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MDS Foundation Profile
MDS Foundation

@MDSFoundation

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The MDS Foundation is building critical awareness of Myelodysplastic Syndromes (MDS), a rare, often undetected blood cancer. 🔬🩸

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Joined April 2009
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@MDSFoundation
MDS Foundation
1 day
MDS can lead to RBC transfusion-dependent anemia, risk of infection, and potential progression to AML. The ELEMENT-MDS Study is enrolling adults 18+ with MDS who are transfusion-independent and have not received prior ESA treatments. Learn more:
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@MDSFoundation
MDS Foundation
2 days
Save the date: September 7. 💙 . Join us at Battery Park City Promenade in NYC for Move for MDS, a day of hope and community. Enjoy yard games, face painting, and more as we walk together to support for those impacted by MDS. Register today:
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@MDSFoundation
MDS Foundation
3 days
We're proud to offer a powerful clinical trial matching platform designed to help patients with MDS - as well as those with CHIP and CCUS - discover research opportunities across the U.S. This tool makes navigating clinical trials easier. Learn more:
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@MDSFoundation
MDS Foundation
5 days
Let’s keep moving, together. Register today: #MoveForMDS #WalkForMDS #MDSFoundation #MoveForACause #MDSSupport
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@MDSFoundation
MDS Foundation
5 days
The beauty of a virtual walk is the flexibility. Walk anytime, anywhere, and with anyone. Whether it’s a solo stroll, a team walk with friends and family, or a lap with your regular walking group, your support helps raise awareness and inspire hope for those impacted by MDS.
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@MDSFoundation
MDS Foundation
5 days
If you can’t make it to an in-person Move for MDS walk, you can still make an impact by joining our Virtual Move for MDS Walk. 💙👟.
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@MDSFoundation
MDS Foundation
7 days
We’re proud to welcome MDS Exchange, the upgraded and enhanced version of our MDS Message Board. Designed for the MDS community, this platform provides a more accessible and supportive space for patients, caregivers, and loved ones. Visit MDS Exchange:
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@MDSFoundation
MDS Foundation
9 days
Introducing JOE in AML - a groundbreaking platform created to empower those facing AML. Through six expert-led modules, JOE in AML brings together vital information and resources in one easy-to-access place. Discover more about JOE in AML:
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@MDSFoundation
MDS Foundation
12 days
Register today for a Patient and Family Forum near you:
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@MDSFoundation
MDS Foundation
12 days
You’ll gain helpful insights into diagnosis, treatment options, and day-to-day living with MDS, all while building meaningful connections within a supportive community. Don’t miss this unique opportunity to get your questions answered and feel empowered on your MDS journey.
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@MDSFoundation
MDS Foundation
12 days
The MDS Foundation’s upcoming Patient and Family Forums are just around the corner, and we’d love to see you there. 💙. These free, in-person events are created to connect MDS patients, caregivers, and families with top experts in the field.
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@MDSFoundation
MDS Foundation
14 days
A major advantage of our Center of Excellence partnerships is the increase in patient referrals. These collaborations enable us to connect patients with COEs for second opinions, access to clinical trials, and specialized care. Learn more on our website
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@MDSFoundation
MDS Foundation
16 days
Exciting news. 💙. The MDS Collective has developed two new resources under the myMDS initiative, designed to make key terms and concepts clearer for people living with MDS. Materials available via digital download on our website here: #MDS
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@MDSFoundation
MDS Foundation
18 days
Mark your calendars for September 7 and join us at Battery Park City Promenade in NYC for our Move for MDS walk. Come together for a meaningful day of support and fun, with yard games, face painting, and more for all ages. Register today:
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@MDSFoundation
MDS Foundation
20 days
July is National Cord Blood Awareness Month, a time to highlight the life-saving potential of cord blood, especially in the treatment of MDS. Join us this month in supporting efforts to increase cord blood donations. Learn about stem cell transplants:
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@MDSFoundation
MDS Foundation
22 days
The MDS Foundation’s upcoming Patient and Family Forums are right around the corner, and you’re invited. These free, in-person events are designed to connect MDS patients, caregivers, and families with leading experts in the field. Register today:
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@MDSFoundation
MDS Foundation
23 days
We want to hear from MDS patients and caregivers in the 2025 MDS Patient and Caregiver Survey. You can help us better understand the needs of the MDS community. Your voice has the power to shape future resources. 💙. Take the survey today:
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@MDSFoundation
MDS Foundation
26 days
MDS can lead to RBC transfusion-dependent anemia, risk of infection, and potential progression to AML. The ELEMENT-MDS Study is enrolling adults 18+ with MDS who are transfusion-independent and have not received prior ESA treatments. Learn more:
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@MDSFoundation
MDS Foundation
28 days
Whether you're joining in person or participating through the virtual Move for MDS option, your steps make a difference. Bring your friends and family, and let’s take strides toward progress for those impacted by MDS. 💙. Register today:
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@MDSFoundation
MDS Foundation
28 days
Join us for the upcoming Move for MDS walks, where the MDS community comes together for a day filled with support, connection, and fun! Enjoy yard games, face painting, and more, as we unite in this powerful movement of hope and action.
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