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Lyme Disease Action Profile
Lyme Disease Action

@LymeAction

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Striving for the prevention and treatment of Lyme disease and associated tick-borne diseases. PIF TICK accredited - UK quality mark for trustworthy information.

United Kingdom
Joined January 2013
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@LymeAction
Lyme Disease Action
5 months
And brilliant Prof Chris Whitty emphasising to doctors, academics and public health that uncertainties must be made clear. Or trust is lost. You cannot reach people if they don't trust you.
@LSHTMlibrary
LSHTM Library
5 months
Fascinating "Health Misinformation: UNPACKED" seminar here @LSHTM. Lots of food for thought on combatting the influence of misinformation & encouraging people to think critically about content. You'll find LSHTM's counter-misinformation principles here - https://t.co/Acw8y9rsMr
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@LymeAction
Lyme Disease Action
6 months
Total cases slightly down from 2023, maybe because more diagnosed at EM stage and don't need a test (let us hope!). The South West still by far the most cases per head of population. @UKHSA_SouthWest @dartmoornpa
@EWO_tweets
Everwild Outdoors
6 months
1,581 confirmed cases of Lyme disease in the UK last year. We are currently in peak tick season... @DrNeilStone @UKLyme @Lymenews @LadyofLyme @LymeAction @YolandaHadid @MoriartyLab @LymeChallenge https://t.co/l64OUJpWLF
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@UKHSA
UK Health Security Agency
8 months
Summer’s a great time to get outside, but ticks love the outdoors too. πŸŒ³β˜€οΈ If you're walking through grassy or wooded areas, take a look at our guidance to help you stay safe and #BeTickAware. πŸ‘‡
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@LymeAction
Lyme Disease Action
9 months
Great notice board in Richmond Park @FRPTweets raising awareness of #ticks and #Lyme disease @theroyalparks. Anyone else need leaflets or images? Just contact us.
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@LymeAction
Lyme Disease Action
11 months
As the #tick season gets underway step over to https://t.co/9uAv2I1b39 for information and discussions about #Lymedisease and other tick-borne diseases.
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@LymeAction
Lyme Disease Action
1 year
Editor's choice @bmj.com-β€œThe task we face ... in medicine and healthcare is to hold firm to information that’s trusted, ..”. But trusted by whom? By doctors who say continuing symptoms after #Lyme disease are not due to Lyme? Or researchers publishing data showing they might be?
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@LymeAction
Lyme Disease Action
1 year
In the UK #Lymearthritis is fairly rare. But if you happen to have arthritis and high CRP with #Lyme then a @RheumatologyUK doc may see you. If you still have symptoms post treatment ask them to read https://t.co/JEMe9qYhBO We need Docs to take an interest @bendymarsh @smhopkins
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@LymeAction
Lyme Disease Action
1 year
We hope you will genuinely engage patients & the public in continuing research into UK #Lyme disease. Look forward to hearing from you! Guidelines currently based on European research & we have some differences; they may matter. @LHSTM
@HPRUezi
HPRU EZI
1 year
Delighted to announce that we have been awarded a Β£5.5m funding boost to continue our emerging and zoonotic infections research! https://t.co/U3HyZ9sJOw
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@LymeAction
Lyme Disease Action
1 year
Thank you for opening - Interesting to see and hear about new techniques & facilities for researchers. Progress in many fields, though not yet #Lymedisease. We need interested researchers!
@SWCommercialRG
The South West Commercial Research Group
1 year
Curious about clinical research? πŸ§‘β€πŸ”¬ Join us at the @NIHRCRF Open Day on 2 October! Meet the team, explore exciting research, and find out how you can get involved πŸ“… No booking needed, just walk in! πŸ”— https://t.co/L62njMmD2V #NHSResearch #ClinicalTrials #Exeter
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@LymeAction
Lyme Disease Action
1 year
