Dr. Lady That Frugal Pharmacist
@FrugalPharm
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Following
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Media
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Paid off home/acres: 28, millionaire: 33, FIREd: 34. Cancer kid mom| artist| freelancer| entrepreneur| mushroom maven| psychedelic stuff| cofounder @womenspf ++
USA
Joined March 2018
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Last Seen Profiles
Pinned Tweet
My new pinned tweet. It’s all you need to know.
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@rgay
My son was diagnosed stage 4 cancer after we admitted on Christmas Eve last year. 1. What the hell is it about holidays and cancer? But more importantly, here’s my beautiful boy now, nearly a year later. I’m no one to you. But I feel your pain. And my DMs are open.
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@TravisPharma
@AttorneyScruggs
If we have to sign waivers such as these it means schools should not be open in the manner they are planning.
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238
ALL CLEAR! U continues to be “no evidence of active disease”. All his spots are the same or better from September scans. Most that shows is probably scar tissue. Ok I can cry now.
Out of anesthesia and awake again, as ALL elective procedures cancelled so I imagine radiologist will read scans quick. And our oncologist has to work from home and can’t schedule any patients unless it’s their day on call. So their at home awaiting our reads.
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He gave full squeezing hugs to every nurse and dr and cna who was still on the unit and checked the hallways for anyone he’d missed. 13 months ago we pulled him in on a wagon. Today he pulled the wagon out himself.
#childhoodcancer
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I will reiterate PHARMACIES AND PHARMACISTS ARE NOT OK WE ARE DOING OUR VERY BEST AND PEOPLE ARE LITERALLY BURNING OUT BEFORE OUR EYES.
Not everyone can afford to leave as I did (don’t get me wrong, not easy), and quitters guilt can be strong.
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12
149
My kiddo remains cancer free after a diagnosis a little over four years ago.
Hooray!
Also this means I am now mentally available for things I’ve been putting off because we always get worried what will happen if we take on new stuff and life shuts down….
Sooooo
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CT all clear and (preliminary) MRI all clear!! 17 months off treatment and still clear from metastatic neuroblastoma. AND this boy did his MRI and CT awake for the first time ever!
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This is an especially dark day for the future of rights in America.
I can only hope certain things are the much too late wake up call for people who aren’t paying attention or listening.
Your rights and not set in stone. They can be stripped and it’s your job to fight for them
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I’m here to remind you that if you think you’ll be bored in retirement it’s bc your job has sucked so much from you you can’t even think of a hobby let alone a passion.
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Awww thanks
@Chewy
!
I called to ask how to return an item we didn’t open as our dog just passed. They refunded me and told me donate it. And we just returned from my son’s cancer checkup to flowers from them too. 🥺🥰
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#cancer
#Solidarity
with my boy. Ok, really I’ve always wanted to shave my head and this was also a socially appropriate time.
#neuroblastoma
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😭😭😭 keep in mind we admitted to the hospital and got the news that Uriah has some kind of cancer on Christmas Eve 2018. There was a part of me that thought he’d never get to wear this Christmas shirt (that’s for 18months, and had already missed 2 Christmas)
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One year off treatment. Uriah continues to be free of neuroblastoma!! Diagnosed 12/24/2018. Chemo, bone marrow transplant, radiation and immunotherapy. Big breathe of relief.
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@TheRoctor_MD
@UnbridledMd
@hshanawaniMD
@kenjaques
THIS. Its been mind blowing how ridiculous the communication is between teams. My son is an oncology patient and 3 weeks post chemo (right now) for a major surgery, so we’re being followed by the surgery team. Completely different goals and outlooks and we’re caught in the mid.
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PSA If you’re going to wear a mask when you’re out in public don’t pull it down underneath your chin when you come up to speak to somebody it completely defeats the purpose you look like an idiot and you’re wasting valuable equipment that someone else could use
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@GoodishIntent
Mine woke up from his first radiation sedation and told the anesthesiologist “that wasn’t a good idea”. He’s 3.
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U’s MRI/CT are good! “Clear” isn’t the word, there are unusual nodules they monitor and tumor sites with scar tissue- but things are all either unchanged or continuing to improve!
