Lyle Ostrow MD PhD
@LyleOstrow
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Neuromuscular doc/researcher @TempleNeurology @ALSHF. Director, ALS Postmortem Core collab w CDC ALS Registry. Chair, DoD ALS Res. Prog Panel. Views my own.
Joined July 2017
RT @NeuroWoodworks: Here is my take on the tree of life / neuron / DNA. I made it out of Sapele wood. The base is ash. #sciart
https://t.co….
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Listener effort measures clinically meaningful change of dysarthria in amyotrophic lateral sclerosis. #BetterTogether #EndALS #OpenScience @everything_als @ALSHF @TempleNeurology .
academic.oup.com
Amyotrophic lateral sclerosis (ALS) causes complex progressive dysarthria. Listener effort is an endpoint that quantifies the severity of dysarthria in oth
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RT @iamalsorg: We're grateful to @RepJasonCrow for supporting this bipartisan legislation that's being co-led by @RepBrianFitz. Will you as….
iamals.org
The House and Senate ALS Caucuses are on a mission to bring together members of Congress from both sides of the aisle to share experiences, exchange ideas, ...
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RT @RepJasonCrow: ALS affects thousands of American families & disproportionately impacts veterans. It’s time we make serious investments….
crow.house.gov
WASHINGTON — Congressman Jason Crow (D-CO-06) is leading a bipartisan effort to support critical medical research funding for Americans living with Amyotrophic Lateral Sclerosis (ALS), a fatal...
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RT @alsassociation: When you join the National ALS Registry, you can also join the National ALS Biorepository. Joining is a meaningful way….
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RT @ChildrensTumor: Congress is deciding now whether to restore #NFresearch funding in the FY26 budget. This lifesaving support was cut las….
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RT @farmstronginfo: Acknowledging #alsawarenessmonth , I'd like to share a video my husband put together (wrote, directed, edited WITH ONLY….
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RT @LesTurnerALS: “While I still have a voice, I consider it my responsibility to speak out for those who can’t about the vital importance….
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RT @LesTurnerALS: We're urging Congress to preserve funding for the National #ALS Registry and Biorepository. This is in response to a draf….
lesturnerals.org
The Honorable Members of the ALS Caucus United States Congress Washington, D.C. 20515 Subject: Urgent Action Needed to Preserve Funding for the National ALS Registry and Biorepository Dear Members of...
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The ALS Network, along with 29 other neurodegenerative disease organizations, has submitted our FY26 funding requests to House and Senate Appropriations Committee members, urging continued support for ALS programs. Our FY26 funding requests include:.- Increase ALS CDMRP funding
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RT @LaurenKoffman: Congrats to our next group of @TempleNeurology Chief Residents! Looking forward to working with you next year 🎉 @Jashank….
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RT @TeamGleason: The National ALS Registry collects and analyzes information from people living with ALS in the United States. This informa….
cdc.gov
Collects, manages, and analyzes data about persons with ALS
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RT @youralsnetwork: .@youralsnetwork is deeply concerned with the Continuing Resolution regarding the proposed 57% cut to FY25 funding for….
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RT @ALSUnitedChi: Congress is considering devastating cuts to the CDMRP. These cuts would halt critical ALS research and slow progress towa….
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RT @ALSofGNY: We are deeply concerned about proposed CR, which would cut FY25 funding for CDMRP by 57%—from $1.5B to $650M. This cut would….
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Lyle Ostrow on fb has spelled out a real and imminent threat to DOD CDMRP research funding for ALS (a big deal). Please read and act. Nobody knows more about this program and the good it does than Lyle.
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RT @everything_als: 🔬 Join us TOMORROW for a free webinar with Dr. Laura P.W. Ranum! 🧠 . 📅 Date: February 19, 2025 .⏰ Time: 7 PM EDT | 4 P….
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RT @MDAorg: 🚨 Medicaid is at risk - we need your voices now! . Millions of Americans, including the #neuromuscular community, rely on #Medi….
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