Thanks for everything.

RT @DafoeWhitney: Dear America,.My name is Whitney Dafoe. I have a chronic illness and depend on Medicaid to stay alive. The "Big Beautif….

RT @ThosVarley: New blog post!.HIV/AIDS and ME/CFS are post-acute infectious syndromes that became public health crises in the 80s - but to….

It blows my mind Rheumatologists know so little about ME/CFS, Long COVID, MCAS, EDS, etc. It’s litterally supposed to be their speciality, but not taught it. Allergists (just MCAS) know more than Rheumatologists and that’s not saying a lot, besides a few Global Leaders…Shocking.

RT @RedefiningMECFS: #MECFS patients with a history of EBV responded better to #rapamycin when compared to patients with non-viral onset, a….

I’m seeing a lot of “I’m sick, but it’s not COVID”. My Father gave me COVID the last time and we each tested 7 Times before I finally got a Positive Test. We literally had False Negative 13 Times combined. Please don’t just do one Test and rule out COVID, ER Drs will overlook it.

Medicine has always known about ME/CFS. They know our Mitochondria is poisoned and our blood could kill people, but they don’t want the world finding out. So they Psychologize ME/CFS.

RT @KatyBruce108: "Ignorance about post-exertional malaise and continued conflation of #ME/CFS with chronic fatigue harms patients and stym….

This Graph is absolute proof wastewater is starting to be manipulated. Alberta (3.1) is a far right Government, BC (19) is a left wing Government. Many people in BC work in Alberta. There is no way Alberta is 3.1 when BC its next door neighbourhood was 19 in April.

RT @LauraMiers: This is not helpful.

RT @ErinAPN1: She’s just not trying hard enough @bmj_latest @PaulGarnerWoof

If the Devil came to me and said he would cure me for one year and then that was it, I would drop dead, I’d seriously think about it. This is life with Very Severe ME/CFS, Long COVID. I’d travel the world with my Mum/Dad, I’d likely do more than I would for 30+ years with ME/CFS.

RT @tessamunt: I’m so delighted that all 72 LibDem MPs signed this letter to @wesstreeting @AshleyDalton_MP asking the govt to back the ME/….

My Great Uncle was a Doctor and if he had a Patient who was sick he’d go after work and check up on them. Now you’re lucky if your Doctor will give you the medication that’s helping you or a referral to the specialist you found by yourself, because they wouldn’t look into it.

I always had a 90% IQ, but knew from a young age my Family couldn’t afford to put me through Medical School (doing a four year BComm almost Bankrupted us). Millennial Doctors have only known Privilege. They aren’t becoming Doctors to help People anymore, doing it for Status/Money.

I know another Terminal Cancer Patient who was having limbs amputated it was so bad and Doctors took her off a Fentanyl Patch week before she died, so she died in incredible pain. You have to be Upper Middle Class to afford Medical School. Cost is a barrier of entry, privileged.

What happened to Doctors having compassion? My Father has awful Terminal Bowel Cancer. New Doctor reads his chart and says he’s taking too high of a dose (4mg - Manufacturer suggests up to 8mg fine) and lowers him to 0.5mg. It’s the only Medication giving him relief as he’s dying.

RT @nikosuvisto: I see conversations about recovery in ME/CFS, and I’d like to share my own experience. I’ve lived through every severity….

“Top NHL Prospect Chaz Lucius Retires from Hockey at Age 21 after EDS Diagnosis”. I used to work for a Junior Hockey Team in my past life, his Parents are Billionaires who started a Hockey Academy in Minnesota, maybe they donate to cause. My CCI worsening due to TBIs caused EDS

I remember the first time I went to Japan and seeing people mask out of courtesy of others and thinking most of the world is far too selfish for that and boy was I right. Weird how they all live to like 110 as well. It’s like not constantly getting Viruses is a good thing.