@Bosler_Aus @oslersweb Historically, one of the "polio family" infections, though possibly also caused by non-infectious damage to the same areas. Dowsett 2001: https://t.co/3dYzSlcown. Hyde c2017: https://t.co/mr9ykZSlab and https://t.co/pUoyRyWFdZ.

Well. In the taxi to the mental hospital with a doctor that is sure that mental health is the primary driver of my CFS. #mecfs Lomond ward. Stratheden. For extra fun I mislaid my credit cards. Two day, up to twenty eight day confinement. If no posts in two days, call them.

This is the message I received from @seattlechildren this morning. They have repeatedly refused to see my daughter. We now have an amazing healthcare provider (just switched through referral) who has done everything in her power, but they rejected us again. I sent an email to

It’s #MEAwarenessDay — Severe / Very Severe ME/CFS are among the worst (if not the worst) outcomes of #LongCovid, it’s horrifying & profoundly understudied. I really encourage everyone to do 1 of 3 things today / this week. 1. Read this Ed Yong piece:

New Video: @GeorgeMonbiot describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". Watch the introduction to a new 27 minute explainer video about the scandal from reframing a recognised neurological illness to the withdrawal of harmful treatments.

Can the ME Community help @MEFoggyDog get more signatures on this petition and get it trending during ME Awareness hour this evening? https://t.co/nYdlTkRIa3 #MyalgicEncephalomyelitis #VerySevereME #SevereME

Hi! Yes, assuming you're talking about this paper. Long COVID was associated with serotonin reduction in blood and persistent SARS-CoV-2 RNA in stool. Link to paper in thread!

"Urgent call from Christoph and his family: we are looking for well-done projects, websites, news articles, documentaries, and photographs that realistically depict the dark realities of people living with #MECFS. Please post all relevant data in the comments. Thank you! ❤️🙏"

Colin McEvedy ( https://t.co/y5f7YYiHF9) from the Horizon documentary in 1988 (UK) on why so many women fell ill in the Royal Free Hospital outbreak in 1955. #mecfs #cfsme #MyalgicEncephalomyelitis #chronicfatiguesyndrome #medtwitter #myalgice #cfs.

You know what, #medtwitter? Fair warning: I’m coming into the week pretty pissed off. I spent the MLK day weekend catching up on reading and thinking about the experiences of people with #LongCovid, chronic #lyme, #MECFS and other PAIS. I finally read Brian Vastag’s touching 1/

we might be starting to talk more about how long covid is decimating people’s health, ability to work and exercise etc. but there’s almost no discussion in mainstream media about how it’s affecting relationships. tldr: it’s ripping them apart https://t.co/TenJ4iAhre

Fever pain swallowing weakness Anyone out there? Help Help Doctors scientists smarts help 🆘🆘🆘🆘🆘🆘

ONE of the BEST REVIEWS on the COMPLEXITY of LONG COVID "A review and proposed visualization of the complexity of long COVID" https://t.co/qKNdGaUc82

I need help from the #MECFS bubble: please post/gather all relevant research, data, media coverage, historical context about inadequate research funding for ME/CFS in the comments. Wherever possible, cite the source. Please RT, everybody can refer to this thread in the future!TY!

https://t.co/bPRCPXosHZ

Excellent article. Informative, clear, direct. One of the best of the pandemic. Great job @jvipondmd @sameo416 @Mark_Ungrin -- thank you!! A few highlights below in thread (there are /many/ more in the article which is well worth a read)! (1/) https://t.co/k05W1ATDEv

Sharing our stories is hard. But it’s unfortunately necessary, to help create empathy & understanding. Thank you to Timothy Cooke and the Otter for this long form article on #MyalgicEncephalomyelitis. So much went into this. Please read and share. 🙏 https://t.co/ozs0caAMZW

LONG COVID 🧵: Clips from today's @IndependentSage from world leading experts. PLEASE WATCH! 1. @EricTopol We know a LOT MORE now about how Long Covid manifests in people & physiological mechanisms (loads) BUT are FAR BEHIND on finding treatments. Signifcant pandemic legacy 1/9

Do not repeat "long covid is not an interaction of body and mind" this is a classic propaganda strategy whereby refuting the claim is still perpetuating the false claim. Say "Long covid is a crippling viral illness", "LC is a vasculitis with biophysical properties"