The closure of the Office for #LongCOVID Research & Practiced is devastating. You can read my statement on it, and everything else being erased, and ways you can help support efforts to preserve and fight back in the post ⬇️. This is an everyone issue. Time to act like it.

Shouldn’t **.

Trying to call family for help and to talk should result in you crying more and wanting to fucking kill yourself. Why do I fucking bother. My “support system” has been my biggest fucking trigger my entire life. For everyone who says why do you never ask for help, here’s why.

FOUR times today, in the hospital for my port placement, I was asked why I was wearing a mask. Public health is gone.

To the people who told me getting your port placed was a breeze and didn’t hurt… YOU LIE SO HARD.

After two long years of fighting and advocating for myself, my port is in. Hopefully this gets me better access to medical care and quality of life. #LongCOVID #POTS #Gastroparesis

RT @polybioRF: Breaking: New grant expands Long COVID Lymph Node study . PolyBio Research Foundation and the Wallace Research Foundation an….

Nothing like pending a lymph node and bilaterally tonsillectomy next Friday, and being told the port I was waiting til January for is now being put in THIS Friday. Not mentally or physically prepared for this.

RT @Saffiya_Khan1: You may remember Doechii performed at the Grammys earlier this year with “bronchitis and flu”. Well now she’s pulled ou….

RT @cosmoscanary: I'm a therapist. Nearly every client I have is getting ill over & over. Many are reporting widespread declining wellness.….

Can I tell you that I really never thought I’d be in people’s inboxes and DMs like hey do you want my organs and tissues for Long COVID research, I’m having them out in two weeks. What a time.

RT @ThePOTSPostman: You’d think the biggest barrier with chronic illness would be the diseases themselves. Nope! Turns out it’s the medical….

RT @michael_hoerger: The more I dig, the more problems I see on the CDC COVlD wastewater surveillance dashboard. They have re-binned valu….

This shit goes to hard to not share . Them:.1. How do you thrive in chaos?.2. How do you wear a mask and it doesn’t bother you?. Me: I wore much more “restricting” masks lol. Also, my brain only works in chaos. If calm, it’s dead. I don’t make the rules.

RT @CNviolations: Wow.

Interestingly, after COVID #1 in March 2020, I developed both spike & nucleocapsid AB. Two years later & after a second COVID infection and fully vaccinated for COVID, when rechecked, I had zero nucleocapsid antibodies and my spike count was much lower despite more exposure.

Pre-hiring for FD, they run this on us to determine what we need to protect ourselves. I have no antibodies to the chickenpox vaccine despite being fully vaccinated. Never had CP either. ⬇️.

Question for those with Long COVID. Have you found that through antibody testing, you have no antibodies to childhood vaccines, even after completing the full series? .⬇️.

@DrPatSoonShiong.

Any Long COVID researchers want some lymph nodes and tonsils with high SUV & FDG & B-Cell Clonality? They are coming out soon. If you’re willing to wrestle with UM related to protocol they are yours. Better to science than medical waste.

Absolutely I do. And I want my clinicians too as well. Their oath to do no harm starts at the door.