We really need this for #LymeDisease or research will carry on stagnating and not finding answers that are desperately needed.
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lymecos.org
A core outcome set for Lyme borreliosis
@COMETinitiative
COMET
1 year
New WHO guidance for clinical trials - much needed, very welcome. Plus, there is recognition that β€˜Use of core outcomes can both enhance the ability to undertake meaningful comparisons as part of evidence synthesis and decrease research waste.’ πŸ‘πŸ‘πŸ‘ https://t.co/kda2IypEnQ
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@LymeAction
Lyme Disease Action
1 year
Good video from @UKHSA on vector-borne diseases - the battle against ticks and mosquitoes.
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@LymeAction
Lyme Disease Action
1 year
Webinar with @UKHSA on Vector-Borne Disease Thurs Sept 5 10.30-11.30 Register here https://t.co/7gCzrh0YG4 @B_Tschirren @royal_forestry @AndyFirstAidTP @Norfolkbirding @dartmoornpa
forms.office.com
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@LymeAction
Lyme Disease Action
1 year
Thanks to @PiFonline for keeping the scheme going - #patients, public, #pharmacists, #nurses and #doctors all need to know where to find answers to difficult questions. On any health condition, follow the PIF TICK!
@PiFonline
We're not on X anymore – formerly @PifOnline
1 year
🌟Lyme Disease Action @LymeAction is now PIF TICK re-certified This means their health information continues to be: - Evidence-based - Up-to-date - Easy to use and understand Get PIF TICK certified: https://t.co/RGcNpUgieb #HealthInformation #PIFTick
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@LymeAction
Lyme Disease Action
1 year
Important #pharmacist can distinguish between a #Lyme disease EM rash caused by tick bite and an infected insect bite. Infected bite usually hot and itchy but EM rash usually neither. @NPA1921 @REENABARAI @michael_dowdall open access e-module from @RCGP
@BNSSG_ICB
NHS Bristol, N Somerset & S Gloucestershire ICB
1 year
Insect bite? If needed, your pharmacist can now provide some prescription medicine without seeing a GP. Think pharmacy first. https://t.co/QzbFlCplQq
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@LymeAction
Lyme Disease Action
2 years
It would be interesting to use this modelling to see whether this also predicts a rise in Lyme disease. Will the Borrelia rodent hosts survive the winter more?@StirUni Livestock TBDs like Louping Ill Virus too?
@StirUni
University of Stirling
2 years
Ticking time bomb: new mathematical modelling by Professor Rachel Norman (@AFSRachel) predicts huge increase in #ticks across #Scotland as a result of #climatechange. Find out more: https://t.co/NoKF2w3WDh @StirlingScience
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@LymeAction
Lyme Disease Action
2 years
Thanks this week to Dartmoor Hill Farm Project @dartmoornpa @MoredunComms @APHAgovuk for productive discussion re #ticks & disease in humans & livestock. Farmers, vets, researchers, patients - what a good conversation about what affects us all!
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@LymeAction
Lyme Disease Action
2 years
If science writers, esp for @BBC_Future want to know science of #Lyme disease before they write, they might like to refer to our website including the Reality Check https://t.co/9SfIWkXXqd @ScienceNelson. @PIFTick accreditation matters for #health information!
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@LymeAction
Lyme Disease Action
2 years
If @LymeScience would look at science more it would find European quality evidence for continuing symptoms post LB. https://t.co/8qk4hUugW0 Don't know why but if we don't acknowledge & research, we won't find out @tickaddict @Tekenziekten @HaraldReiso @TickEurope @ScienceNelson
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pubmed.ncbi.nlm.nih.gov
ZonMw; Dutch Ministry of Health, Welfare and Sport.
@LymeScience
LymeScience
2 years
It's disturbing to see the BBC and @ScienceNelson promoting pseudoscience and dangerous Wakefield-like quacks John Lambert and Brian Fallon. Chronic Lyme is a destructive cult that has many victims. Some celebrities are adherents, including Ren Gill and Avril Lavigne.
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