Looking for anecdotes of #PwME going from severe to moderate or even "mild" on the #MECFS scale, whether cause(s) known/unknown. This is desperately needed to save lives rn. Pls RT to ⬆️ reach. Thank you! #MyalgicEncephalomyelitis #MESpine #CCI #TetheredCord #LongCovid #NEISVoid

The thing is it doesn’t matter who you are, what you’ve done, what your intentions held, or what your side conversations were… if patients are concerned about harms, it’s always worth considering. Always. It takes a lot for people with an energy robbing condition to speak up.

If you think societal collapse is an exaggeration, I suggest you read the impact of #LongCovid calculated by an economist. He had to calculate it twice *so far*, as the numbers continue to grow. https://t.co/9mVBnrOY9i

The day my heart couldn’t pump blood to my organs, my organs were shutting down, and I was transported to the ICU by helicopter was a better day than each day I am going through since my baseline decrease. Very severe ME is worse than hell

A reason a lot of people aren’t self aware about their character is because we’ve been conditioned to believe that being a bad person requires bad intentions. Most people don’t move through the world trying to hurt others. They’re not waking up plotting damage. So when harm is

ME/CFS steals lives. You can help us stop it by sharing these images widely! 🙏 Let's make today count---wherever we have an online (or irl) presence.

I'm begging y'all to remember this the next few months. Please.

In case you aren’t aware, SI = s*icidal ideation I’m actually writing a presentation right now that I’ll be presenting at a conference next year about the differences in ideation and you know what…ideation is a completely REGULAR response to intense distress!!!!

There are absolutely ppl out there who believe in fighting for people they do and don’t know. People who are being treated as disposable by the state. Ppl who understand that if I’m disposable- you too are disposable. That if Covid can disable me- it can disable you

Flooding, freezing temperatures, illness, starvation - Ahmed and his family are facing all of these issues. Please give what youre able. This family has survived in part thanks to your support, please dont turn away - it helps A LOT if you repost, comment, or "like" these posts

Healthy people have no idea how sick and disabled you can be and still not die. This isn't a call-out or anything - there are just wheels of suffering that are so far outside of normal human experience that most people never even imagine them.

Many of us are used to having to placate medical practitioners egos, to twist our experiences and words to try and get the care we so desperately need. It's exhausting, and not only that, when you are severely disabled it can be and is at times deadly.

Before I became severely disabled & bed bound I was moderately disabled & able to work part-time w/ survivors of domestic violence & did disability community organizing. The rates of abuse agst disabled ppl is astonishingly high, especially disabled women but also men. 4/

Quite simply, it replicates a pattern that many disabled ppl experience of medical professionals, family and/or caregivers threatening to withhold things that we desperately need if we don't comply with their demands... 2/

EPSTEIN BOMBSHELL: my staff is releasing a new report showing JPMorgan Chase executives – all the way to the top – enabled Epstein's sex trafficking operation. You're going to want to read this.

The worst thing is existing in a void of relentless suffering. You don't have to be famous, rich, or lead a spectacular life. Life itself is enough, no matter how "boring" or "modest" it might be. #MECFS shows what really matters. It is life itself.

Amazing essay:

Telling people to 'live within their means' is pissing me off. People are living in tents, vehicles, and shelters while working full time jobs. You cant out-budget an economy that turns basic necessity into a luxury. Stop saying that shit to people.

Flooding and cold temperatures are deathly dangerous, especially for newborns whose health is especially vulnerable. Please help this family secure the basics this winter.