FND Ireland
@FndIreland
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FND Ireland is the first Irish registered charity dedicated to advocating for and supporting those living with FND in Ireland 💚🧡
Ireland
Joined April 2024
This #WBD2025 we highlight one of the main risks of developing #FND is having another neurological condition. The @naiireland #MyNeuroSurvey showed over 1/3rd of adult respondents diagnosed with FND live with another neurological condition💚🧡.@jonstoneneuro @DONPSI @wfneurology
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Our founder and NAI board member Eamon McPartlin is looking forward to joining @naiireland tomorrow on #WBD2025. 💚🧡. #InvestInNeurorebilitation #MyNeuroRehab #FND.
NAI board member Eamon, is living with FND and Dystonia, and he will be joining NAI tomorrow on #WBD2025 in calling for much needed investment in vital neuro-rehabilitation services. #INVESTINNEUROREHABILITATION.@FndIreland.@DystoniaIreland
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Interesting study by @Veronicabreira @jonstoneneuro @AlanCarson15 on digital self-help for functional cognitive disorder. 💚🧡. #FND @DONPSI @NeuroscienceIRL @naiireland.
@Veronicabreira @jonstoneneuro @AlanCarson15 report on a novel digital self-help functional cognitive disorder intervention. The CBT–based programme led to symptom improvement in 62% of participants and boosted quality of life and more. Read at
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Are you a young person living with seizures? . Join @Futureneuro_ie on July 31st at the @RCSI_Irl.for Seizures and Me, a creative workshop for young people living with seizures (and their siblings) to express their experiences through art, writing, photography & more. 💚🧡 #FND.
🎨 Reminder: Seizures and Me is happening on July 31 at @RCSI_Irl. A free creative workshop for young people living with #Seizures (and their siblings) to share their stories through art, writing, or photography. Register at:
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Do you know that FND is very common?. We estimate that over 9,000 people live with #FND in Ireland and the high respondent rates in the recent @naiireland Patient Experience Survey validate this. With World Brain Day on July 22nd, it is time to shine a light on FND.💚🧡.@DONPSI
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Country singer @LisaMcHughx has today shared her recent diagnosis of FND on her social media. We wish Lisa all the best with her rehabilitation. We at #FNDIreland know the challenges of living with #FND and we are here to support.💚🧡.@DONPSI @naiireland
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#FNDIreland were delighted to support the research phase of the Muisci Ireland Chronically Hopeful production. It was great for those with #FND to have the opportunity to inform this new work around exploring unseen disabilities and chronic illnesses.💚🧡
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It is good to see neuro-rehabilitation highlighted in improving equity of access in the @HSELive Corporate Plan 2025 to 2027 which was launched yesterday. However we need this commitment to be followed through. 💚🧡.@naiireland @DONPSI @NeuroscienceIRL #MyNeuroRehab #FNDIreland
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Our founder and @naiireland board member, Eamon McPartlin highlighting how crucial neurorehabilitation services are for those living with neurological conditions. Please support the NAI campaign this #WBD2025, July 22nd.💚🧡.#FNDIreland @DONPSI @DystoniaIreland @Futureneuro_ie.
"We need action & not promises" - Eamon is living with FND & Dystonia and he joins NAI this #WBD2025 in calling for much needed investment in vital.neuro-rehabilitation services. #INVESTINNEUROREHABILITATION.@FndIreland @DystoniaIreland
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We had our #FNDIreland peer support meeting in Louth at the weekend. A big THANK YOU to all those who shared their experience of living with #FND. It was great to have 3 new members join us. Thanks @louthcoco for your support in providing our meeting space💚🧡@naiireland @DONPSI
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✨ Double Everesting Challenge Complete, still time to donate ✨. A massive THANK YOU to Team West for taking on this incredible challenge on Croagh Patrick to support FND Ireland and @IrishCancerSoc. The 25 athletes completed the 24 climbs, some 17,700m in 30 hours! 👏👏💚🧡
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Are you a young person living with seizures?. Join @Futureneuro_ie on July 31st at the @RCSI_Irl for Seizures and Me, a creative workshop for young people living with seizures (and their siblings) to express their experiences through art, writing, photography & more. 💚🧡 .#FND
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Thanks to Kieva for raising awareness of #FND and #FNDIreland on Midwest Radio. Kieva who was diagnosed with FND last year is a member of Team West and is planning to take on the challenge of climbing Croagh Patrick this weekend. Please support. 💚🧡.
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Our founder and @naiireland board member Eamon McPartlin and student Miriam Collins met with @MarianHarkin and @FrankFeighan at the NAI Pre Budget Launch last week.💚🧡 .#MyNeuroRehabTeam #FNDIreland @DONPSI.
Great to see coverage from @LeitrimLive of our Pre Budget Launch calling for investment in neurorehabilitation. NAI highlighted to @MarianHarkin & @FrankFeighan the urgent need for a community Neurological Rehabilitation Team in the Sligo-Leitrim area
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Our next FND Ireland Community Connect event takes place in Leitrim:. 📍 Carrick-on-Shannon.📅 12th July 2025.⏰ 2.15pm. Please email us or contact us via our website to register to attend. 💚🧡. @naiireland @DONPSI @ppnleitrim @leitrimdevco #FNDIreland
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Our founder & NAI board member, Eamon McPartlin met with @charleswardtd at the @naiireland Pre Budget launch earlier this week on the urgent need to expand the current community neurorehabilitation team based in Donegal to serve the entire North West.💚🧡
donegaldaily.com
FacebookTweetLinkedInPrint Main pic: Charles Ward TD and patient advocate and NAI board member, Eamon McPartlin. The Neurological Alliance of Ireland…
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We had our #FNDIreland peer support meetings in Dublin and Cork this week. A big THANK YOU to all those who attended and shared their experience of living with #FND. Thanks to @Fingalcoco and @Corkcoco for their support in providing our meeting spaces. 💚🧡.@DONPSI @naiireland
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Our founder and @naiireland board member Eamon McPartlin and student Miriam Collins attended the NAI Pre Budget Launch yesterday. It was great to meet with the NAI team, fellow patient advocates, support organisations and many Oireachtas members.💚🧡.#MyNeuroRehabTeam #FNDIreland.
NAI is calling for investment in neuro-rehabilitation services, and at yesterday's Pre Budget Launch, we, along with patient advocates and members, met with almost 40 local representatives. It's time to deliver on promises already made #myneurorehabteam
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An excellent informative podcast from occupational therapist Clare Nicholson on OT for FND in acute, rehab & community settings. So important to have a collaborative approach, 'the first thing is to find out from the patient what they want to work on'. 💚🧡.@AOTInews @DONPSI #FND.
🎙 New Podcast Episode to prep you for the weekend! We’re thrilled to welcome occupational therapist and FND researcher Clare Nicholson as this episode’s guest!🌟. 🧠 In this episode, we discuss:.- Occupational therapy in FND.- Addressing hypersensitivity in patients with FND.🧵
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📢 Looking for your nomination by June 25th 🙏. Please nominate #FNDIreland for the AIB Community fund to give us a chance of securing up to €20,000 to support the 9,000 people living with #FND in Ireland. It only takes a few minutes, just scan the QR code. Please share!💚🧡
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