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Marisa Troy Profile
Marisa Troy

@JournalingIBD

Followers
5K
Following
13K
Media
658
Statuses
18K

Living w #IBD & an #ostomy. #Migraines. #ChronicPain. #PTSD. #Patient #Advocate. @ibd_hu Showing others they aren't alone in their struggles! ๐Ÿค—

New Jersey
Joined October 2012
Don't wanna be here? Send us removal request.
@rebelliousgut
Madhura Balasubramaniam
1 year
@MondayNightIBD @EliLillyandCo @thisimmunelife @nataliesparacio @aboutIBD @mustbthemusic @Crohnoid @IldikoMe @gutsyknots @JournalingIBD @ownyourcrohns @Sahara88uk #MondayNightIBD #IBDPoll2๏ธโƒฃ Reflecting on Intestinal Ultrasound (IUS) What is appealing about IUS over other monitoring tools? Would you prefer IUS - why/why not? ๐Ÿค” Please answer the poll & share your experiences in replies โฌ‡๏ธ #PatientExperience #SouthAsianIBD
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@rebelliousgut
Madhura Balasubramaniam
1 year
@MondayNightIBD @EliLillyandCo @thisimmunelife @nataliesparacio @aboutIBD @mustbthemusic @Crohnoid @IldikoMe @gutsyknots @JournalingIBD @ownyourcrohns @Sahara88uk ๐Ÿ“ข#IBD patients & caregivers: #MondayNightIBD #IBDPoll1๏ธโƒฃ ๐Ÿ“ŠThinking about your IBD experience, what mode of disease monitoring do you prefer to stay on top of your care? ๐Ÿ”ฝ In replies, please share your #PatientExperience, preferences/barriers to monitoring โœ๏ธ #SouthAsianIBD
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@MondayNightIBD
#MondayNightIBD
1 year
๐Ÿ™๐ŸฝPatients, advocates & caregivers for sharing their journey w us! ๐Ÿ“ก Scanning #PatientExperience on disease monitoring & #IUS w @rebelliousgut leading the convo ๐Ÿ—ณ๏ธ2 #IBDPolls๐Ÿ‘‡๐Ÿฝ ๐Ÿ“ฃRT & share your๐Ÿ’ญ w us! #StrongerTogether #MondayNightIBD Supported by edu grant @EliLillyandCo
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@JournalingIBD
Marisa Troy
2 years
Monday I go in for my first #cataract surgery. Some thoughts about surrendering control & how tough that can be when you've been burned so much. #chronicillness #patient #doctor https://t.co/UQE7zYNSRQ
instagram.com
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@ownyourcrohns
Tina Aswani-Omprakash, MPH
2 years
Honored to have spoken to DPT students at @Hunter_College @CUNY on #physicaltherapy in #painmanagement! PT ๐Ÿ‘‰๐Ÿฝ critical in my #IBD surgery recovery ๐Ÿ‘‰๐Ÿฝ managed #pelvicfloordysfunction ๐Ÿ‘‰๐Ÿฝprevented prolonged use of pain meds Important for med students to learn from patients ๐Ÿ™๐Ÿฝ
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@JournalingIBD
Marisa Troy
2 years
It was great to reconnect w/ old friends &advocates in person! We learned a ton,shared thoughts about various topics, &had vulnerable discussions. Throughout the long wkd,we planned new ways to help serve the #IBD community.ย  I'll be sharing more ๐Ÿ“ธ &insights soon. #crohns #UC
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@JournalingIBD
Marisa Troy
2 years
If you're in the DC area this weekend, please join us for a happy hour meet & greet with fellow #IBD community members. #inflammatoryboweldisease #crohns #crohnsdisease #UC #ulcerativecolitis #ostomy #Jpouch #meetup
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@JournalingIBD
Marisa Troy
2 years
Random but it's so awesome to sit in silence while getting a haircut. No meaningless small talk. Just relaxing.
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@JournalingIBD
Marisa Troy
2 years
I never share things like this but this org is in desperate need of help. #adoptdontshop #rescue
@Labs4rescue
Labs4rescue
2 years
Please help us rescue and re-home 50 dogs from a breeder going out of business by donating and sharing.
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@JournalingIBD
Marisa Troy
