Global Citizens Assembly
@GlobalCitzAssem
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A Global Citizens’ Assembly on Genome Editing. Connecting Citizens, Science and Governance at a Global Level.
Joined October 2019
📢From our national partners in France 🇫🇷 The full report from @EspaceEthique Ile-de-France on their citizens' workshops with high school students, to deliberate the ethics of #genomeediting. Summary report to come 🙌🏾
💡Nous avons le plaisir de rendre public les comptes rendus complets des ateliers citoyens sur les enjeux éthiques de l'édition du génome avec les lycéens. 👉 Nous travaillons au rapport de synthèse qui sera bientôt rendu @GlobalCitzAssem @Inserm
https://t.co/qEO7F24eVw
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Call for abstracts for the upcoming Bioethics X Philosophy of Science conference @Filoz_Prakt! Aim is to explore practical, theoretical & regulatory issues in biomedical research... Keynote from @ankeny_rachel, one of the Aus Citizens' Jury on #GenomeEditing expert witnesses.
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"Genomic imaginaries" grapple with & help to construct notions of citizenship, humanity and belonging informed by #genomics. @ELSIhub have what sounds like a fascinating panel coming up, with Lara Choksey and @lalarkin, moderated by Rebecca Wilbanks. https://t.co/0cZBdLptz5
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Striking results from the UK #CitizensAssembly on #Democracy just released by @ConUnit_UCL & @involveUK. E.g. members say they're "disappointed with how democracy is working...because there are not enough ‘ordinary people’ in parliament & government" https://t.co/YRmJBQ5CnN
ucl.ac.uk
The Constitution Unit publishes partial results from the Citizens’ Assembly on Democracy in the UK, which concluded in December 2021.
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Roundtable on the ethics of genome editing, coming up on Jan 20! Moderated by our brilliant project partner, Prof. Hervé Chneiweiss and featuring @FrancoiseBaylis, Hidenori Akutsu and @MartinaCrispo. #bioethics #genomeediting #crispr
https://t.co/OES1fcO1vG
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"much more creative work is needed on how to integrate [climate assemblies] into the political system" @Smith1966G reflects on where the #delibwave is at and where it might be going... https://t.co/QDXulhg949
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Today on Twitter, @NHGRI_Director Dr. Eric Green and Dr. Ben Berkman answer your questions on #bioethics and #genetics! 🧬
Join me and Dr. Ben Berkman on Wednesday, Jan. 13 at 2:00 pm ET as we answer your questions about genomics and bioethics -- right here on Twitter! We are excited to converse with all of you. Send us your questions now using #AskDrGenome!
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Are you from a Black heritage background and thinking about developing your social science research career? Interested in genomics? We @ethicsWCS are part of a great Fellowship opportunity with our @sangerinstitute colleagues! 👇
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Two years ago, Victoria Gray volunteered to become the first sickle cell patient in the US treated with #CRISPR gene-editing. Here she shares a really positive update on how the treatment has transformed her life since then. https://t.co/Pvyx5o9sly
npr.org
A young Mississippi woman is thriving two years after getting treated for sickle cell disease with the revolutionary gene-editing technique known as CRISPR.
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A glorious end of year wrap from our partners @DelDemUCan 🤩💫
Research projects, hiking achievements, and Covid-safe celebrations. Our year unwrapped 📸 From us, in Canberra, we wish you a happy new year 🥳 @UCBGL @UniCanberra
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Will be reading @hastingscenter's new Special Edition cover to cover! Thanks to eds @gusmano_mk @KaebnickG Karen J Maschke @carolynpneuhaus & Ben Curran Wills for bringing us a range of perspectives on public deliberation about #geneediting in the wild. https://t.co/8kJJvdMkik
onlinelibrary.wiley.com
Click on the title to browse this issue
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What can the empirical and conceptual analysis of eugenics tell us about the use of new genetic technologies? A fascinating discussion coming up on Jan 14, hosted by @ELSIhub: https://t.co/rRL41bstxq
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Day 15 of #bioethicsadvent What are the ethical issues raised by #wholegenomesequencing sequencing in newborns? Join the discussion at this @BioNewsUK event, tonight: https://t.co/C8YrMfL9Ic But make sure you've read our briefing note first! 👇 https://t.co/Cgy14pJhIU (1/2)
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Fantastic to hear about the launch of the #KavliCentres for Ethics, Science and the Public! The Centres aim to engage the public in discussions on ethical considerations born from scientific discovery: https://t.co/7bE4wdGemK. Follow @EthicsSciPublic
https://t.co/emnoJTze4h
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"Every one of us will be shown to be subtly suboptimal." A thought-provoking piece by @dandavis101, on the implications of genetic data becoming more accessible. https://t.co/j7hRuxqVrH
theguardian.com
Genetic data will soon be accessible like never before. The implications for our health are huge
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On "seeing like a citizen". Don't miss @Boswell_JC's fascinating reflections on how being selected for a #CitizensAssembly upended many of his prior assumptions grounded in scholarship and having been an observer/facilitator/organiser of #minipublics. https://t.co/gUPT8LNqF4
delibdemjournal.org
This paper presents a participant-observation account of my experience as a randomly selected participant at a Citizens’ Assembly. I reflect on what the unique experience of ‘seeing like a citizen’...
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The preliminary report from our Australian Citizens' Jury on Genome Editing is out now @GlobalCitzAssem. Cheers to @simonniemeyer @diannenicol1 Rebecca Paxton and Kath Fischer for leading the write-up. https://t.co/qLfixLJThN
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OUT NOW: @Nuffbioethics new report examining the social and ethical issues raised by the potential use of #genomeediting technologies in farmed animal breeding. https://t.co/px0q6d6jgb
nuffieldbioethics.org
Examining the social and ethical issues raised by the potential use of genome editing technologies in farmed animal breeding.
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This webinar with Susan and Eva is the ideal primer to understanding the complexity and humanity of the #GlobalAssembly Please do watch and please do consider sending this around your networks https://t.co/iOYQwY40mg
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The 'CRISPR babies' are now toddlers. A new article by @metricausa for @NatureBiotech asks important questions about how their edited genomes might affect their lives? https://t.co/9HJ1edXFZF
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