canceling today? Surely your medication will treat it… You’re too young to be that ill… You’re smiling so you can’t be in pain.” Why Being Questioned About Our Invisible #Disabilities Is So Harmful #ChronicPain.

“It’s not surprising that living with a long-term health condition…repeated bad days, or daily #pain and #fatigue, can keep us focused on illness… When we choose to do a little too much for the joy of it, it’s hard not to anticipate a crash or a flare.”

“It’s so difficult to explain to people how incredibly challenging life can be when you have a number of illnesses that cause pain… Doctors need to be more compassionate, responsive, listen… It’s hard enough to deal with #pain and #chronicillness.” #cpp.

“Life with one #disease is so hard. Living with many diseases is unbearable… #Autoimmune disease doesn’t just set one body function on fire. It sets the whole house on fire… Every day I open my eyes and my first thought is, ‘PAIN’.” @globetrotteri #AxSpa.

“There‘s not one moment I‘m not in pain. The medication simply allows pain to be at a level where I don’t absolutely lose my mind… Sometimes my pain‘s so intense that [#opioids] don’t even touch it. Anyone with severe #ChronicPain will tell you the same.”