@OncoThor We run a UK patient Helpline covering Lung NETs - the confusion around hearing TC and AC is huge. And not only for the patient. Remains such an unhelpful classification. @ncukcharity

@BTOGORG @emmalodowd @MatthewEvison1 Fantastic podcast on an often overlooked topic. Thanks to all involved for spotlighting Lung neuroendocrine tumours. As a patient living with this disease any work helping to educate around Lung neoplasms is very welcomed. Let’s keep this conversation going!

Podcast - BTOG Does Lung Neuroendocrine Tumours: Changing the Conversation. Lung cancer pathway ≠ lung NET pathway: tissue first Hosted by @emmalodowd, @MatthewEvison1 and Prof Was Mansoor explain why we should move beyond “carcinoid,” how diagnosis and staging pathways

Slow 8K last night and recovery day of sorts today 🤣♥️ 10 weeks until the Marathon.. always raising awareness for @ncukcharity to support my friend ❤️ Desperately trying to get the training in and giving it my best effort 🙏🏻♥️♥️ Remembering my why is important 🙏🏻♥️

Thank you to the wonderful CNS’s at @TheChristieNHS who care for me and other neuroendocrine cancer patients

This might be the largest study of QOL in patients with NETs, the NET-PRO study -- 2,367 participants from multiple US centers (mean age 57.8 years; 57.3% female) -- 1,974 with GEP-NETs (659 SI-NET, 555 pNET) and 393 with lung NETs -- Fatigue (mean 33.0), insomnia (32.5), and

Podcast - BTOG Does Lung Neuroendocrine Tumours: Changing the Conversation. Stop calling them carcinoids — they’re cancers. Hosted by @emmalodowd, @MatthewEvison1 and Prof Was Mansoor explain why we should move beyond “carcinoid,” how diagnosis and staging pathways differ

@DrScottArthurMP Private Member’s Bill - supported by many of our member charities has officially become law! The Rare Cancers Act 2026 will prioritise long overlooked aspects of research with the potential to transform outcomes for those affected by rare & less common cancers

@LungConsultant – data driving accountability and improvement. #BTOG26

This week we welcomed over 100 delegates across the country to an education event on bronchopulmonary carcinoid tumours. https://t.co/Ldx7SW8TTR

We were moved, inspired and driven to deliver changes for care and standardised diagnostic & treatment pathways by three very courageous patients that told their story & experiences.

My why @ncukcharity Raising awareness in support of my gorgeous friend ❤️

https://t.co/Ju32d4mJ9v

"He tried to explain to me what I had, but he confessed he knew very little." A Renfrewshire dad who saw his rare cancer mistaken for stress is calling for better training for GPs. There are around 150 cases of neuroendocrine cancer in Scotland annually, with doctors taking an

@BTOGORG @OncoThor finally making progress for Lung NETS in the UK.

Today, on World Cancer Day, Neuroendocrine Cancer UK launches a new report: The Invisible Cancer – how delays, misdiagnosis, and unequal treatment of neuroendocrine cancer in the UK are costing lives. The report highlights the impact of delayed diagnosis, misdiagnosis, and

Our 'Invisible Cancer' report shows that the average time to diagnosis for neuroendocrine cancer is 4.5 years from the first symptom. Earlier recognition and referral are critical to improving outcomes. 👉 Please share this post and have a read of the report here -

A Day in the Life of a Nuclear Medicine Technologist delivering PRRT. Raquel from @TheChristieNHS shares how molecular radiotherapy, patient education, and precision care come together in treating neuroendocrine cancer. https://t.co/sBIkSJ7usZ #PRRT #NuclearMedicine #NETs

Looking forward to working on the action plan we discussed - watch this space! @BTOGORG @BTSrespiratory @ncukcharity @GM_Cancer

@BTOGORG info

Delighted to represent the patient voice at this week’s Broncho-Pulmonary Education Event with Profs Mansoor ⁦@TheChristieNHS⁩ and Prof Evison ⁦@MFTnhs⁩ - key message: we must do more to standardise UK care and improve outcomes for this group.