Idiopathic pulmonary fibrosis
@IpfRm
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Helping you better understand, manage and talk about idiopathic pulmonary fibrosis (IPF). Join us at https://t.co/gSi1wts8u6
Joined May 2018
Which 5 words would you use to describe IPF? Share your answer on the Raremark website here: https://t.co/JqjlEXeORu
#MakeTheRareReal #IPF #IdiopathicPulmonaryFibrosis
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Almost 9 out of 10 carers (91%) have taken time off from work for caregiving duties. What’s the financial cost of being a rare caregiver? We take a look: https://t.co/4m7C5BlPsg
#MakeTheRareReal
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When a family member gets a life-altering diagnosis life may suddenly feel broken. Here are a few ways to heal from @DeniseMBrown3, founder of @CareYrsAcademy: https://t.co/s5tlIbvheL
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Taleena Koch, the founder of Breathe Support Network, explains why you need a pulmonologist who specializes in pulmonary fibrosis to get the best IPF care.
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What do IPF patients and caregivers think about their medication? Find out here: https://t.co/BKxmjcQZl5
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Living with IPF has its challenges, but there are ways you can stay in control. Here are some tips: https://t.co/O8iSPA8uIj
#IPF #PulmonaryFibrosis
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See how others are living with IPF and share your experiences at Raremark. Head to our website to become a member: https://t.co/3WjaT1qWnM
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"If you are not a priority in your life, you will not be fully equipped to care for another." Taleena Koch, the founder of the Breathe Support Network, shares some lessons she learned as a caregiver: https://t.co/GHf6LdbYqT
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What is genetic testing and what happens when someone has a test? We spoke to specialists to find out: https://t.co/XoFxRdSjgo
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Do you have trouble remembering what to talk to your doctor about, or what they tell you? Here are some tips to help you keep track. #IPF #PulmonaryFibrosis
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Noah Greenspan, DPT goes over five aspects of your health that are important to consider while living with IPF: #IPF #PulmonaryFibrosis
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Open communication is important between you and your caregiver. This downloadable patient tool can help guide you through some important discussions. Get it here: https://t.co/SrOSChe20a
#IPF #IdiopathicPulmonaryFibrosis
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What advice would you give to someone who just got diagnosed with IPF? Sign up or log in to Raremark and share your answer: https://t.co/7DXRXNSl6K
#IPF #IdiopathicPulmonaryFibrosis
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Together we can help each other understand, manage, and talk about IPF. Join Raremark: https://t.co/VhSTlxlrSZ
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Fatigue is one of the most common symptoms of idiopathic pulmonary fibrosis (IPF). Here's some advice on how to manage fatigue, read the article in full here: https://t.co/ycqwphzo3X
#IPF #PulmonaryFibrosis
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“I cherish quality time spent with family and friends now, and I’m not sure I would have appreciated this simple pleasure so early in my life if it weren’t for my IPF diagnosis.” Read about Charlene's and other people's experiences here: https://t.co/5oeTkUfEPF
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Have a look at this article for some tips and suggestions to help manage life with pulmonary fibrosis: https://t.co/7yPqMzO64d
#IPF #PulmonaryFibrosis
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Let's chat! What would you love to achieve this year?
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Happy new year! We hope 2022 brings you plenty of opportunities for joy, self-care, and memories to cherish ✨
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Looking for a nice painting or artwork? Take a look at the auction below 448-455 👀 Filter category by paintings 🤞💜 Please help us fundraise for @ActionPFcharity Pulmonary Fibrosis lung disease needs a cure #art #painting #photomontage
#ArtistOnTwitter
https://t.co/x2qqn1z6pf
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