I can let out a deep breath! And, hopefully, be able to put my mind to planning and future again.
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A photographer came to RMH and took a few photos and ... let me just bawl my eyes out I love them some much!
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He just ate four French fries. That doesn’t sound like much but me and husband both did secret happy dances.
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Happy 7th birthday to my kiddo. For someone with cancer at 2 who wouldn’t have seen 3 without treatment, every day the butterfly metaphor applies. I don’t believe in miracles. But he’s pretty close.
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In case you’re worried you’ll lose followers by sharing that you are undoubtedly 100% fucking pro-choice I’ve gained nearly 100 in the last 2 days.
This is one of those things where I’m willing to lose a few people to gain better ones.
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I think I’m gonna toss my books from pharmacy school. Not sure they’re relevant 18 years later.
Thoughts?
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Under appreciated budget hack:
Almost no alcohol consumption.
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What a difference a day makes. He’s talking today. Still can’t stand, will need some PT as he can’t put his feet flat and to assess if it’s nerve related or just underuse. But my boy is almost back. 😍
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I’m a female pharmacist running a free online financial community of over 50k women. A paid community of over 200 women. An award winning blog and website with top notch media partners and we’re having our inaugural membership retreat this year.
Don’t let the dudes dominate.
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When your cancer kid hasn’t wanted sweets in 5 months, has been NPO all day and wakes up from anesthesia wanting pizza and ice cream.. you indulge! He even stole my ice cream!
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I applied for a thing. A fellowship in a non traditional role for pharmacy. 2-3 hours a week. Could be very interesting. Cross your fingers for me and lets have me hit 3k because it needed my twitter and LinkedIn profiles!
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Just want to share- I’m about to get my first payment for a freelance writing job! It might only be one, but it’s something and boosts my confidence!
#freelancewriting
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This gal just got offered a new job. And flexible to my scheduling needs and 1 day a week.
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For fuck sake I cannot get over how tone deaf
@pharmacists
are
Really, we’ve been pushed for expanded services for years. On paper that sounds great
But in practice all this has done is put more demand on pharmacists with no commensurate increase in pay or professional autonomy
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Welp. I’m dead. .... just came out of hospital bathroom after shaving my head again (Uriah’s been demanding it be shaved again). His eyes light up.. he says “MAMA! They gave you the medicine so your hair doesn’t grow!!!” I said yep, just like Uriah. He reaches for me.. hugs me...
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The verbal report that I was able to get from the interventional radiologist before he had written his formal report said that the MIBG scan was negative
texted our oncologist who doesn’t even have any reports on the scan yet. He said that sounds very good😭
Cue the anxiety of knowing the test going on determines the course of my sons future our our next 6-12 months.
I’ve been fasting for 19 hours (instead of the 16 I’m aiming for) but not really feeling food atm. But I’m hungry.
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This will be U's last inpatient admission, and in a way, the end of chemo. Since his is one of the only childhood cancers getting immunotherapy, we really did finish chemo. anyway, he'll finally ring the oncology bell and I feel like it should be some kind of party. He's so
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It’s hard to see but that white pillowcase is covered in hair. I never thought I’d be so attached to hair but now I don’t want him to lose it. I like to rub my nose in it and smell it and I guess it’s another reminder that this shit is real and CANCER FUCKING SUCKS.
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BOOO. Counts too low & our oncology team firmly rejected going to Daniel Tiger Live PLUS meet & greet session. ☹️ “with flu, RSV & a measles outbreak, especially during a stem cell harvest week.. umm, no”. Vaccinate your damn kids! Mine can’t go out in part, if you don’t, jerks.
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Probably time for a reintroduction thread! 👋
Hi, I'm Dr. Regina. Pharmacist by trade. 35 years old.
I graduated with my PharmD at 23 yo. Youngest in my class.
I was in the first batch of pharmacists who didn't match for residences. I applied to TWO only, & when I didn't..
