Marisa Troy
@JournalingIBD
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Living w #IBD & an #ostomy. #Migraines. #ChronicPain. #PTSD. #Patient #Advocate. @ibd_hu Showing others they aren't alone in their struggles! ๐ค
New Jersey
Joined October 2012
@MondayNightIBD @EliLillyandCo @thisimmunelife @nataliesparacio @aboutIBD @mustbthemusic @Crohnoid @IldikoMe @gutsyknots @JournalingIBD @ownyourcrohns @Sahara88uk #MondayNightIBD #IBDPoll2๏ธโฃ Reflecting on Intestinal Ultrasound (IUS) What is appealing about IUS over other monitoring tools? Would you prefer IUS - why/why not? ๐ค Please answer the poll & share your experiences in replies โฌ๏ธ #PatientExperience #SouthAsianIBD
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@MondayNightIBD @EliLillyandCo @thisimmunelife @nataliesparacio @aboutIBD @mustbthemusic @Crohnoid @IldikoMe @gutsyknots @JournalingIBD @ownyourcrohns @Sahara88uk ๐ข#IBD patients & caregivers: #MondayNightIBD #IBDPoll1๏ธโฃ ๐Thinking about your IBD experience, what mode of disease monitoring do you prefer to stay on top of your care? ๐ฝ In replies, please share your #PatientExperience, preferences/barriers to monitoring โ๏ธ #SouthAsianIBD
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๐๐ฝPatients, advocates & caregivers for sharing their journey w us! ๐ก Scanning #PatientExperience on disease monitoring & #IUS w @rebelliousgut leading the convo ๐ณ๏ธ2 #IBDPolls๐๐ฝ ๐ฃRT & share your๐ญ w us! #StrongerTogether #MondayNightIBD Supported by edu grant @EliLillyandCo
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Monday I go in for my first #cataract surgery. Some thoughts about surrendering control & how tough that can be when you've been burned so much. #chronicillness #patient #doctor
https://t.co/UQE7zYNSRQ
instagram.com
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Honored to have spoken to DPT students at @Hunter_College @CUNY on #physicaltherapy in #painmanagement! PT ๐๐ฝ critical in my #IBD surgery recovery ๐๐ฝ managed #pelvicfloordysfunction ๐๐ฝprevented prolonged use of pain meds Important for med students to learn from patients ๐๐ฝ
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If you're in the DC area this weekend, please join us for a happy hour meet & greet with fellow #IBD community members. #inflammatoryboweldisease #crohns #crohnsdisease #UC #ulcerativecolitis #ostomy #Jpouch #meetup
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Random but it's so awesome to sit in silence while getting a haircut. No meaningless small talk. Just relaxing.
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I never share things like this but this org is in desperate need of help. #adoptdontshop #rescue
Please help us rescue and re-home 50 dogs from a breeder going out of business by donating and sharing.
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So proud of @ownyourcrohns !!! ๐๐๐๐
Please help me congratulate the kind, caring, smart, compassionate, and all around wonderful Tina of @ownyourcrohns. Yesterday, Tina graduated with her MPH from @IcahnMountSinai and gave the commencement address!! Tina, you are incredible! CONGRATULATIONS, my friend! ๐ฅ
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This Pride Month on Lights, Camera, Crohnโs a look at the most common concerns & patient experiences, helpful guidance to support the LGBTQIA+ community, the added risk factors & screenings, tips for communicating with your care team, and much more. https://t.co/tbGJiF3GYd
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Webinar ๐ฉโ๐ป Supporting young people with a #stoma: current challenges & future directions: https://t.co/NWbHBCxRb6 June 7th, 6.30 - 8pm BST. I'll be there ๐ talking about unmet needs & the importance of advocacy groups such as @IBDSuperHeroes. PLUS...
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I MAY be looking for people with, or who have had, #ColorectalCancer for some paid interviews. I was just wondering whether there's anyone in my current network that might be interested if that project moves forward? #ColonCancer
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Calling all #IBD #AYA patients & #caregivers, tune in today to @MondayNightIBDโs #patientexperience co-led by IBDesisโ patient advocate @mahaparakala & @AaronBlocker_ ๐๐ฝ๐๐ฝ
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๐ฏ !! #WorldIBDDay
#worldi
On #WorldIBDDay my message to patientsโฆfind a gastroenterologist that is specifically trained and interested in taking care of #IBD patients. Not all GIs have specialized training or interest to do this just like not all GIs do ERCP or hepatology. This is essential for the best
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I haven't shared much about my #health & #IBD journey in a while. It's been too triggering for me. But I'm working on it & my goal is to get back into advocating a bit more (if possible โฅ๏ธ) If I did a post for #WorldIBDDay - what would you like to see from me? Feel free to DM.
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A Call to Action, US colleagues and people with #IBD, please take a minute: https://t.co/D4kSjpP07J
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Today is Day 2 of #CCAwarenessWeek! I've chosen to make #IBDvisible by sharing a photo of the completion of my 10 hour #TPN infusion. This is how I #gratefully begin every day! #IBDCantStopMe
#CrohnsDisease
#ShortBowelSyndrome
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Day 2 #CCAwarenessWeek! Thank you to @healthcentral for featuring me alongside other #Crohns warriors on what has worked for us in living our best lives! Read here: https://t.co/l2ZODuY2zQ
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Another 'oldie but goodie' from the #IBD blog vault is our Traveling with #IBD and an #Ostomy
@JournalingIBD recorded it back in 2016 but it's still relevant today and might prove useful when traveling for the holiday season. https://t.co/v1WHH2tWVN
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