2 years
So proud of @ownyourcrohns !!! ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ
@LoriPlung
Lori Plung
2 years
Please help me congratulate the kind, caring, smart, compassionate, and all around wonderful Tina of @ownyourcrohns. Yesterday, Tina graduated with her MPH from @IcahnMountSinai and gave the commencement address!! Tina, you are incredible! CONGRATULATIONS, my friend! ๐Ÿฅ‚
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@nataliesparacio
Natalie Hayden
3 years
This Pride Month on Lights, Camera, Crohnโ€™s a look at the most common concerns & patient experiences, helpful guidance to support the LGBTQIA+ community, the added risk factors & screenings, tips for communicating with your care team, and much more. https://t.co/tbGJiF3GYd
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@Sahara88uk
Sahara Fleetwood-Beresford ๐ŸŒฑ Patient Advocate ๐Ÿฉบ
3 years
Webinar ๐Ÿ‘ฉโ€๐Ÿ’ป Supporting young people with a #stoma: current challenges & future directions: https://t.co/NWbHBCxRb6 June 7th, 6.30 - 8pm BST. I'll be there ๐Ÿ‘‹ talking about unmet needs & the importance of advocacy groups such as @IBDSuperHeroes. PLUS...
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@Sahara88uk
Sahara Fleetwood-Beresford ๐ŸŒฑ Patient Advocate ๐Ÿฉบ
3 years
I MAY be looking for people with, or who have had, #ColorectalCancer for some paid interviews. I was just wondering whether there's anyone in my current network that might be interested if that project moves forward? #ColonCancer
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@ibdesis
IBDesis
3 years
Calling all #IBD #AYA patients & #caregivers, tune in today to @MondayNightIBDโ€™s #patientexperience co-led by IBDesisโ€™ patient advocate @mahaparakala & @AaronBlocker_ ๐Ÿ™Œ๐Ÿฝ๐Ÿ™Œ๐Ÿฝ
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@JournalingIBD
Marisa Troy
3 years
๐Ÿ’ฏ !! #WorldIBDDay #worldi
@guthealthmd
Dr Mark Silverberg
3 years
On #WorldIBDDay my message to patientsโ€ฆfind a gastroenterologist that is specifically trained and interested in taking care of #IBD patients. Not all GIs have specialized training or interest to do this just like not all GIs do ERCP or hepatology. This is essential for the best
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@JournalingIBD
Marisa Troy
3 years
I haven't shared much about my #health & #IBD journey in a while. It's been too triggering for me. But I'm working on it & my goal is to get back into advocating a bit more (if possible โ™ฅ๏ธ) If I did a post for #WorldIBDDay - what would you like to see from me? Feel free to DM.
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@IBDMD
David T. Rubin, MD
3 years
A Call to Action, US colleagues and people with #IBD, please take a minute: https://t.co/D4kSjpP07J
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@LoriPlung
Lori Plung
3 years
Today is Day 2 of #CCAwarenessWeek! I've chosen to make #IBDvisible by sharing a photo of the completion of my 10 hour #TPN infusion. This is how I #gratefully begin every day! #IBDCantStopMe #CrohnsDisease #ShortBowelSyndrome
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@ownyourcrohns
Tina Aswani-Omprakash, MPH
3 years
Day 2 #CCAwarenessWeek! Thank you to @healthcentral for featuring me alongside other #Crohns warriors on what has worked for us in living our best lives! Read here: https://t.co/l2ZODuY2zQ
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@CrohnsEffect
Crohn's Colitis
3 years
Another 'oldie but goodie' from the #IBD blog vault is our Traveling with #IBD and an #Ostomy @JournalingIBD recorded it back in 2016 but it's still relevant today and might prove useful when traveling for the holiday season. https://t.co/v1WHH2tWVN
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