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A semi-retired day of a mom of a son w/ cancer:
Slept w/ kiddo until 9✔️
Made myself go exercise for 4 miles✔️
Did laundry & line dried it ✔️
Wrapped boy in Saran Wrap, literally, so he could get to play in sprinkler once, at 3 yo ✔️
Nap with boy ✔️
Dinner diner w/ pie ✔️
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@samtkerridge
@Zerooz32
@jcollins12671
@mousethatroar
@Telegraph
Hey, PharmD here. From my educated view point, I quite quickly took this to mean that people are getting low enough exposures to develop antibodies without getting the disease.
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Hubby sending me distracting photos as work. Look at that little Elmo swaddle daddy did.
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Sorry to delete and repost. Overloaded mom forgot to watch for personal info!
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U’s Cancer scans are “clear” as in things shrinking and no new findings. What’s there is probably scar tissue. One hiccup, as his central line has migrated too close to his heart to surgery will get back sometime tonight on plan to deal with that (it can never just be easy!)
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@TheRoctor_MD
@UnbridledMd
@hshanawaniMD
@kenjaques
Surgery says “he’s 3 weeks post chemo, as far as we’re concerned his a surgical patient.. give all the enemas!!!!!!” Oncology says “hell naw” in the meantime we’re still sitting here waiting to poop so he can take feeds without puking and get out for a few days before next chemo.
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What does HOPE look like for me?
I bought this for Uriah at the dollar store yesterday.
Not where most of you are at, but, for us, it’s more hope than we’ve been able to have for a long time.
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I’d like to see more of this type of Christianity please.
The members of Trinity Moravian Church in North Carolina purchased nearly $3.3 million of local residents’ medical debt for just $15,048.
Then, they held a debt jubilee ceremony and burned up the debt, canceling it all.
1K
12K
88K
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Only on money Twitter do 50 people celebrate you quitting your job.
I love yous.
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Uriah’s central IV line is successfully removed. Let’s hope we never see one again. Now he has to wake up from anesthesia and then we can go.
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Another rough day, our genetic testing came back and Uriah has the “MICn” variant found in 20-40% of
#neuroblastoma
cases which confers less successful treatment odds. Yeah- I’m not gonna be looking for work. Every last minute I can spend with my baby I will.
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We did it! Another leg of the journey complete.
#cancer
#ChildhoodCancer
#radiation
#radiationoncology
#radonc
#radiationtherapy
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My little angel last night. Poor guy felt great coming in to hospital and too young to understand so he’s asking “why am I not getting better?” And “why does my mouth hurt?” 😢
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CT scans show overall improvement. Tumor is down from grapefruit size to cutie size (my analogy). First tome we’ve had good news from a scan so I’ll take it.
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It’s not a real mushroom season if you don’t find one porcini bigger than your head
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Zoo day with my main man before surgery tomorrow.
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Day -1 of transplant. Day 0 is when he gets stem cells. Tomorrow. Holding up so far. Some throat pain and general malaise, but as usual, good spirits. And he finally got a smart watch, god help us.
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It’s my birthday!
I’m breaking old patterns and deciding I’m going to like this day. I’m going to tell everyone this day is about me. And I’m going to unapologetically accept whatever love I’m showered in today.
Best gift right now would to become a
@WomxnPF
mission supporter!
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The NG needed new bandaging and I convinced him to pull it! Pray for me doing Bactrim this weekend. And then we took our first walk since being home, at home. LOOK AT THAT BEAUTIFUL TUBE FREE FACE! “Look Ma! no tubes anywhere!”
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I 100% like and trust people who curse more than those who do not.
I also accept level of cursing, even if the actual curse is weak. It’s the intent that counts in terms of baseline response level.
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Well, I since I locked this down I figure might as well share a photo of my sweet boy. We’re starting chemo tonight. The next 6 months will be hell. & then they won’t really tell us much of what happens after. We’re taking it day by day. Here he is tonight, & a short while back.
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On a side note: just want to say me and husband are rocking the personal relationship so far dealing with cancer baby. We bicker and have our moments, especially in daily life, so I’m so glad to see we’re supporting each other and being forgiving well to each other too.
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Losing his hair but much more energy and smiles today!
