Give life, give blood
@KarlCarpo
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Vexas, MDS and Sweets syndrome patient. Otherwise grand. Live life and love dogs.
Dublin Ire, Vic en Bigorre Fra
Joined August 2010
It’s easier to let the fraudsters keep your €99.90 than deal with @talktoBOI on the phone or form fill. Premier banking me hole!
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Bang of MUFC in the commentary. “This is Armenia, this is Armenia” #ARMIRL
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💙 Hope is on the horizon. Meet Dr. Alicia Lieberman MD, MS our rheumatologist at @RoswellPark, who is leading the way in using cellular therapy to fight—and one day eradicate—autoimmune diseases. For patients living with autoimmune disease, this work represents more than
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Excited to see these finally published! @ACRheum guidance statement for diagnosis and management of #VEXAS. A major international effort! https://t.co/8xL1VQw4fp
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Researchers led by Dr. Marcin Wlodarski (@marrowgenes) reveal unique age-dependent patterns of myelodysplastic syndrome evolution and establish novel genotype-phenotype correlations with implications for clinical surveillance. 🩺 https://t.co/d2okxsYx32
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😱Challenges in hematology😱 Chronic graft-versus-host disease (GVHD) A short 🧵on what it is and how to treat
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Excited to see our NHLBI work on infections and immunodeficiency in patients with #telomere biology disorders now published in @BloodPortfolio. >1/3 had significant infection history and nearly 1/2 t-lymphopenia. @FernandoCatto & @fergutierrezro1. https://t.co/FJzZqQCAVY
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Ross has to start next week. Sam off the tee, simply not good enough. #LEIvGLA
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Efficacy of erythroid-stimulating agent and luspatercept in VEXAS syndrome: A multicenter retrospective study by the FRENVEX group https://t.co/KGXg2GGqez
onlinelibrary.wiley.com
Click on the article title to read more.
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Excited to share our @nih_nhlbi group’s latest work, led by post-doc Hiroki Mizumaki, looking at the role of the adaptive and innate immune system in #VEXAS in @NatureComms. https://t.co/QQgdt31MNp
@bhavishap29 @fergutierrezro1 @NealSYoung1
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Congrats to FRENVEX for their study on azacitadine in #VEXAS led by @thibault_comont in @BloodJournal. Confirmed inflammatory & hematologic responses in >50%. Molecular responses in >2/3rds! Toxicity common especially in first 3 cycles. https://t.co/6fRgw3ynnb
@mekinian2
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“You told me to try Ozempic for weight loss! Look at me, FFS!
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#RMAARS Jaysus how long did that VAR take?20 blokes fall over the line in rugby, sorted in 2 minutes 🤦🏻♂️
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Unfortunately was not able to travel to @TheEBMT but our poster can still be viewed virtually! We report on the first 7 #VEXAS patients who underwent allo-HCT on our prospective phase II trial. High rates of #GVHD and other inflammatory complications noted. @bhavishap29
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“How many teams in the Top 14 Bernard”? Top class #Jamieheaslip #FRASCO
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