Empower: Data4Health
@EmpowerD4H
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Empower: Data4Health is a coalition of patients, clinicians and charities working to improve the use of anonymised personal data in healthcare #DataSavesLives
Joined September 2012
A great speech for an important cause, thank you @nicolablackwood & @DHSCgovuk! Much to be done and potential to unlock!
gov.uk
Health Minister Nicola Blackwood's speech at an event to celebrate the role of the National Data Guardian being placed on a statutory footing.
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Can you help the National Data Guardian for Health and Social Care to shape its future direction? It has opened a consultation on its proposed priorities and is seeking feedback by 22 March. Find out more here: https://t.co/e7d1wAyJE9
@ndgoffice
gov.uk
We have published the findings from our public consultation on the work priorities for the National Data Guardian for Health and Social Care. This includes our new priorities.
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The National Data Guardian for Health and Social Care is holding a public consultation on its proposed priorities. If you are interested in health and care data and wish to share your views, you can do so until 22 March. Find out more: https://t.co/e7d1wAyJE9
@ndgoffice
gov.uk
We have published the findings from our public consultation on the work priorities for the National Data Guardian for Health and Social Care. This includes our new priorities.
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A pleasure to join @Policy_Projects and Sir John Bell for last night's discussion on the Life Sciences Strategy. Great to hear that (whatever the #Brexit backdrop) there is real confidence that UK #LifeSciences is still going to go from strength to strength!
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.@simonmgillespie is absolutely right that tech, done right, is an investment not a cost to the health service #nhs #nhs70 #ArtificialInteligence #datasaveslives
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At the #datasaveslives debate in #CPC18. Exploring everything from doing standard practice better and faster right through to the role of #ArtificialIntelligence in the healthcare delivery of the future. @prospect_uk
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Interesting insights from @Natalie_banner on concept of “data ownership”. When people ask normally what they’re really getting at is “control and choice”; ownership is a “blind alley” as we’re not talking about same concept as “property rights”. #AI #datasaveslives
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We must build trust and transparency at a time where public confidence in how their data is being used is falling significantly. #AI #AICommunity #NHS #healthcare
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Here at @wellcometrust to hear from @AHSNNetwork on how we accelerate #AI in health and care. First results of a state of the nation survey examining progress to date. #AICommunity
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Medical cannabis developer GW Pharma close to final breakthrough https://t.co/Qy6YfNiPBL < good news indeed, GW have been good friends and advocates for Empower, see Geoffrey's piece for us on drug licensing
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Many ways to skin a cat: Delivering the same school workforce data for different users https://t.co/kc0r9vmG1z via @EmpowerD4H < check out @CallumStaff1 on the power of data
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A privilege to be at this morning's @Policy_Projects breakfast with @IQVIA_UK to hear from @jamesosh. Some welcome positivity for #LifeSciences despite challenging policy landscape. Great to hear the minister recognises that #DataSavesLives
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Many ways to skin a cat: Delivering the same school workforce data for different users | check out @CallumStaff1's blog for us on data in education https://t.co/kc0r9vmG1z via @EmpowerD4H
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Duchenne UK is pleased to announce funding of £200,000 for Dr Olivier Dorchies at the University of Geneva, towards a 2-year pre-clinical study into a combination therapy for Duchenne Muscular Dystrophy. https://t.co/66M83a3Nfo
duchenneuk.org
Duchenne UK is pleased to announce funding of £200,000 for Dr Olivier Dorchies at the University of Geneva, towards a 2-year pre-clinical study into a combination therapy for DMD.
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Prof David Snead believes patients will be “bolder than politicians” with their #healthdata if they’re empowered to access and use it. Hear, hear! #spechealth
#datasaveslives
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Is involving patients “an act of democracy? Or intelligent science?” @alstewitn asks. Ian Campbell from @innovateuk tells #spechealth that it is indeed both, and patients are vital to every aspect.
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Asked if the #nhs will be “fully digital” by 2020, Lord O’Shaughnessy tells #spechealth “probably not” but “pretty close”. #datasaveslives
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Lord O’Shaughnessy in discussion with @alstewitn on way this initiative will succeed where others have failed in the past, like #caredata. He’s keen to emphasise the strategic will and technology is now there.
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Lord O’Shaughnessy absolutely right to highlight the importance of providing patients with an ‘opt out’ on data sharing. But also glad to hear he sees it as a priority to ensure patients feel confident enough in data that they don’t use it! #spechealth
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At #spechealth this morning to hear from @DHSCgovuk’s Lord O’Shaughnessy to hear about how data, and the technology it enables, can revolutionise #healthcare & #socialcare. We certainly believe #datasaveslives
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