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Cutest little dr there ever was! Seriously, a majority percentage of the staff are in love. He even talked himself in a trip to the Drs. conference room for a meeting today where he informed them they needed bubbles to make it more fun. Can’t make this stuff up!
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Wowee. Chemotherapy was rough, but immunotherapy is a maniacal rollercoaster ride. We’re out of hospital again finally. And, U is bouncing back much quicker, though the admit was more stressful than chemo. Here he is with his chubby water retaining face and Hope the therapy doggo
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@Hainesdogg
@OSheaComputer
The is the hipster elder millennial thread. I’m content to live in grunge and before my time punk.
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Started my new one day a week pharmacy job on my birthday today (no one knew) and I got a little welcome gift. Made me feel like a got a birthday present. 🎉
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Rest easy ol’ Hank. He was the goodest boy.
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It’s official! I’m a freelancing entrepreneur!
I had my last stable work job day yesterday.
I am coast FI. a millionaire including my house. I have a profitable online business.
Never thought I’d be here right now… even a couple months ago!
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Fire in the chimene(sp?) back deck lighting and one spoiled very loved kid.
A year ago we were waiting for him to tolerate a high enough NG tube feed rate for us to be able to leave the hospital after his bone marrow transplant before radiation.
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To anyone replying to my right now, I see you and I see your comments. And I appreciate it all.
I’ll probably be more or less be a monologue for a bit or commenting on things that seem utterly trivial.
Love to you all
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Happy Valentine’s Day from Uriah! He personally gave every person not in a room and all the staff his hungry caterpillar valentines. So cute. Little nausea and vomiting last night but holding up fairly well.
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I present to you the status of my Starbucks for life gameboard with 2 days until the game is over:
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@KTPharmD
@PharmaBlue
I don’t have loans or a mortgage so I’m not sure what could be offered to me. People keep telling me I could name my price right now.
For what? To have a heart attack?
I’m happier kinda poor and sleeping 9 hours a night.
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Here’s a string of Uriah pics/vids over last week to brighten your otherwise shitty week. Rise above. Look at this kid smiling going through harder crap than most adults ever will. Also- I have PayPal donations #,but maybe he needs a Patreon to EARN money for brightening days 🤔
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2
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My laptops been stolen. Clearly, this guy has more important work to do than me.
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To moms everywhere. We deserve every good god damned good thing we get. Currently I am acting as a pillow to an exceptionally ill toddler sleeping on the potty. the things moms just do and no one knows.
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Current me REALLY thanks past me for obsessively cleaning the house before we left for 3 weeks. I LOVE coming home to a clean house. It really makes it more enjoyable after a long trip.
#lifehacks
#traveltips
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1
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RIP little brother. Found out my estranged brother who had struggled with so much for so long was found dead today. Likely overdose. 💔
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Cue the anxiety of knowing the test going on determines the course of my sons future our our next 6-12 months.
I’ve been fasting for 19 hours (instead of the 16 I’m aiming for) but not really feeling food atm. But I’m hungry.
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0
43
Wish us luck on our first night alone. I have a feeling we’ll sleep for 12 hours and I’ve just unpacked at temporary location and am exhausted. PS:there’s no microwave 😮
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Someone is gonna be super excited tomorrow!
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42
It hasn’t even been 24 hours since the invasion started. This is cringeworthy.
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1
43
@Alexmcbme
@ClimateDefiance
Don’t super want to be that person, but is this a generalization or a you thing - cuz you might start but cutting that twitter blue subscription? 😅🫠
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So our
@MakeAWish
request is going to be a fully fitted stand alone music studio. Uriah loves music and he can use it from 3 to 30 and learn and grow. A bunch of varied instruments. Maybe some recording equipment for the future. Space to hang out and listen to him play. 🤗
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This boy is almost 5. I felt very uncomfortable buying that “5” candle over a year ago. And things feel so normal for us (bizarre in a pandemic). Happy to be where we are.
Sorry to delete and repost. Overloaded mom forgot to watch for personal info!
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This nap view makes me very happy. We have fuzz!!
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